Aug 04, 2012 - 4:06 pm
Tim here :)
My last rad was 1/20/12 and I had no surgery or platinum chemo. Only Erbitux.
I got off all pain meds about 2 months ago. Had feeding tube removed 1st week of June.
Got a very good PET/CT scan May 6, 2012 got a good scope / finger exam on June 9, 2012 got a good scope / finger exam on July 1, 2012 and I even was seen by my ENT only on July 19th who did no scope but did do a finger exam and of course looked in my ears, nose and throat.
On each visit since about mid-June I have expressed that I have had a pain in my throat, but all looks good, so they are aware of the pain complaint. The pain scale has moved up gradually from a 3-4 on the scale to now a 6-7 on the scale.
On that note, though I am very "pro-active" about being diligent and looking out for recurrence, I'm really not concerned that it is recurrence, but just could really use some pain relief.
The pain is located on the other side of my tongue (my primary tumor was on the left side) but not at the base more at the side where your teeth come togther. The sharpest pain (like an alcohol wipe on a cut) is from behind and above the Uvula(sp) that thing that hangs down in your throat (which mine hardly exists anymore). The pain is up to a 6-7 on the pain scale and is now wearing me down. The ibuprofen I take (4 / 200mg) at one time only lasts a little while and I have been taking up to 8-10 of those a day now for at least a week. I started gargling with Tyl PM this past week and that seems to do better, but none offers pain relief for very long.
I just came from my primary yesterday (at the request of the oncologist office) to see if I had thrush....primary said he does not believe it is thrush but he said it does look "a bit red and raw" in the area where I say the pain is.
My right nostril is also very sore, clumped up with gunk. Primary gave me a perscription for my nostril (ointment).
Primary said he believes it could be post-nasal drip which is just irritating the situation of post rads thus causing the pain.
It is dry and hot up here where I live, in the middle of the forest, 5,200 feet up and I have been working A LOT at the hotel which I manager and I am talking non-stop.
So here are my questions (sorry I give so much detail).
Why is the pain back so intense and persistant now? (after I was able to get off all pain meds)
He also prescribed me Narco 5/325 but I have not filled it yet because I don't like the way it makes me feel afterwards. It's wonderful med for pain, but then as it wears off I feel like I have a hangover. Certainly don't like that.
Thanks all. As always I appreciate the feedback, well wishes, prayers and shared experiences you all give on this forum. They have always been helpful.