Aug 02, 2012 - 4:24 pm
I posted this on the colon cancer forum...and so far have not found anyone with my specific form of cancer....so I am reposting it here...
I had my appointment with my oncologist to where he told me that my cancer is a "variant" (his words) of colon cancer. I have looked it up and found statistics showing that it is very rare...less than 1% of colon cancers. The prognosis isn't good...but then the only informlmation i have found is old. I am thinking that i need to find a specialist...even though i really like my doctor. I am concrrned that the chemo is not going to be very effective as this type of cancer is not only very aggressive but resistant to chemo.
Is any one else diagnosed with signet ring cell cancer? Does anyone have any info....info on specialists in signet ring cancer? I am in Northern Virginia...so Washington or even Baltimore woul be ideal. I also have family in Tampa...so Moffit could also be an option.
I have searched and searched...I have found no information on where to go for treatment - I want a second opinion from a specialist/expert...and I can't even find one single doctor out there.