Aug 02, 2012 - 9:45 am
Hi, everyone! My 66 year old husband was just (July 16) diagnosed with ALCL, ALK-. Luckily a friend of mine was being treated at Moffitt Cancer Center in Tampa and got us an appointment with her oncologist one week later. He has had the endoscopy, CT scans, bone marrow biopsy (no results yet), several blood tests (all look perfect), and is being admitted to Moffitt for 4 days of Hyper CVAD starting 8/7. And they are also looking at an autologous stem cell transplant.
He has had Addison's Disease for 34 years and been on Prednisone since then so the doctor thinks it caused weakening of his immune system after all these years.
Since Moffitt is two hours from our home, we also have a local "liaison" oncologist who is 20 minutes away. She will be checking his CBC counts two weeks after he returns from Moffitt each cycle.
Of all the things I'm worried about (and I retired on May 31 so I have plenty of time to worry!), one of the biggest is keeping things germ-free at home when his WBC count is at its lowest. I keep thinking of that horrible commercial where everything in your house is covered with germs. Do I run around with bleach all day? Banish our cats (yes, I'm aware of the scratch risk) to one room and use hair spray on the bird? (Just kidding on the bird idea!)
Please let me know the best things I can do for him. Thanks!