today is halfway point of brain rads...

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Gabe N Abby Mom
Gabe N Abby Mom Member Posts: 2,413
in Breast Cancer #1
and so far so good. No skin/scalp issues yet. I do have problems with balance, but that was expected, and I still have some headaches. Not as many and not as severe though.

The rads onc said we can start weaning off the decadron next week...yay! I'm kind of afraid to say it for fear I will jinx the trend...I've been on the decadron for over two weeks and have only gained 3 pounds. I'm really proud of myself for that, and am trying to gain no more than 10 total.

I also have a med onc appointment today, just a regular check-in. I'll let you all know if anything comes of that.

Hugs,

Linda

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  • disneyfan2008
    disneyfan2008 Member Posts: 6,583 Member
    #2
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    wow half way...Happy for
    wow half way...Happy for you..I hope all goes smoothly as it can..

    Denise
  • missrenee
    missrenee Member Posts: 2,136 Member
    #3
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    disneyfan2008 said:

    wow half way...Happy for
    wow half way...Happy for you..I hope all goes smoothly as it can..

    Denise

    Good job, Linda
    you can now see that light at the end of this tunnel. I'm sure you're so excited to get off the steroids. I wish you a quick and easy time with the rest of your treatment and perfect results. I admire your courage.

    Hugs, Renee
  • camul
    camul Member Posts: 2,537
    #4
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    Love that you are on the down slope.
    3 is pretty good with the decadron, I would be about 20 by now! Hope the last few go as well and so happy the headaches are less!

    Hugs to you,
    Carol
  • MAJW
    MAJW Member Posts: 2,510 Member
    #5
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    camul said:

    Love that you are on the down slope.
    3 is pretty good with the decadron, I would be about 20 by now! Hope the last few go as well and so happy the headaches are less!

    Hugs to you,
    Carol

    Linda...
    Half way, yeah!!! So glad for you....something to watch for that brain rads cause.....Thrush....of all things! I had it really bad for almost 2 1/2 months, I'd go off the medication, and it would come right back...that's what started my downward spiral of losing all this weight...check your tongue, if it starts looking "coated" white or yellowish have them check it..mine started almost immediately after the rads was over...it was miserable, white blisters everywhere in my mouth and lips..when you see your RO or his nurse have them look if they don't bring it up....hopefully you won't get this but mine told me it's fairly common with brain rads...

    Keep up the good work! You stay in my prayers and thoughts....
    Big hugs, Nancy
  • Double Whammy
    Double Whammy Member Posts: 2,832 Member
    #6
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    MAJW said:

    Linda...
    Half way, yeah!!! So glad for you....something to watch for that brain rads cause.....Thrush....of all things! I had it really bad for almost 2 1/2 months, I'd go off the medication, and it would come right back...that's what started my downward spiral of losing all this weight...check your tongue, if it starts looking "coated" white or yellowish have them check it..mine started almost immediately after the rads was over...it was miserable, white blisters everywhere in my mouth and lips..when you see your RO or his nurse have them look if they don't bring it up....hopefully you won't get this but mine told me it's fairly common with brain rads...

    Keep up the good work! You stay in my prayers and thoughts....
    Big hugs, Nancy

    Time flies even when you're NOT having a good time!
    Hard to believe you're halfway, Linda. Keep on being positive.
    Hugs,
    Suzanne
  • Texasgirl10
    Texasgirl10 Member Posts: 668
    #7
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    Double Whammy said:

    Time flies even when you're NOT having a good time!
    Hard to believe you're halfway, Linda. Keep on being positive.
    Hugs,
    Suzanne

    Yay
    Yay Linda! I am so proud of you. I know I haven't posted in a while but I've been checking the boards and praying for you daily. You are my hero!!!!!

    Hugs,

    Dawne
  • RE
    RE Member Posts: 4,591 Member
    #8
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    :-)
    Linda already half way done that is very good news! I am glad you seem to be tolerating it well, and only 3 lbs you are a super star.....good for you!!

    BIg gentle hugs,

    RE
  • Christmas Girl
    Christmas Girl Member Posts: 3,682 Member
    #9
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    That halfway point is such a meaningful milestone...
    ... within the midst of any sort of treatment. Am glad for you, Linda!

    I agree - the steroids, though necessary, really suck. Hated 'em & their horrid SEs. Relieved that soon you'll be free of them.

    Hope your med onc check-up yesterday went well for you.

    Kind regards, Susan

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