Jul 27, 2012 - 10:41 pm
A Spinal Tap test reduced all his symptoms in a dramatic way and this return to his old self lasted about three and a half weeks. Then they all returned and I was devastated. However, I did not understand that a shunt would make the same effect more permanent. Once I read about this on Wikipedia, I begged his NO for one and was told, it will not help him and that I was crazy or delusional if I thought it would bring him back to me.
But it has! He is dry, today we walked almost a mile without a walker, and without falling, and he has begun reading again. They are in the process of adjusting this shunt so that his brain fluid is at the right level. It's results are miraculous. And he can even have his MRIs without it being affected!
I hope this offers you some hope - we were told when we began this journey that there were no ways to treat these side-effects but now is a different time!
If I can answer any questions I will be happy to do so. And if you know how I can let others know about this, please let me know.
Thanks for listening,