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changed mind

scuttlebug11's picture
scuttlebug11
Posts: 175
Joined: Jun 2011

i have decided not to have the bone marrow transplant, i feel there are to many risk i can gethost versus graft disese the graft may not take i could get an infection and i have been told it will be an infection that i will die from and you can get host versus graft disease up to two years up to two years after its done i think i will take my chances with chemo and god and wait for a cure. there is a 20percent of relasp after it is done. feeling better since i am no longer mad at god i hope everyone is good i have hadley been on so i really dont get on much so i dont know blessings denise

anliperez915's picture
anliperez915
Posts: 748
Joined: Sep 2011

Hi Denise,
We will support you on whatever your decision is sweetie. Those types of decisions are extremely difficult to make and you just have to weigh the risks vs. benefits and go from there. I hope the treatment that you get will work for you and with Gods help you will do fine. Take care sweetie and I will be keeping you in my prayers.

Sincerely,
Liz

jimwins's picture
jimwins
Posts: 2002
Joined: Aug 2011

Hi Denise and good to hear from you.

I know this was a hard decision for you. You have our support
as always. Sending you big hugs....

Jim

allmost60's picture
allmost60
Posts: 3163
Joined: Jul 2010

Hi Denise,
Glad to hear your feeling better. I think it's normal to displace our anger when we get hit with tough stuff. I never questioned God, but I sure wondered "why me?" more than a few times. I hope you will check in once in awhile and let us know how you are doing. My prayers are with you friend. Much love...Sue

miss maggie
Posts: 929
Joined: Mar 2010

Dear Denise,

I was waitng to read your decision about Allo transplant. I felt it was not up to me
to say anything. Everything I read was very scary. I have no idea what the success rate
would be having an Allo transplant? Now that you have made your decision, I totally agree.
I say this, because this is what I would do. I am so glad you totally thought about both options. You are in a good place.

God bless you. Please don't lose faith. And if you do at times, I understand. You have all
of our prayers. You post when you feel like it.

Love and hugs Denise. Maggie

scuttlebug11's picture
scuttlebug11
Posts: 175
Joined: Jun 2011

i am gratful for the input no one said i would die from more chemo but the allo is just so risky i was afraid i wouldnt pull through, and it was so hard trying to get there for even an appointment i felt like mabey it was a sign i lived with this for 7years with no tratment so whos to say i may live longer with chemo i will have it if its all thats left. blessings denise

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