Jul 25, 2012 - 10:36 am
I emailed Carol on 7/15 and got a response today.
Per her request, I'm sharing with everyone
Hi I haven't been on in mth. I bet. I had a bad time the worst ever with the 4th Chemo low red and white cells. Was rendred housebound. Altho I managed a sneak out to Walmart via mask. Got bad toes! purple colored like I have been scaled by something. I heard others have had it and it is from chemo. My doc. was very rude yesterday and just shurgged his shoulders. The PetScan results were in and the nodes are all gone and to my delight the tumor in my eye is irradiated too. Then I looked at the report and saw where the radiologist was concered about a 5mm spot where my left thyroid was taken out in my 30's. Said it could be a 5mm cancer and it needed to be watched closely. I hope it is not and that if it is it is not that breat cancer spreading somewhere you don't survive those. It had not been reported I think on the first report but I did not read the first one.I just took whatever they told me for solid. th He was upset I was concerned about something that was 99.1 nothing. Well it is something and my happy bubble went to no no land and I am going to make an appt. with Dr Burkland the surgeon and our friend whom took the thyroid out the first time.I to get his take on it. Onocology dov.seemed angry. What went from a 85% chance of beating thing wich he always poclaimed went to 50/50. Also it picked up significant calcium, in my aorta. I have great cholesterol and last check 100% HDL. So I will ask my heart doctor on my Sept. visit. Just too wrap around in my mind. If I had not accidentally read that part of the report I would not have ever know. No raiation as he did not speak of it and we are sticking to 6 treatments tno 8. Thank God. Then I am not sure what goes on. I had heard retuxin once a mth? Any of you know about the retuxin being part of this to give you better chance? I am on prednisone 500mg again for four days and I am bouncing off the ceiling no sleep now in 24 hrs. My hands have neuropathy and it is getting harder to type or pick up anything small. Doc. said it should go away and the muga scan to tell how my heart is holding up was good. That is all my news now to get through thee steroid days I HATE. And onto the last treatment. Thank God. Please post this to all. I still can't remember how to do it so I put it all on your good nature. I pray you are fine. We lost a dear friend of CA last Monday 59 fought it for 10 yrs. and looked like he fought it too. Poor doll. So hating people popping off. God Bless and pass this on. Hope your trip was wonder full and you had a nice away time. lol Carol