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Update via email from Carol

jimwins's picture
jimwins
Posts: 2002
Joined: Aug 2011

I emailed Carol on 7/15 and got a response today.
I think overall, she has good news :).

Per her request, I'm sharing with everyone
I have not responded yet - have to run some errands and
visiting a nearby friend for a day or two.

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From: cbpgill26
To: jimwins
Subject: 5th Chemo yesterday
Date: Wed, 07/25/2012 - 10:26am

Hi I haven't been on in mth. I bet. I had a bad time the worst ever with the 4th Chemo low red and white cells. Was rendred housebound. Altho I managed a sneak out to Walmart via mask. Got bad toes! purple colored like I have been scaled by something. I heard others have had it and it is from chemo. My doc. was very rude yesterday and just shurgged his shoulders. The PetScan results were in and the nodes are all gone and to my delight the tumor in my eye is irradiated too. Then I looked at the report and saw where the radiologist was concered about a 5mm spot where my left thyroid was taken out in my 30's. Said it could be a 5mm cancer and it needed to be watched closely. I hope it is not and that if it is it is not that breat cancer spreading somewhere you don't survive those. It had not been reported I think on the first report but I did not read the first one.I just took whatever they told me for solid. th He was upset I was concerned about something that was 99.1 nothing. Well it is something and my happy bubble went to no no land and I am going to make an appt. with Dr Burkland the surgeon and our friend whom took the thyroid out the first time.I to get his take on it. Onocology dov.seemed angry. What went from a 85% chance of beating thing wich he always poclaimed went to 50/50. Also it picked up significant calcium, in my aorta. I have great cholesterol and last check 100% HDL. So I will ask my heart doctor on my Sept. visit. Just too wrap around in my mind. If I had not accidentally read that part of the report I would not have ever know. No raiation as he did not speak of it and we are sticking to 6 treatments tno 8. Thank God. Then I am not sure what goes on. I had heard retuxin once a mth? Any of you know about the retuxin being part of this to give you better chance? I am on prednisone 500mg again for four days and I am bouncing off the ceiling no sleep now in 24 hrs. My hands have neuropathy and it is getting harder to type or pick up anything small. Doc. said it should go away and the muga scan to tell how my heart is holding up was good. That is all my news now to get through thee steroid days I HATE. And onto the last treatment. Thank God. Please post this to all. I still can't remember how to do it so I put it all on your good nature. I pray you are fine. We lost a dear friend of CA last Monday 59 fought it for 10 yrs. and looked like he fought it too. Poor doll. So hating people popping off. God Bless and pass this on. Hope your trip was wonder full and you had a nice away time. lol Carol

allmost60's picture
allmost60
Posts: 3163
Joined: Jul 2010

Hi Carol,
I'm so sorry you are having such a rough time. I understand your feelings about the prednisone...kept me up also, and I hated it! I had slight neuropathy in my hands and feet, but it went away after chemo was finished...it's a pain, thats forsure. Please take care and just take things one day at a time. Keeping you in my prayers...Sue
(FNHL-2-3a-6/10)

anliperez915's picture
anliperez915
Posts: 748
Joined: Sep 2011

Hi Carol,
Just wanted to drop by and say hi, you have a lot things going on but also try to concentrate on the good things. The chemo is working and just focus on that, even though you are having other problems we sometimes have to take the good with the bad. Yes the chemo helps to get rid of the cancer but it affects other parts of the body and not in a good way. Like Sue said just take it one day at a time and one thing at a time. Go and see your other doctors and take care of yourself just don't overwhelm yourself too much, because it can sure drive a person cookoo with too many things to think about. Sending you many, many hugs and Keeping you in my prayers, Stay Strong!

Sincerely,
Liz

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