Jul 15, 2012 - 2:17 am
Anyone have experience working through avastin?
A little background: Brainstem glioma dx 2009 6 weeks temodar and rad, followed by 3 mos temodar had a very flexible schedule then. But have managed to keep a pretty rigorous work schedule (75 hours a week or so and oft 24 hours at a stretch) since then, and while it was incredibly trying was able to keep this schedule through gamma knife and more temodar back in 2010.
Thankfully recurrence free since 2010, but have had a terrible time with radiation damage, and a complicated time with high dose decadron for it (gi bleeds, ruptured ligaments, infections, terrible insomnia and mood issues), so my NO is recommending we try avastin.
But avastin is new to me. All my prior chemo treatments were with temodar. Anyone have any experience with this?
Also anyone have experience working through these types of things in general? It always seems hard to find folks who are working full time with these issues (still have a lot of residual headache, nausea/vomitting, hearing loss, fatigue, etc.), could def use someone who can relate.