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Serous Adenocarcinoma of the endometrium

55Karlotta
Posts: 7
Joined: Jul 2012

My wife was just diagnosed with serous adenocarcinoma of the endometrium she has multipule nodules through out her abdoman,,, has anybody ever heard of this ? she has done 1 chemo and is set to do another soon July 20 what can we expect? what is the prognosis? she is only 57 yrs old and other wise healthy

daisy366's picture
daisy366
Posts: 1493
Joined: Mar 2009

about your wife's diagnosis. I searched for what you described but could not find it. Could she have papillary serous carcinoma (an aggressive and rare endometrial cancer) which I have - diagnosed nearly 4 years ago.

My best recommendations are:
* stay calm and push through each challenge that is presented.
* Try not to get too far ahead of yourself with worry and negative expectations - they may never materialize and you've wasted valuable positive energy
* be your own best advocate - ask questions, get copies of records, take trusted person to appointments, get 2nd opinion if you want
* have a good treatment team - GYN oncologist a must
* make a conscious decision to be well - rather than to be a sick cancer patient. Books I recommend are Getting Well Again (Simonton) and AntiCancer: a New Way of LIfe (Sirvan Schreiber)
* exercise and eat healthy foods - check out Food For Life.

I had no symptoms prior to diagnosis. I took good care of myself and still consider myself healthy despite having a serious cancer. I'm in treatment for 2nd recurrance and feel good as I have since beginning this journey in 2008.

Please continue to support your wife. Expect a wonderful life together.

All the best to you all. Mary Ann

55Karlotta
Posts: 7
Joined: Jul 2012

Thanks Daisy 336 we are scared to death she was originally diagnosed with stage 1a uterine cancer she had a hysteroctomy in oct 2011 and they missed the boat the path read it wrong it was worst than that we would have done chemo or something else but the doc said no need based on the report from pathologist sad new,,, now we must go on ,,,

debrajo's picture
debrajo
Posts: 755
Joined: Sep 2011

Have you contacted a lawyer? I know any one can make aa mistake, but this might be a PATTERN with this pathologist. He certainly didn't help your wife, but he may have made it a LOT worse! He needs to at least be checked into. Hope all goes well, I have 1a,c UPSC and had chemo and radiation which is the usual course to take, even with 1a. Best, debrajo

snowbird_11's picture
snowbird_11
Posts: 160
Joined: Oct 2011

Just want second Mary Ann's note (Daisy) - she offers an excellent overview for you to work with and notes some excellent resources. But I do want to emphasize the importance of her care being managed by a gyneocologic oncologist. This is a fairly rare cancer and is treated more like ovarian cancer than the more common endometrial cancer. If you do not have one in your area at least consult with one to evaluate her treatment plan, etc.
I hope her chemo regimen goes well and she is able to achieve NED status. (No Evidence of Disease)
Annie

molimoli
Posts: 9
Joined: Aug 2014

Daisy366 thanks for your positive post. helps a lot.

debrajo's picture
debrajo
Posts: 755
Joined: Sep 2011

Hi Molimoli, Mary Ann did post some wonderful, informative information, didn't she!  Sadly, Mary Ann, Dasiy 366. lost her fight to cancer a little over a year ago, But she certainly left us a wealth of information and support!  We all miss her!  Best, Debrajo

Fayard's picture
Fayard
Posts: 343
Joined: May 2011

In 2010 I was diagnosed with Clear Cell Adenocarcinoma.
It is not the same type of cancer, but maybe your wife's diagnose is Clear Cell or Papillary Serous, like Mary Ann mentioned.
What stage is it? What kind of chemo is your wife receiving and for how long?
Even though both cancer cells are aggressive, some are manageable and sometimes cured.
You can always ask your wife's doctor for a copy of her diagnose.
Please do keep us posted and keep in mind we are here to support each other.

Blessings to you and your family.

Catmalogen
Posts: 19
Joined: Jul 2012

Read my story on discussion board. Titled USPC discussion. I know I live outside USA but worked in its health system for a few years. You are in good hands. And have the best of centres available to you.
As mentioned in other messages. Gynae Oncologist a must! and take it from there one day at a time. The experts will keep you well informed. Ask about treatment plan and overall prognosis. Stay positive. Good luck with this journey in life. Olivia

LizGrrr's picture
LizGrrr
Posts: 124
Joined: Nov 2011

It's scary, but there are so many great survival stories on these boards. Treatments suck, but it's better than the alternative. Be patient with each other, don't hesitate to ask for help from friendsand family, and believe in recovery!

Liz in Dallas

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