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Got good news today

Ro10's picture
Ro10
Posts: 1388
Joined: Jan 2009

It has been four weeks since my last lab test, and seven weeks since my last chemo. My CA-125 went from 60 to only 79. That is a much smaller increase than when I ended my second round of chemo. I was very happy.

I will start on homone therapy now. I will start on aromasin which is a newer aromatase inhibitor. It is like Femara, like several others on on. It will be interesting to see if it does anything to slow down the rise of the CA -125. I won't go back for six weeks.

I still will continue with the daily blood thinner shots. I sure have some sore spots in my abdomen from these shots.

I still have problems with nausea. I have even resorted to getting " sea bands" that people wear on cruises to help with ea sickness. They cause acupressure to help with nausea. They seem to be working. May be just a placebo effect, but I will continue to wear them.

Still don't have hair coming back yet. We've been havin 100 plus temperatures, so I have not worn my wig for weeks.

Wishing everyone a good weekend. In peace and caring.

daisy366's picture
daisy366
Posts: 1493
Joined: Mar 2009

You definitely deserve good news. I hope the nausea subsides - I know many people who use those bands. I don't think it's placebo.

I hope you enjoy the rest of the summer - your garden, cooler weather, and enjoy NED!!!

God bless. Mary Ann

pakb56
Posts: 141
Joined: Jan 2012

Ro we all need some good news no matter how small. I sure know i could use some but hearing that of my sisters here is the next best thing Keep that cute face cool in this heat.

HellieC
Posts: 431
Joined: Nov 2010

So pleased the rise in CA-125 is small - I know that's what you were hoping for. Long may it stay like this for you, so you can e njoy a long chemo break.
I've been on Femara for 2 weeks now, so much too early to tell if it's having an effect (I think they normally check at around 3 months). I see my oncologist on the 25th, so I will ask her about the different types of hormones and try to find out why she though Femara was the best one for me. So far, I have no side effects.
It's interesting that none of the aromatase inhibitors (Femara, Arimidex, Aromasin) seem to be approved for endometrial cancers but lots of oncologists seem to be prescribing them rather than progestins - I've searched the internet and can't find much in the way of clinical trials. But the evidence must be out there somewhere - my oncologist is heavily into "evidence based" medicine, so she must know something we don't, otherwise she wouldn't prescribe them!
I'm keeping all my fingers and toes crossed that we both do well on them.
Kindest wishes
Helen

Ro10's picture
Ro10
Posts: 1388
Joined: Jan 2009

My doctor suggested the Aromasin for me because I had tried Arimidex before. He said Femara and Arimidex work the same, and aromasin works a little different. My doctor said he talked to about ten different doctors. Their first recommendation was tamoxifen, but he then told them about my blood clots, and they said not to use that.

Hope you continue to do well. In peace and caring.

HellieC
Posts: 431
Joined: Nov 2010

Thanks for the information, Ro. I will ask my onc. about the differences when I see her. My appointment has been postponed until August (should have been next week), although there's no real urgency and I know that if I am worried about anything, I can get hold of her or get an appt. if I really need it.
Kindest wishes
Helen

lkchapman's picture
lkchapman
Posts: 104
Joined: Jan 2011

I had just been wondering about how you were doing Ro. That's wonderful news. And placebo effect or not, relief is relief. Our minds are very powerful!

Laura

Double Whammy's picture
Double Whammy
Posts: 2272
Joined: Jun 2010

May you continue to do well. You made it through the ugly chemo and it did its job. Hooray hooray.

About the aromatase inhibitors, I take Arimidex for my ER+ breast cancer. My med onc said "they" use it for endo cancers as well. While my cancer was early stage, low grade adenocarcinoma and did not require any treatment other than surgery, my little mind likes to think that the Arimidex is insurance for that part, too. Seems like I had a lot of estrogen hungry stuff growing a couple of years ago . . .

Suzanne

Sara Zipora's picture
Sara Zipora
Posts: 227
Joined: Sep 2010

Good news!
May we all catch some!!

Chaya Sara Zipora

Fayard's picture
Fayard
Posts: 343
Joined: May 2011

Very happy for you!

txtrisha55's picture
txtrisha55
Posts: 424
Joined: Apr 2011

Wishing you all the best. trish

snowbird_11's picture
snowbird_11
Posts: 160
Joined: Oct 2011

That's a minimal change in ca125 that long after finishing chemo which should mean chemo did a good job. May you enjoy a nice long break! Hope the temps and the nausea settle down a bit so you can enjoy your garden more.
Have a lovely summer!
Annie

marieinlv
Posts: 39
Joined: Aug 2011

Ro, it's amazing how bonded we've all become. I know you've been busy and yet you take the time to include us in your list of folks to keep informed on how great things are going. Thank-You, and just a goofy thing I do for nausea, burnt toast. I haven't tried it for all of this that we're going through, however I find the simple things often work. Beautiful news on an awesome morning here in las Vegas. Marie

Kaleena's picture
Kaleena
Posts: 1049
Joined: Nov 2009

Great news, Ro!

Sending you hugs!

jazzy1's picture
jazzy1
Posts: 1387
Joined: Mar 2010

This is such great news......I'm pulling for you to have a very, very long time off and hoping the CA125 keeps on moving down hill F A S T....

Sending you loads of positive vibes and know you're in my prayers!!

Jan

LizGrrr's picture
LizGrrr
Posts: 124
Joined: Nov 2011

So glad to hear you're recovering from the latest treatments and keeping your spirits up. Keep kicking butt!

Liz in Dallas

cheerful
Posts: 120
Joined: Apr 2011

Hi Ro:

So glad to hear that everything went so well for you. I hope that you do not have to go through any more chemo and that you remain cancer free. I will keep you in my prayers.

Cheerful

RoseyR
Posts: 464
Joined: Feb 2011

Ro,

Have always admired your stalwart spirit! You have come through so many treatments with flying colors! So it's great to hear that your CA125 is looking pretty good.

Keep wearing the sea bands; even sailors wear them to prevent nausea. And don't forget real grated ginger (or ginger capsules by Nature's Way, two an hour) if you're feely queasy.

Love,
Rosey

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