Jul 12, 2012 - 11:34 am
First, please know that though the cancer may be the same, all patients are different. Treatment plans are different. Results are different. What works for one doesn't necessarily work for another.
I want to share some hope with Stage IV patients.
He has good days and bad days. In the beginning, it was really rough. He had a lot of complications, reactions and things that just added to the stress of it all. Many times I was scared that 'This was it'.
I haven't been on this site in a while, though it was a lifesaver for me in the beginning. I learned so much from other people's experience. It helped tremendously. I guess I reached a point though that it became depressing to see all the newcomers and loss of others. I was worried that I wasn't doing enough compared to others. Were we doing all we could?
The last year and a half our life has become routine. Lou has been on the same chemo now since late 2010 and it seems to be working. It's holding the cancer at bay. He has it 2 weeks in a row (as long as blood work is OK) and then off for 2 weeks. Recently however, it was changed to 3 weeks off. His body just hasn't been recouping enough in just 2 weeks.
He does feel bad a lot. Has a lot of stomach pain that he blames on the chemo. I have been trying to convince him for months to see his GI Dr, but..........
I guess I just have gotten too used to our routine, and one day I had a reality check. He has EC! I cannot rest too easily with this beast lurking in the corner!
Thoughts and prayers to all-