Cancer Survivors Network

Lion

Your post is depressing and I hope you find the right way to control the incontinence. Nevertheless, you should be aware of what is spoken about the Interstim Implants.

I have no experience so that my layman’s comment is based on what I have read and researched.
The Interstim device, it seems, works by stimulating the sacral nerve 3 which controls the bladder. In other words, if the sphincter structure is perfect and the cause for the incontinence is due to “uncontrolled” activity of local muscles, a wake-up call of local nerves may put everything back into order. However, if the sphincter is “defective” physically due to lack of nerves or muscles cut at surgery, then stimulating the sacral nerve may not show the improvement you are looking for.

The good thing about Interstim is that it can be tested/experienced without implantation (the device can be hold in a belt externally and connected to the inner stimulating rods). And that deserves a try.

Not to discourage you I paste here the comment from a patient which I think it be important to you and other comrades reading this thread. It goes like this;

“…I tired it a few years ago. My incontinence is due to a back injury that damaged the nerves. Basically, it feels like I need to pee all the time. They can set you up with a test run where the device is external and you have two probes inserted into your back. You then adjust it via a dial rather than a magnet.
It did give me some improvement, and I was able to feel the need to go better. But since my muscles had started to atrophy I was still having accidents. The good news was that now I was able to perform Kegel Exercises and see additional improvement.
The problem was that if you felt over stimulation from the probes you were supposed to turn down the level or even turn it off. I had a lot of pain from the probes while sleeping, so kept it turned off during that time. So I wet the bed and continued to wear diapers at night. During the day time, I had to turn it off during times when I was driving. Since I was in sales I drove a lot so even though I saw some success I still wore diapers 24/7. I also travel 3-4 times a month, getting through security became an issue because you had to show them your implant card. Sitting down on an airplane would work but it always stung when we landed, so I would turn it off as we started to descend causing me to wet when we stood up to get off the airplane.
I had also read about others having issue