Jul 04, 2012 - 12:07 pm
Yesterday I met with the new hematology oncologist as well as my original gyno oncologist. After explaining that they are not 100% certain of the cancer origin, but most likely it is the appendix, which is extremely rare, due to how much it has spread throughout my abdomen, that I am a stage 4. They described the plan to do chemo every 2 weeks, and at every 2 months I need a CT scan to determine if the tumors are shrinking. When they feel that the tumors have shrunk enough, they will consider doing another debulking surgery with HIPEC. We point blank asked what my survival rates are, and he said 6 months to 2 years depedning on how I respond to treatment. I asked what if I do nothing, how fast will this kill me. My gyno onco said probably slow, maybe I would start having problems in 1 year. The issue would be organ failure would start. I currently have a drain coming out of my stomach. They will take that out on Tues. I am afraid of my stomach continuing to fill up with ascites and how that will affect my organs and my discomfort, as I had much discomfort before from the massive ascites. My gyno onco was super supportive of my considering not doing anything, he understood why I would not want to go through treatments if in the end, I die anyways. My tumors are large and numerous, they are not even sure that I am going to be able to have another surgery. I am getting a 2nd opinion with Dr. Lowy at UCSD next week. I am also starting holistic care at The Whitaker Wellness Institute tomorrow. I know there are many people who have lived long lives after HIPEC, but I just can't see myself going through all of that, and chemo beforehand. I would rather live whatever time the Lord gives me with my 5 young children and husband, and not in constant treatments. I am praying that my holistic treatments will support and build my immune system and give me more time. I am currently reading a book, Natural Strategies For Cancer Patients, by Russell Blaylock M.D. I highly suggest it! Thanks to everyone here who have answered all of my questions and been a great support system. I will keep updating as things go along. I'd appreciate tons of prayers, especially for my 5 precious children, my husband, and my mother. Many thanks!