Jul 03, 2012 - 10:36 pm
I have been diagnosed with low grade malignant acrospiroma, a rare tumor of the sweat gland. It started out as a bump under the surface of the skin on my right middle finger, and the docs thought it was a cyst. After having it removed, it was sent off to three different pathologists nationwide to get a diagnosis. One said it was benign, one said it was porocarcinoma, and the one we went with said acrospiroma.
Last week I had a wide excision of the finger and a sentinel node biopsy that resulted in the removal of 5 nodes from my arm pit. The nodes came back clear but the finger shows that the cancer is still present. My doctor has now advised that we amputate. I am so shocked that is has come to this! My doctor can't guarantee that I will be cancer free after this and I think that is the scariest part! I'd be happy to lose my finger if I get to keep my life, but unfortunately this cancer is so rare, no one can tell me much. :(
Does anyone have any experience with this type of cancer?