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How do I know when it's time to go to ER for fluids????

idlehunters's picture
idlehunters
Posts: 1792
Joined: Apr 2009

Diarrhea has been INTENSE NON STOP for 3 days..... I am talking all thru the nite...even all over the couch! LOL....sorry...it's really nasty! Gotta laugh or I'll cry cause my butt is knots of blisters. My concern is I know I am getting dehydrated. I am drinking constantly....until I am so full I feel like I am gonna bust and I am still thirsty. I am trying to hold off till tomorrow when I will go to Onc office for some IV fluids and can then avoid the ER today. However....I don't want to get too far gone and will go to ER tonite if I HAVE to but at what point do I say...ok...can't wait no more....better go get some fluids at ER...what signs do I look for? Gosh....I just DON'T wanna do ER! And anybody know what I can put on my hurting butt??!? Thanks guys

Jennie

Doc_Hawk's picture
Doc_Hawk
Posts: 685
Joined: Jan 2012

Hey Jennie,

I'm so very sorry to hear that you're diarrhea is that bad. If you have a blood pressure monitor, take your BP while seated then again while standing. If the Systolic drops by 25 then you should go in. When I was having severe vomiting, a nurse told me that was the benchmark they use to tell if someone is dehydrated. Of course, the best is just to bite the bullet and go to the ER. When you go in, tell them that you are a cancer patient and have a diminished WBC, and they should rush you right in.

If you're not using them already, I'd recommend incontinence pants and Huggies with aloe. The pants will help to absorb moisture if you just don't make it in time and the aloe in the Huggies will help to soothe your skin. They're also sturdier than generics or Pampers wet wipes. Finally, try some calmoseptine for your irritated skin. It's got calamine in it to help soothe and heal.

This cancer stuff sure can be a pain in the butt!

Hugs

Doc

idlehunters's picture
idlehunters
Posts: 1792
Joined: Apr 2009

LOL...a pain in the butt!!!!! GAWD!!!!! I just went pee and literally screamed it burned sooooooo bad and then I cried but the tears are not flowing very much and right away I was like...uh oh..tears diminishing...... There's your sign!!!! So silly to be joking about this but what the heck.....keeps my sanity!

Jennie

Lifeisajourney
Posts: 217
Joined: Apr 2010

for diahera, vaseoline for bottom has to be used each visit, had diahera for a year, keeping hydrated is hard because water or anything will contribute to diahera.....been in hospital 4 times for bowel rests, only iv's, but that was for diviticulis, when on chemo spent 10 days, nurses use to say I HAD to stop diaherra, but watch out for constipation from lomotil/immodium, another probem...my diet is a constant in my life and I still fight everday for control...ask onc about probiontics ....good luck.....Pat

idlehunters's picture
idlehunters
Posts: 1792
Joined: Apr 2009

Been taking 4 different things to try to control the poopin but to no avail and that includes lomital and Imodium.wow....this Folfox certainly is....a challenge. Tried Vaseline...a&d, hemi creams.... Numbing stuff.....I am using just calamine now. The whole poopin/dehydrating thing kinda worries me cause I know it can get bad on ya....fast! Take care pat

Jennie

abrub's picture
abrub
Posts: 1528
Joined: Mar 2010

If it goes back to normal slowly, then you are dehydrated. It should immediately go back down if you are hydrated. A simple veterinary trick I learned, but then heard from an MD that it can apply to people as well.

When in doubt - get yourself to an ER!

Alice

Coppercent
Posts: 142
Joined: Jan 2012

Alice I have been told the same thing about the skin pinching and it has always been accurate for me. Also my body seems to shut down. Don't know a better way to explain it Then I get the IV fluids at my infusion center and I am better immediately. After you have been dehydrated a couple of times you will know the signs from your body immediately.

danker
Posts: 723
Joined: Apr 2012

My radiologist prescribed LOMOTIL to control my diarrhea. Much stronger than IMMODIUM. Never needed more than 3 pills to sttop me cold. Perhaps they will work for you as well. Good luck to you.

annalexandria's picture
annalexandria
Posts: 2172
Joined: Oct 2011

Brings back painful (literally) memories of chemo. Lomotil helped me, but not as prescribed...I would take 8 pills all at once, only way it stopped things for me. And i spent hours sitting in the bathtub, soaking my sore butt. As for getting fluids, I would say do it sooner rather than later. Dehydration is so hard on your body, actually downright dangerous, so I think it's better to get this addressed as soon as possible so your system doesn't get any more overtaxed than it is already. Hugs! Strength! Ann

annalexandria's picture
annalexandria
Posts: 2172
Joined: Oct 2011

that the stuff used to numb the area around a port before infusion (lidocain?) can also work on this problem.

idlehunters's picture
idlehunters
Posts: 1792
Joined: Apr 2009

Thanks all

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3915
Joined: Nov 2010

Ok just joking, diarrhea and chemo is no joking matter, back on my 6 months folfox, I went to er twice for diarrhea, well onc mentioned her other crc patient went straight to ICU, so it's life threatening with a capital L.
For me initially codeine and gastrow stop work reliably, but as I got into naturopaths the slippery elm, probiotics, gut relief powder and and homeopathic potion worked much better with fewer sides.

The issue is that one Cell thick seni permeable membrane is inflamed, not only can it not absorb water it can leach it out. My vote is er and then a great Naturopath, it reduced the ads burning as well. Clearly the mushy poop is too acidic, a few ideas come to mind to treat this but they are assumptions and a very very good cancer specialist Naturopath may give advice that is health giving and outside your onc field of expertise. Enjoy er, you might as well.

I am having a good few days, only used one poop pad the last few nights, added some meat into dinners to slow my digestive issues.

Hugs,
Pete

idlehunters's picture
idlehunters
Posts: 1792
Joined: Apr 2009

Yep..... DEFINATELY DEHYDRATED! And hey doc....they did that test you mentioned first thing....lol.... I thought....hummmmmm...he be right! So I am getting a huge bag of fluid as I type and I am starving......all I can think about is KFC! Yep....gonna hit there on my way home. Thanks guys for listening to me ramble and talk myself into coming here....thru you! Just another day in the neighborhood. Hey Pete... I am seeing TCM bright and early tomorrow morning. He says he has some new things to add to my herb list that will take care of these nasty side effects. We shall see........

Jennie

Varmint5's picture
Varmint5
Posts: 371
Joined: Feb 2012

Jennie,

My daughter had the same thing - diarrhea that looked like chicken broth. Just water. Just poured out of her. She had to have fluids several times but she had them at the infusion center. And so they started giving her a bag of fluids in between her chemo weeks for good measure.

She was taking up to 12 Imodium a day and also a tincture of something - tasted horrible. And she started taking Culturelle. Eventually she got less and less diarrhea with the Folfox, but when it was bad it was BAD. I feel for you.

If your mouth is dry, your eyes look sunken and feel dry, skin looks shriveled with poor turgor (pinch the skin on top of your hand - if it stays pinched, you are too dry), hardly peeing and when you pee it's really yellow - good signs you are dehydrated. Drinking water does not contribute to diarrhea - you have to drink and have to replace the electrolytes - Gatorade is good for that if you feel like you are leaning toward dehydration.

Good luck! Make sure they give you a RX for prescription strength anti-diarrhea medicine before you leave the ER.

Sandy

jjaj133's picture
jjaj133
Posts: 857
Joined: Mar 2011

so glad you went, watch the KFC on the way home though : (
Good luck at the TCM.
Big Hugs,
Judy

thxmiker's picture
thxmiker
Posts: 1198
Joined: Oct 2010

I would ask your Oncologist again about the Lomotil, and Tincture of Opium. (Things to have on hand Nupercanal, Bananas, Gatoraid or like, Lomotil, Tincture of Opium, Ginger - I preferred dried and cookies)

I was going to the loo about 20 times a day! During FolFox and for a month after chemo. I had to use Nupercanal to protect my hiney from the acid. It formed a barrier like sunscreen. It also felt like my hiney had not been fully cleaned, better then the acid burn. I am tough as nails and the hiney burn could make me cry.

My instructions from my Oncologist for Lomotil was, take on after every time you go liquid. (Make sure to get instructions from your Oncologist, I am passing information and not prescribing. My Legal Council made me write that statement. lol)

Tincture of Opium will stop the diarrhea. It also is the worst tasting thing you will have ever experienced! (No Joke!) You have to be careful because it will stop the colon spasms, and to much and you will be constipated. Just as serious of problem. I could use with Lomotil and get pudding poops. lol Not solid, not constipated and not acidic. Not a complete win, but not hurting any more. My hiney healed and I did not have to feel like I had a greasy hiney for weeks on end.

I ate a Banana or two after every loo visit. I would also drink 1 Liter of Gatoraid. This helped me not feel depleted. If I did not consume a banana and gatoraid, I was exhausted and depleted. I know of people whom did not eat and they were always exhausted and depleted. All of this still did not keep me from being hospitalized for dehydration.

The ginger helped me feel less nauseated.

I know Chemo is a difficult process and some things work for some and some things work for others. The above worked for me, and I received most of the information from others on this site. I then went to my Oncologist and asked for advice on all of the above. He told me to adjust quantities for my needs.

Best Always, mike

PS Anyone whom has been through Chemo and has not pooped their pants or couch is pretty much not telling the truth. LOL Chemo is not our finest moment. I had Gas so bad my dogs would leave the room.

idlehunters's picture
idlehunters
Posts: 1792
Joined: Apr 2009

You have some different things to try. I like that. Thank you and you can bet I will be trying a few. Thank you all for input. I am glad I got drip at ER but that was short lived.i mean the pooping is the issue and no matter what I taken thus far.....and that's everything y'all mentioned except mikes stuff....none is working. There is no on/off switch....it just runs out of me....it's bright green.... I mean vivid green......neon almost.......all watery with bits here and there. Sorry to get graphic just trying to see if anyone can relate. Why is it green? I have to put a sitz bowl on toilet and go into the water every time I go cause that is thevONLY way I can pee without screaming in pain.....and then it still hurts but bearable long enuf to get some out for relief. I am dropping all plans for tomorrow to instead work on this issue with Onc.....or whoever can help me. This pooping has got to stop. I don't want to already pass on my 2nd infusion tuesday but dang....I can't seem to get past the first one! Dang....I'm beat. Catch ya all up tomorrow when I know which end is up.

Jennie

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3915
Joined: Nov 2010

you might get reported to the rspca for gasing your dogs. but if your dogs are like mine, they will get revenge their way.

whenever someone says i have a hot ass, i just think to myself, "they have no idea"

hugs,
pete

idlehunters's picture
idlehunters
Posts: 1792
Joined: Apr 2009

Mike right about anyone not admitting they have crapped all over theirselves too....cause we all have.,..thought that was funny too . Gotta keep a sense of humor.just gotta. :-)

Jen

janderson1964
Posts: 1503
Joined: Oct 2011

Go to the er. You described my weekend 2 treatments ago. I couldnt stop going to the bathroom. I couldnt evan keep gatorade in me for more than 30 minutes. That is when i knew i needed iv fluids.

Vickilg's picture
Vickilg
Posts: 281
Joined: Jan 2011

Hi there... see if you can get Calmestine to put in the burned areas. I use to get it at the hospital pharmacy but it does help. I am sorry you are going through this. Big hug!

smokeyjoe
Posts: 1428
Joined: Feb 2011

Jennie, this sounds horrible.....hope they can give you SOMETHING for this....somehow one box of antidiarria stuff doesn't sound like enough. I remember going through tons of the stuff, I would guzzle the liquid and pop pills. I had one appt. with oncologist and he asked how much I needed for control, when I answered he was speechless and said "wow". That's all, just "wow". Hope you get some relief soon.

lesvanb's picture
lesvanb
Posts: 905
Joined: May 2008

isn't stopped by all the suggestions here be aware that something else could be going on in your colon like an opportunistic infection. I had one during my chemo/rad treatment before surgery and it nearly did me in. I was at the ER several times during a 2 week period but when you can't get up off the toilet even IV fluids don't help much. Antibiotic therapy did make a difference, and quickly (and I had to take one that is usually reserved for the hard cases and its use is very restricted). Glad it worked!

Love to you, Leslie

pepebcn's picture
pepebcn
Posts: 6352
Joined: Aug 2010

Stop it, normally onc. They Use to agree as it protects you from neutropenia infections actually most of my stomach problems use to be related with neutropenia infections.
Hugs and Hang There Jennie!

annalexandria's picture
annalexandria
Posts: 2172
Joined: Oct 2011

and had to be checked to see if I had a c-diff infection, which apparently tends to turn things green. I didn't have it, so I guess green can be "normal", but you might want to be checked for this, as this type of infection can be very serious.

thingy45's picture
thingy45
Posts: 567
Joined: Apr 2011

Jennie, try Penaten it is a diaper rash creme and it worked for me, also put some babyoil in the water when you pee, it is soothing.
drink if possible chickenbroth, you can buy in smal cartons at the grocery store it has some salt in it. That was the advice my Naturopath gave me.
Also appelsauce or grated apple with cinnamon sprinkled on it.
Hot "ass" is indeed the word. Do not wipe but sprinkle with water with babyoil.
To dry I sat down on a towel.
Sending you Hugs and healing "butt" lights and lots of laughter,
Hugs, Marjan

bev04
Posts: 10
Joined: Apr 2007

Hi I am long time member of csn. Please check my member page on diaherra bev04 ok....its been 8yrs for me and i had severe colon cancer and needed fluid glucose because of diaherra and chemo for 6 months...so please hang in there and look at me free of cancer for 8yrs
sincerely BEV04

Minnesotagirl
Posts: 141
Joined: Sep 2011

Jennie,

When I had open blisters, etc., the nurse told me to actually go pee in water. It sounds gross but it actually helped the burning feeling ~ otherwise I had to have a towel in my mouth because I screamed so loud. I also found great relief from Desitin on the hind-end(do not use during radiation though)...aquaphor is still my friend now but the Desitin (baby ointment) really helped above any and all prescription medicine the Dr. prescribed.
Watch your diet...stay away from high acidic foods like tomato's and I couldn't handle any milk products either. Good luck to you Jennie. Blessings and prayers from Minnesota.

"Minnesotagirl"

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