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Dad has stage ii, had surgery in Oct. it's back

Bclowers
Posts: 14
Joined: Jun 2012

My dad was diagnosed stage II ES back in May 2011. At MD Anderson immediately for 29 days chemo/radiation. Scan showed no more but we opted to have major surgery and remove that section. During surgery they didn't see anything! Scan 1= perfect! By May 2012 he had difficulty swallowing and jt's back. Now we're on 4 rounds of chemo. with a port for 3 days on, 11 off. He JUST TESTED POSITIVE FOR HER2. Now what? Any tips? Is my dad done? Is this like heart disease or any other and you just treat and fight? Please help me understand and give words of wisdom for me to help my mom. They are only 56. This is too early to be the end!

TerryV's picture
TerryV
Posts: 915
Joined: Jul 2011

how sorry I am.

EC is a very wicked, very aggressive cancer.

I wish your father best success in pushing back and finding a win. I hope it's possible for you.

Terry
PROUD wife to Nick, age 49
Lost to EC 06/19/12

Bclowers
Posts: 14
Joined: Jun 2012

Thank you so much!

Bclowers
Posts: 14
Joined: Jun 2012

It just keeps kickin ya in the gut! Instead of meeting our family in Gulf Shores mom and dad are at MD Anderson in the ER due to Dad's spike in fever and the think it's pneumonia. Do the hits ever stop. I'm hurting but my mom seems like she is being tortured. I can 't even imagine the helplessness she feels. Watching a mountain of a man who could take of the world reduced to nothing.

Bclowers
Posts: 14
Joined: Jun 2012

It just keeps kickin ya in the gut! Instead of meeting our family in Gulf Shores mom and dad are at MD Anderson in the ER due to Dad's spike in fever and the think it's pneumonia. Do the hits ever stop. I'm hurting but my mom seems like she is being tortured. I can 't even imagine the helplessness she feels. Watching a mountain of a man who could take of the world reduced to nothing.

Amjosmom's picture
Amjosmom
Posts: 231
Joined: Jun 2012

It's only the end when your dad decides to quit!! This fight is a hard one. Don't give up. Fight hard, but surrender completely to God's will. Be strong. And read up... A LOT!!

Bclowers
Posts: 14
Joined: Jun 2012

I will say that this whole thing has lead my parents back to the Lord. I just need some hope for my mom. My dad has a brave face, but Mom really worries me.

captdave's picture
captdave
Posts: 168
Joined: Feb 2012

As the EC patient I found it easy to put on the brave face as you put it. It's easy when you're the one that ultimately has to make the decisions and choose to fight this beast. You have some degree of control. My wife felt helpless and totally out of control. Nothing she did or said could affect the outcome. She was like a passenger in a car going over a cliff. Powerless to stop it but still along for the ride if she wanted to be or not. Hope this helps you understand why your mom might be more affected by your dads EC then he appears to be.

Dave

TerryV's picture
TerryV
Posts: 915
Joined: Jul 2011

You hit it on the nose. Totally helpless to do anything to affect the outcome. Not that the patient has much more control, but...

You've put my feelings into words, and I'm grateful.

Terry
PROUD wife to Nick, age 49
Lost battle to EC, June 19,2012

AngieD's picture
AngieD
Posts: 504
Joined: Sep 2011

My husband, Larry, was diagnosed with Stage IV EC just a little over a year ago in June 2011. In March, we went to ER when he had a fever of 102.5 and was diagnosed with pneumonia. They put him on IV Levaquin and gave him some respiratory therapy. He was like a brand new person the next morning and was dismissed that afternoon on oral Levaquin and felt fine from then on. So, hopefully, your dad will respond as well to treatment for the pneumonia. My husband's swallowing issue resolved after the first round of chemo. He has been on intermittent chemo since last July. He eats and does whatever he wants. His last scan was so good he is on a chemo break until the next scan in September. We get what Stage IV is all about, but choose to just be grateful for the good year he has had and plan on enjoying every good day that comes. I can imagine how shocked and devastated your parents are after doing everything right and having the EC show back up. Chemo worked on it before and hopefully will again, I pray.
Angie

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