Our son, ( early thirties) was diagnosed with ALL PH+ a few months ago. We were all set for a BMT when the donor fell through very recently. Since the bone marrow biopsy showed that he is in remission, he has chosen not to wait for another donor and pursue the transplant.
he has a bad feeling about the due to the high toxicity of the transplant radiation, high doses of chemo and long term effects.
Would like to hear from others who also chose not to undergo a transplant and what to expect? and how to maintain the remission. We are all aware of the low survival rate without a transplant for this specific type of leukemia (PH+ chromosome), but according to the literature there is a fine balance of benefits and risks with a transplant.