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Just finished RAI

Lolly808
Posts: 6
Joined: May 2009

Aloha,

I'm new to the forums. Had a TT April 9th, Papillary Thyroid Cancer Stage 3 diagnosis on April 13th. RAI - 209 mCi dose on May 21st.

I'm 12 days post RAI now. I'm still feeling not well. I go back to work next week Wednesday and I am kind of nervous about it! I am going back to work 3.5 days per week for the first two weeks, then back to full time.

I had my WBS Wednesday. I asked my doc what this shows, is for etc and he just said, well nothing really. It's next years scan that counts. Isn't this one important as well to see if it had spread?

I feel like I don't have enough information even though I have been reading as much as I can find. Being so hypo pretty much since my diagnosis I don't seem to retain the info and I get confused.

Saw the doc Wednesday as well and he upped my Levo from 100 mcg to 112 and added 5 mcg of Cytomel. I am not feeling well at all and have zero energy! How am I supposed to go back to work like this?

Any advice or similar situations?

bouncer
Posts: 27
Joined: Apr 2012

Hi,

I had my RAI in April, and went straight on to 150mcg of Levo. Saw the oncologist last week and she upped me to 175. My neighbour, who is female and weighs a third of what I do, is on 220, so I don't know what the criteria is that decides the doseage, but yours seems low. You should be told what the post-RAI scans revealed - hopefully all concentrated in the thyroid region. In what way are you not feeling well? I must say that I was very low, between RAI and seeing the oncologist, as I knew the scans would reveal if the cancer had spread, and that worried me, but since being told it had not spread, I am feeling 100% better about it.

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