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JOINT PAIN AFTER CHEMO

clr129's picture
clr129
Posts: 10
Joined: Dec 2011

I went through 6 rounds of carboplatin and taxol chemo treatments this past year. I finished in April and a few weeks later I began to feel extreme joint pain. My Doctor said it was probably because I had not been active during my chemo, but as I was reading on here, there are many people who have gone through similar problems. It hurts like crazy in the knees, shoulders, hips, buttocks and calves. When I sit down, it takes everything I have to stand and walk. I am now struggling to sleep because of the pain. Some of the discussions back in 2003 were people who dealt with this for years. I was wondering if anyone has any treatment they found to be successful in handling this pain.

debrajo's picture
debrajo
Posts: 747
Joined: Sep 2011

I was prescribed hydrocodone, but enhanced it with three Motrin. Like my dentist tells me, take the meds BEFORE the pain really starts to take over. Seems that if you wait to take the meds til you really need them, the have to work 3x's harder control the pain. Talk to your dr. about the Motrin first. I know my body can handle a lot of meds, but some people can't. Best, Debrajo

debrajo's picture
debrajo
Posts: 747
Joined: Sep 2011

I was prescribed hydrocodone, but enhanced it with three Motrin. Like my dentist tells me, take the meds BEFORE the pain really starts to take over. Seems that if you wait to take the meds til you really need them, the have to work 3x's harder control the pain. Talk to your dr. about the Motrin first. I know my body can handle a lot of meds, but some people can't. Best, Debrajo

CindyGSD's picture
CindyGSD
Posts: 191
Joined: Aug 2011

I finished chemo in March and have been experiencing all kinds of aches and pains. I kept pretty active during my chemo so I don't think it is because of inactivity. Ibuprofen PM helps at night though I try to avoid taking it if I can. I plan on going on a strenuous hiking trip to Montana in June so we'll see if mind over matter works. One thing that has been really bothering me is my thumbs....especially the left one. I am having a hard time gripping things. All new since chemo ended.

I hope this isn't the new normal for us. :o(
Take care,
Cindy

Peggy Davis
Posts: 7
Joined: May 2012

Hydrocodone totally gets rid of the pain for me at night & lasts a few hours into the next
day but it makes me sleepy, & you can get addicted to it. I only take it once in awhile
so I don't get addicted. During the day 800mg of Ibuprofen helps. Vitamin B-6 & Calcium helps I just heard too. Do you have bowel problems too? I got all the neuropathy & pain after the first chemo. Did you only get it after the last treatment? If so you are lucky.
Good Luck! Anyone out there try Alternative Medicine for neuropathy? Fruits, vegies, & exercise help me to ease the pain.

daisy366's picture
daisy366
Posts: 1493
Joined: Mar 2009

There have been many discussions about alternative treatments here. Try using the search in upper right to find these.

clr129's picture
clr129
Posts: 10
Joined: Dec 2011

When I was going through chemo, I would get leg pain 2 days after and it would last for about a week. My feet also became numb so I know what neuropathy feels like. However, this is not that. When sitting, I feel absolutely normal. It is when I get up that I experience this terrible hip, butt and leg pain. During my chemo, I never had problems with my hands also. I have read some of the other comments on this topic in the last few weeks but no one seems to have answers and doctors seem puzzled to. Many people got tested for arthritis, only to find out it wasn't that. I have also read how there doesn't seem to be any common medicine people take to feel better. The scariest thing is people who talk about having this pain for 10-20 years.

daisy366's picture
daisy366
Posts: 1493
Joined: Mar 2009

Could this be a side effect from radiation? Is it like sciatica? I know others with sciatica pain.

Radiation can give "late effects" - things that show up along time after treatment over.

clr129's picture
clr129
Posts: 10
Joined: Dec 2011

I was fortunate enough not to need radiation. I also noticed tht any old injury I had has now come back with a vengeance. I tore a rotator cuf a long time ago and since all of this, it has been hurting along with a separated shoulder that never hurt but just started the same time all of this other pain did. I want to find something that works so I can pass it on to others. Researching this topic has been an emoptional rollercoaster because of the lack of knowing what works and what doesn't. I will try different things and post the results of everything I find. The medical community may not be able to help us except to mask the pain, but we survivors need to help each other.

debrajo's picture
debrajo
Posts: 747
Joined: Sep 2011

I really don't know what helps that much and I am probably older than a lot on the boards, but I know the arthritis I had BEFORE the chemo and radiation really accelerated the bone aging, especially with the calcifications and new-growth bone spurs. I move like I'm in my 80's instead of being 60. Best, debrajo

mobmob
Posts: 9
Joined: Jun 2012

I was diagnosed with stage 4 endometrial cancer in Oct. 2010. I had metastases to the brain, hence the stage 4 diagnosis. I had Cyberknife treatments for the brain metastases on 11-2010, 2-2011, and 4-2012. --but back to the leg pain. My first OBGyn oncologist swore up and down that my leg pain was not neuropathy. She said the chemo had triggered an underlying condition. Then once I had completed my six chemo sessions (Carboplatin and Taxol) she decided my leg pain WAS due to neuropathy after all. I changed OBGyn oncologists, not because I wanted to, and the doctor I have now said "Oh, that leg pain is due to the Taxol" I don't know what to believe even now. Mostly I tell people that I have leg pain due to my chemo meds and I leave the word neuropathy out of it. I do think the numbness and pain in my feet are due to neuropathy. My additional leg pain, pain of the entire leg, is not neuropathy, I believe. I also have leg weakness, which to me is strange.
I was prescribed Gabapentin first, when I rejected that med I was prescribed Nortriptyline. Both of these drugs caused undesireable side effects and both helped (with the pain) somewhat but not enough. Both drugs slow your metabolism and cause a rise in blood sugar levels.
So for right now I take Norco (5 mg of hydrocodone and 325 mg of acetaminophen). I take 4 pills within a 24 hour period. I also take Cacium, Vitamin B, etc. I take hot baths several times a day. I walk a minimum of 60 minutes a day, usually 90 minutes a day. I HOPE that helps with my leg pain and weakness. I prioritize the walking because I may need to have chemo again and I think I should work on my physical strength.
My current doctor, at one point said "I can offer you Gabapentin and I can offer you Nortrityline and that's about it." I think that if a doctor says this to you, don't you believe them. When it comes to pain, there is always some other strategy or method that can be tried. Doctors should not be dismissive about your pain.

17tangerine
Posts: 1
Joined: Jun 2012

Hey clr129,

Just want to let you know I have EXACTLY the same thing. Finished chemo on February 29 th, this year and I have been experiencing pretty severe join pain....ankles, knees , hips, elbows, even my fingers. It is definitely not neuropathy, I know what that is and I have it in my toes believe it or not. I also have not had radiation, so none of that can be a factor. I noticed that we were not on the same meds, but I think that they must be similar. I was on cisplatin ( heavy metal ) and taxotere. What i also had was a heavy dose of steroids while I was on chemo. I read that withdrawals from steroids may cause joint pain, but I am not a doctor. Having said that, I am seeing my doctor this Wednesday because I believe it is unacceptable to have to deal with this level of pain. I will post when I know more, and hang in there! You are definitely not alone!

clr129's picture
clr129
Posts: 10
Joined: Dec 2011

Hi 17tangerine, did your Oncologit tell you what this could be and how to get rid of it? It is debilitating. No one told me this would happen AFTER chemo.Emotionally it is really taking a toll on me not to mention the physcial pain. It seems Doctors don't recognize this as a true condition. They seem to blow it off like it's just what happens when we get older stuff. Im sorry but so many cancer patients going through the exact same thing can't be just "experiencing getting older". Im having to pull away from friends and activities now because the pain is so intense. I HATE THIS!

Latina5363's picture
Latina5363
Posts: 1
Joined: Jul 2012

I feel your pain, I am half-way through my treatment for breast cancer and the pain is also excruciating. I love how the Dr's want to know everything your going through and when you tell them you have pain they tell you to take OTC stuff. Anyway after my first round and being in pain for almost of week I told my Dr, I wanted pain meds, they are low dose Lortabs, but in combination with Ibuprofen they do help and I feel human for a few hours. Ive read a lot about these pains and for some folks it does go away after a few years and for some they still are experiencing it, I really hope you get relief soon, I know how you feel, I don't believe it has anything to do with the age or the level of activity. As much as the chemo helps, its there to destroy so i believe there is damage weather permanent or temporary done to our bodies as well. Hang in there girl! I don't know what else to say.

Jaqlin
Posts: 3
Joined: Jul 2012

Hi I have the same pain, I am 6 months out of chemo and had the pain really badly during the treatment. It's in the bones and the joints, mainly in my legs but recently I have been getting pain in my bum as well. It's worse after activity or conversely being stagnant for a long time, like sat at work. My doctors say it is really common in women to get this. It can be from bone density loss, like arthritis. But more commonly and in my case it is called bone turnover. Chemo destroys your red blood cells and other cells and they have to be replaced from scratch. This is where the pain comes from. Like growing pains. It's actually a good sign as it means you are repairing. Your bone density drops from chemo and as you do weight baring exersise it compacts and stretches the bones again. This is why it's worse after sitting as you have had the weight on one place for a long time. Joint pain is a bit different and caused by the destruction of the fluid in your joints. For this I take maximum strength glucosamine with chondroitin msm. Get a good quality one and take it twice a day, it will lubricate your joints. Takes about a month to kick in and then after 3 months joint pain is at about 10 percent for me. The bone pain is a little harder to deal with. I just take pain killers in the hope that when my bones finally repair it will be more minimal. The best advice I have is to be moderately active. Intense exercise will make it worse, as will sloth. Try to go for a longish walk. I also try to go for a five minute walk around the office every 30 mins. I am really sorry you have been made to feel you ar the only one with this. Many of us have it and it's horrible the doctors don't recognise it as a symptom of chemo. I know it's awful but hang in there, you have been through hell and your body needs time and care to repair. Take some vit c and d3. Stay strong.

clr129's picture
clr129
Posts: 10
Joined: Dec 2011

Thank you Jaqlin for your advice. I was worried that this condition may last the rest of my life as the pain seems to be getting worse and now my left knee for no apparent reason seems to have gone out. But I noticed it "creeks" that is where your info on the destruction of fluid in my joints really makes sense. I will go get some glucosamine and chrondroitin right away. It was so thrilling to see that you received less pain after a few months. I was tested for arthritis and diabetes and both were negative. I just pray this gets better and not to the point where I can't walk anymore.

joanne52
Posts: 1
Joined: Sep 2012

Hi clr129. Noticed this post July 23/12. I am wondering if you having been taking the glucosamine regularly & if it making a difference since it has been about 2 months since your post. I finished chemo end of July/12 and also find I have a lot of generalized joint discomfort specially in the morning when I get up and if I have been sitting for any length of time. My hands feel really sore and stiff in the mornings.

Jaqlin
Posts: 3
Joined: Jul 2012

Hi I have the same pain, I am 6 months out of chemo and had the pain really badly during the treatment. It's in the bones and the joints, mainly in my legs but recently I have been getting pain in my bum as well. It's worse after activity or conversely being stagnant for a long time, like sat at work. My doctors say it is really common in women to get this. It can be from bone density loss, like arthritis. But more commonly and in my case it is called bone turnover. Chemo destroys your red blood cells and other cells and they have to be replaced from scratch. This is where the pain comes from. Like growing pains. It's actually a good sign as it means you are repairing. Your bone density drops from chemo and as you do weight baring exersise it compacts and stretches the bones again. This is why it's worse after sitting as you have had the weight on one place for a long time. Joint pain is a bit different and caused by the destruction of the fluid in your joints. For this I take maximum strength glucosamine with chondroitin msm. Get a good quality one and take it twice a day, it will lubricate your joints. Takes about a month to kick in and then after 3 months joint pain is at about 10 percent for me. The bone pain is a little harder to deal with. I just take pain killers in the hope that when my bones finally repair it will be more minimal. The best advice I have is to be moderately active. Intense exercise will make it worse, as will sloth. Try to go for a longish walk. I also try to go for a five minute walk around the office every 30 mins. I am really sorry you have been made to feel you ar the only one with this. Many of us have it and it's horrible the doctors don't recognise it as a symptom of chemo. I know it's awful but hang in there, you have been through hell and your body needs time and care to repair. Take some vit c and d3. Stay strong.

Audray's picture
Audray
Posts: 24
Joined: Jul 2012

This sound very like I had last year after the same chemo. I have read many people who have had the same pains. I have found that Osteopathy has worked for me. I am lucky to have a very good one in my area. I had very bad pain in my hip joints and the bottom of my back. He has helped me to help myself with the pain,and it has really worked for me. But the naggin pain in the bones of my legs and shoulders etc. just seemed to go away about six months after the chemo finished.. I think it can take varying lengths of time to subside.
I remember feeling like a 90 year old. Sometimes I just ached all over, and didn't know where to put myself. It has got much easier for me, so I hope and pray that it gets better very soon for you too. By the way the problem with all this, is that it seems so difficult to get the DRs. to admit that the chemo does have such lasting effects. They admited to me that it can cause any arthritus to get worse. It all leaves us worrying that it could be the cancer causing all the pain..But it is definately those 2 chemos causing it, and not your lack of activity..athough I found that I was better walking than sitting. I also had quite bad neuropathy, and still have that in my toes and fingers, Also my feet are always cold. Still these are small things to put up with compared to the alternative.

Audray's picture
Audray
Posts: 24
Joined: Jul 2012

This sound very like I had last year after the same chemo. I have read many people who have had the same pains. I have found that Osteopathy has worked for me. I am lucky to have a very good one in my area. I had very bad pain in my hip joints and the bottom of my back. He has helped me to help myself with the pain,and it has really worked for me. But the naggin pain in the bones of my legs and shoulders etc. just seemed to go away about six months after the chemo finished.. I think it can take varying lengths of time to subside.
I remember feeling like a 90 year old. Sometimes I just ached all over, and didn't know where to put myself. It has got much easier for me, so I hope and pray that it gets better very soon for you too. By the way the problem with all this, is that it seems so difficult to get the DRs. to admit that the chemo does have such lasting effects. They admited to me that it can cause any arthritus to get worse. It all leaves us worrying that it could be the cancer causing all the pain..But it is definately those 2 chemos causing it, and not your lack of activity..athough I found that I was better walking than sitting. I also had quite bad neuropathy, and still have that in my toes and fingers, Also my feet are always cold. Still these are small things to put up with compared to the alternative.

Audray's picture
Audray
Posts: 24
Joined: Jul 2012

This sound very like I had last year after the same chemo. I have read many people who have had the same pains. I have found that Osteopathy has worked for me. I am lucky to have a very good one in my area. I had very bad pain in my hip joints and the bottom of my back. He has helped me to help myself with the pain,and it has really worked for me. But the naggin pain in the bones of my legs and shoulders etc. just seemed to go away about six months after the chemo finished.. I think it can take varying lengths of time to subside.
I remember feeling like a 90 year old. Sometimes I just ached all over, and didn't know where to put myself. It has got much easier for me, so I hope and pray that it gets better very soon for you too. By the way the problem with all this, is that it seems so difficult to get the DRs. to admit that the chemo does have such lasting effects. They admited to me that it can cause any arthritus to get worse. It all leaves us worrying that it could be the cancer causing all the pain..But it is definately those 2 chemos causing it, and not your lack of activity..athough I found that I was better walking than sitting. I also had quite bad neuropathy, and still have that in my toes and fingers, Also my feet are always cold. Still these are small things to put up with compared to the alternative.

Hannah1
Posts: 63
Joined: Jun 2012

I also remember I had so much pain on my hips after chemo. It was that bad that I have a hard time getting out of the car and from sitting position.
I kept complaining to my dr so she had me do bone density scan. Found out I had bad osteoporosis. She put me on fosomax 70mg once a week and calcium 1200mg and after a month or so I felt much better. I was diagnosed 2004 with uterine cancer stage 3c, went on 7rounds of chemo and internal and external radiation. Have your bone density checked. Hope this help

clr129's picture
clr129
Posts: 10
Joined: Dec 2011

Thank you Hannah1, I think I will ask my doctor for a bone denstity checkup. She checked for inflammation markers in my blood the other day, but said they were negative. I will ask about that test. Very glad you feel much better. it certainly gives me hope where I feel hopeless

Hannah1
Posts: 63
Joined: Jun 2012

Hi how are you? How is your pain now. Did you ever get a bone density test?
I am taking fosomax for osteoporosis which relieved the pain. Been taking for
2 years now. Hope you are feeling better. God bless.

Hannah1

Fayard's picture
Fayard
Posts: 343
Joined: May 2011

I developed joint pain 3 months after I finished chemo, carbo/taxol.
I had a bone density scan 3 months after last treatment, and of course I was diagnosed with osteopenia in the neck and hips and osteoporosis in the spine.

The results did not have anything to do with my joint pain.
My oncologist told me to give 1 year or so.
It has been 1 year, and I still have joint pain.
I was referred to a pain management center, and this has worked for me.

I do not take any medication for pain, but this is just my choice.
The pain management center teaches patients to manage pain through relaxation and breathing (biofeedback). I was in treatment for about 4 months. It helped me a lot.

The parts that hurt the most are my elbows.
My knees also hurt, but walking is the greatest medicine for it.
My fingers and toes also hurt, especially in the mornings, but as I move throughout the day I feel better.

I lot of people tells me it is arthritis, but I refuse to label myself with it since these pains started right after chemo. I never had joint pain before, even though I am 44 now.

There are some foods that irritate the joints. You may want to do some research about it.
I hope you find something to alleviate your pain.

Stay well and positive...there is light at the end of the tunnel. :)

Catmalogen
Posts: 19
Joined: Jul 2012

I had 8 cycles of taxol/carbo and radiotherapy. Had terrible pain and was treated with Valium, Difene and Oxycontin. (Morphine) three times a day! I got tired of feeling stoned from all the medications and in the end took Tramadol (not sure if it available in USA). The good news is the pain will go away, ie unless you have developed some necrosis of hips joints from Chemo. I had an MRI to outrule this and also a bone scan to outrule mets in bone. Suggest if pain continues discuss with your medical team and request pain management referral. It takes time for the chemo to leave system.. I only feel back to myself now and I am one year post chemo ! You will be OK.. For more details I posted my story on discussion board titled USPC Discussion. Olivia ..Ps Reflexology and massage if indiciated by your docs helps.

clr129's picture
clr129
Posts: 10
Joined: Dec 2011

Thank you everyone for your help and advice. My legs hurt so bad now and my left knee feels like it is so tight I can barely bend it. I worry so much about this being a permanent condition and not ever feeling normal again. My regular doctor said to give it time, but she is not that familiar with chemo effects. I really want to print off report after report of joint pain right after chemo is done to prove to my oncologist it IS due to chemo. I sort of want to say..HERE....TAKE THIS!!!!

My next CT scan is next week. I feel pretty good about it, although I have noticed some odd cramping. Very little, but still something out of the ordinary. Hoping everything is ok.

Right now I am just trying to do anything I can to aleviate this horrible joint pain. They sure don't worn you about this when you are making your decision to do chemo or not.

Ultrasone
Posts: 2
Joined: Jan 2012

I had five different chemos on a weekly basis for choriocarcinoma from August to December 2011. I have had horrendous joint pain and just plain bone pain since. Its hard to describe. Almost like growing pains. I have become a vegetarian, avoid dairy and wheat mostly, exercise, hike, and am not overweight. The pain has slowly gotten better but I was really resigned to waking up most mornings with extreme hand pain, hurting getting in and out of cars, etc. HOWEVER, I asked my physician to check my vitamin D. I am outside a lot but my vitamin D was extremely low. He prescribed a 10 week regime of 50,000 units of D2. I started taking calcium too. I don't know if it is coincidence, or a miracle but my radiating femur pain and finger pain has markedly improved. It is dramatic. I am only 4 weeks into the treatment. I would NEVER have thought this could be it. Check your vitamin D.

Ultrasone
Posts: 2
Joined: Jan 2012

I had five different chemos on a weekly basis for choriocarcinoma from August to December 2011. I have had horrendous joint pain and just plain bone pain since. Its hard to describe. Almost like growing pains. I have become a vegetarian, avoid dairy and wheat mostly, exercise, hike, and am not overweight. The pain has slowly gotten better but I was really resigned to waking up most mornings with extreme hand pain, hurting getting in and out of cars, etc. HOWEVER, I asked my physician to check my vitamin D. I am outside a lot but my vitamin D was extremely low. He prescribed a 10 week regime of 50,000 units of D2. I started taking calcium too. I don't know if it is coincidence, or a miracle but my radiating femur pain and finger pain has markedly improved. It is dramatic. I am only 4 weeks into the treatment. I would NEVER have thought this could be it. Check your vitamin D.

gambrell1
Posts: 5
Joined: Oct 2012

I was diagnosed as stage IV Ovarian cancer at the conclusion of debulking surgery in Feb. 2011. I started 14 rounds of Taxol/Cisplatin at the end of April '11. Joint pain started after conclusion of Chemo in Oct. Just like others, my knees, hips and most other joints hurt badly (like I was 90!), throughout the MN winter. Found that when I traveled South for work, pain wasn't as bad - (warmer weather?) Started working out 2X a week, which I had done prior to cancer. Not sure if it was working out or summer, but by July, all pain was gone and remains so. I now am doing 3 more rounds of Taxol/Cisplatin for reoccurance in lower abdominal lymph node. I recently read an article in a cancer magazine in the doctors's office, that discussed the joint pain after Chemo. For all those who have been told it is not a real issue or that it is arthritis, it gives credence to the fact that it is in fact REAL and caused by treatment! The magazine is Cancercure.com, Dec. 20, 2011 edition (see URL below to go to the article.) Will be interested to see if pain returns this winter. I wish all on this thread a good recovery. God Bless you and stay strong!

Note: Easiest to copy the URL below and either paste it into your browser or send it in an email to yourself, at which point it will take you to a redirect page. Click on the redirect and you'll be taken to the article.
http://www.google.com/url?sa=t&source=web&cd=2&ved=0CBsQFjAB&url=http%3A%2F%2Fwww.curetoday.com%2Findex.cfm%2Ffuseaction%2Farticle.show%2Fid%2F2%2Farticle_id%2F1802&ei=8MKDUJXLC7CWyAHBnoGADw&usg=AFQjCNF2xSoM1jfmC9gboIVS***jB4eUxQ

janh_in_ontario
Posts: 110
Joined: Sep 2010

Hi Gambrell1
I am curious about your recurrence regarding the lymph node. Did you have any symptoms? How did they find it? I am doing tests now and I keep wondering if it is a recurrence and in abdominal lymph node.
Thanks
JanH

gambrell1
Posts: 5
Joined: Oct 2012

Hi JanH,
I'm sorry to hear you are having to go through this. I was having low grade dull pain on my left side. I was also bloating. I had a CT Scan which showed an enlarged lower left illiac (sp?) lymph node, and then a small needle biopsy that confirmed the reoccurance of cancer. My doctor told me that even ovarian cancer can be managed now like a chronic disease (i.e. hypertention or diabetes) if caught early. I am having quarterly scans because I am just a year out from the original diagnosis. That will continue now with the reoccurance. I've had two rounds three weeks apart and after the initial days of fatigue, feeling pretty good. I'm not having the pain and bloating anymore. Thank God. At the conclusion, they will do another CT scan.

I wish you the best and pray for good results for you.

gambrell1

janh_in_ontario
Posts: 110
Joined: Sep 2010

Thanks Gambrell -- I am having the same pain in the left side. Have had it for almost a year now. Drs can't figure it out.
I am having an MRI in December for a mass on the vaginal cuff. It was there last year but the hospital I am being treated in didn't agree with the radiologist report so no MRI was done at that time.
Stress definitely doesn't kill you - or we would all be dead!

gambrell1
Posts: 5
Joined: Oct 2012

Hi JanH,
Is there any possibility of getting the MRI or a
CT scan now, rather than waiting until Dec?
I would almost demand it if they have also found
a mass.
I hope you are able to move up their timeline.
Take care.

janh_in_ontario
Posts: 110
Joined: Sep 2010

I am in Canada - and as much as Beila would disagree - our healthcare system is sadly lacking. Actually - not having to wait more than a year is a blessing! I am in Toronto where there are numberous hospitals with this capability. My family is in another part of the country and there is one MRI machine for the entire province - and the waiting time is one year.
So I am anxiously awaiting Dec 4 - but realize that if I were still in the US I would never have had to go through what I have gone through here. But I also never have to worry here about not being able to afford the care. So it is a catch 22!

Peace and caring

JanH

gambrell1
Posts: 5
Joined: Oct 2012

Hi JanH,
I'm sorry to hear you are having to go through this. I was having low grade dull pain on my left side. I was also bloating. I had a CT Scan which showed an enlarged lower left illiac (sp?) lymph node, and then a small needle biopsy that confirmed the reoccurance of cancer. My doctor told me that even ovarian cancer can be managed now like a chronic disease (i.e. hypertention or diabetes) if caught early. I am having quarterly scans because I am just a year out from the original diagnosis. That will continue now with the reoccurance. I've had two rounds three weeks apart and after the initial days of fatigue, feeling pretty good. I'm not having the pain and bloating anymore. Thank God. At the conclusion, they will do another CT scan.

I wish you the best and pray for good results for you.

gambrell1

janh_in_ontario
Posts: 110
Joined: Sep 2010

dupe

Blythe
Posts: 5
Joined: Apr 2014

I'm glad your pain has improved! I also had my Vitamin D checked and it was within normal limits, so for me this isn't the cause.  

gambrell1
Posts: 5
Joined: Oct 2012

Hi clr129,
Please see my post to take you to an article you can take to your doctor to prove the pain IS from Chemo. I hope things have gotten better for you and I pray your pain like mine resolves the farther out you get from Chemo.

God Bless you,
gambrell1

NoTimeForCancer
Posts: 430
Joined: Mar 2013

clr129, I am not sure if you are still on the board, I think this thread started before I found this site or before I was famliar with it.  I take egg shell membrane for my pain.  I had the exact same thing!  I felt like the may my 88 year old mother looks!  I told my sister "find me something I can take".  She remembered seeing on the Steven & Chris show (this show is out of Canada - it is a lifestyle show and these guys are great!) that this is better than glucosamine (sp?!) and in a few days I couldn't believe how much better I felt!  It was like a miracle.  I still take it every day, I still feel some pain, but I don't think it is anything the way I used to feel. 

Good luck to you and all the ladies.

PS - I call B.S. on having the pain because you didn't excercise.  I do not believe doctors know unless they have had this treatment. 

ilm92564
Posts: 1
Joined: Aug 2012

I'm 47 years old and I too went through 6 rounds of carboplatin and taxol chemo treatments this past year for uterine cancer. I finished in May and several weeks after, I began to have hip pain. Sometimes it feels almost like sciatica pain. I had never been diagnosed with any arthritis, until my last CT Scan revealed it in my hips and shoulders. I really wonder if the chemo brought on the arthritis or made it worse. I find that using joint supplements brings some relief. I too wonder if I will be able to get up and walk after sitting for long periods of time. It occasionally, affects my sleep, but usually a couple Tylenol and Melatonin is enough to stop the pain and allow sleep.

sedonafree's picture
sedonafree
Posts: 8
Joined: Apr 2012

Hi, read your post and can sympathize! I finished radiation/cisplatin July '11, then started 4 rounds of carbo/taxol in Aug 11, finishing October 2011. After 5 weeks, joint pains started in the knees and butt. Someone here said the butt aches are your body producing blood cells. That may be the case, because butt aches went away in about a month and never returned.

Joint pain in the knees is pretty constant, some days better than others. Also, my old left knee injury came back and stuck around from 11/11 to 5/12. I went for a bone scan in april '12, due to complaining to my oncologist. It showed nothing! Not even arthritis. I believe it is true chemo gets into the old injuries and makes them hurt all over again, like your body remembers...

I joined a gym. Treadmill helped knees a little. Then I stopped the guy after 3 months. I also take glucosamine/chondro'n on a regular basis. It helps the joints lubricate.

My left knee pain finally went away in July...I kept my leg wrapped with an ace bandage for support. But my underlying knee joint pain is still around, but it is more mild. However I bend down differently, not really having to use my knees to push me up. So I think its better but not really back to normal at all. I also get into my car differently, sitting down and then swinging my knees in...I just don't leap into the drivers seat any more.

My hands have developed a stiffness in the morning, before I rise out of bed...they feel like claws...but that can be worked out after 15 minutes of using them.

All my joints creak more now as well. I feel horrid when I get up and have to walk down the stairs, going really slow, yes, a lot of us feel so old. I am not sure if this will go away. I am approaching 1 year of joint pain around Thanksgiving...I am hopeful.

I do a lot of juicing, wheatgrass and vitamin supplements. Gave up meat mostly. Tried to cut back on dairy and sugar.

P.S. I started to ride a bike this week, and it did not worsen the knee issue...so I think in the long run, it may strengthen the muscles around the joint and help somewhat. Give yourself time and stay positive!

Blythe
Posts: 5
Joined: Apr 2014

I have breast cancer and had Adriamycin/Cytoxan, Taxol/Herceptin chemo. About a month after ending the Taxol regime, I began to have pain in my hips, knees, elbows and thumbs, very arthritis-like. It is better with movement, worse in the mornings or in the middle of the night. My oncoligist said it was estrogen depletion, my GYN isn't quite so sure that's what it is. I just began taking a liquid Glocosamine/Chondroitin and also a baby aspirin daily. I really hope these help as my GYN doctor says this will not go away. She says it seems to be worse in women who were pre-menopausal before chemo, as opposed to older women who were already in menopause at the time of chemo.  I am trying to stay active but I am distressed that this could be a permanent condition 

Sandy3185's picture
Sandy3185
Posts: 28
Joined: Oct 2013

I am currently undergoing chemo, my last session is next Friday(yeah!). I began having joint pain inmy knees, ankles and feet about 1 week after my first treatment along with neuropathy in my hands and feet. I continued my same treatment (cisplatin/taxol) for two more treatments, three weeks  apart. Meanwhile my reaction kept getting worse. I asked my doctor to  change my chemo because of the severe reaction I was having. I also developed more pain in my left ankle and swelling. My doctor did change the taxol for taxatere and lowered the cisplatin and the I had thenext two treatments with thenew combo. My joint  has mostly gone away except for my left ankle and the neuropathy is much better. The only bad thing is that I am severely fatigued for a week or two after treatment. I still have morepain at night and I take hydrocodone when I am unable to sleep.That and taking an extra dose of my medication forrestless leg syndrome usually allow me to sleep. I have not yet had any radiation and amwondering about side effects. I usually don't feel well the first week after treatment and have passed out twice due to dehydration and low blood count. Does radiation cause a similar reaction?

Thanks, Sandy

NoTimeForCancer
Posts: 430
Joined: Mar 2013

Sandy - so happy you are almost done with chemo!!!  YEAH!!!  RING THE BELL!!! 

For me, and some of the women I have worked with, I found radiation to be exhausting!!!  The radiation continues to "work" for up to six weeks after it has been completed but I was so physically tired I would just crash out at night.  Are you getting both external and internal radiation?  There is a lot of bone marrow in your pelvis, and since radiation will damage that, try to keep eating right and sleep when you need it.

I think the radiation in the middle of my chemo really affected the ability to delivery of the last three chemos on schedule and they watched my counts. My two cents?  Just give in to the exhaustion and SLEEP.  I always thought of it as "healing" too.

So happy the final chemo is in sight for you!!!!! 

wrich10337
Posts: 1
Joined: Jul 2014

I have been reading a lot about joint pain after chemo. I have been experiencing joint pain up and down my right side. Now i have the pain in my ear.  I suffer a great deal of pain daily.  Please anyone tell me if you are experiencing pain and what are you useing to relieve this pain.  It has been about two months since i had my last chemo but this pain is not goong away.  I am even on morphine and oxycodine and that is not even reliving the pain.  My shoulder even pops constantly now, causing great pain.  I dont know what to do anymore, are there any suggestoons out there to help relieve this pain?

It happened to Me
Posts: 57
Joined: Apr 2014

So glad this thread is going.  I have most of the same aches and pains.  This is what is working for me to keep it at a tolerable level.  One is called OPC-3, it's Oligomeric Proanthocyanidins) It's a powerful anti-oxidant.  It's a powder.  My doc recommended it for the neuropathy pain in my feet because he has neuropathy in his feet from surgery and it's helping him.  The next two are homeopathics.  1 is called Hypericum Perf. the other is called Rhus Tox .  There are different strengths and ways to take it.  Those three things seem to keep things at a tolerable level.  I'm so glad that I am not the only one with knee, hip, elbow, hand and feet pain.  My hands ache alot.  Thank you for posting.  It's been 6 months since my last chemo.   My doc did a bone density test as well and I'm thankful to say that it is normal.   I am going to try the glucosamine for the joints.  Thanks for the suggestion.

Jeanette

Abbycat2
Posts: 76
Joined: Feb 2014

I started suffering from hip pain right after my first of six chemo cyclse-carboplatin and taxol- last December, 2013.  It continued to get worse after that.  I couldn't stand/walk for more than five minutes without severe pain. I only had relief when I was sitting with my legs elevated.   I finally went to a ortho doctor and learned that I was not having hip pain but rather lower back pain due to impringement between L-4 and L-5 and a bulging disc.  I probably had these problems way before chemo but I had no symptoms of pain until after chemo started.  I was miserable for months and couldn't even mop my kitchen floor or vacuum.  I could barely stand long enough to take a shower!   Finally, I had an epidural shot in March, 2014, which seemed to help until I got my last chemo a week later and the pain started up again.  I had another epidural shot in May and I am finally pain free!  I was told by my two oncologists that my pain was not caused by the chemo but I don't believe that.

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