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Carol News

jimwins's picture
jimwins
Posts: 1971
Joined: Aug 2011

I got a message from Carol yesterday (5/16).
I responded and wanted to share with you guys.

================

Hi Carol,

I'm sorry you're having these problems. Chemo caused constipation for me big time.
They gave me senokot during treatment which helped and I learned to start taking
that the day before my treatments started. I was in the hospital for 4 nights/ 5 days for
all of my treatments (chemo around the clock). I tried to walk every day
for about 20-30 minutes to get a little exercise, calm my nerves, say "hi" to
staff and patients and help prevent constipation.

My test results were good (thank God) so please don't lose faith, Carol!
Hopefully they can prevent anymore bowel problems during your next treatment.

I will post a copy of this message for the others on the Lymphoma board cause
I'm sure they'd like to know how you're doing. I'll title it "Carol News" so you
can read and post if you like.

I know you like dogs, so here's a warm and fuzzy for you:

warm and fuzzy hug

Big hugs,

Jim

=================================

> Jim I spent four days in the hospital with a bowel obstruction. Miserable pain and suffering all because of chemo. Home now all swollen and sick can hardly walk. I am not going to make this. God has given me more then I can handle and second treatment next Tues. How did your test go? Wonderful I hope. I am losing faith. Hugs.

allmost60's picture
allmost60
Posts: 3147
Joined: Jul 2010

Hi Jim,
Thank you for sharing this with us. I was wondering how things were going for her.

Hi Carol,
I'm so sorry you are having such a rough time. I suffered from constipation during my first round of chemo, but learned very quickly from then on to take my Senokot faithfully. I've heard how very painful a bowel obstruction is, so my heart goes out to you. Please don't give up hope Carol. The chemo is really tough, but eventually you will start to feel better...it just takes time to get through all of the rounds, and then go through the healing process afterwards. My prayers are with you and while your faith is wavering, we will pick up the slack and pray that much harder for you. You WILL make it through this. Much love...Sue
(FNHL-2-3a-6/10)

cbpgill26
Posts: 68
Joined: Mar 2012

Well, the bowel issue went the other way and I was unable to even get to the bathroom constant diahrea. Took one day at the Cancer Center for them to test blood etc. right across the room from the bathroom. I was soooooooooo ill.They kept me all day. Then ended up in the ER two days later at 4AM with horrible pains in my right side. Another CT Scan there shows nothing but scar tissue from past gall bladder so they say. I was on heavy drugs for two days and brought some home. I have only been out once since the last Chemo to get under things while my husband kept me steady etc. I was so beat I could hardly get out of the car. Oh, yeah one trip to heart doc. to check on A Fib. Heart still in regular rhythm thank God and maybe get off pradaxa the blood thinner that has me so black and blue another story altogether. Could bleed to death on that junk with a minor tap of your body. It is to stop blood clots yet it causes cerebral hemmorage and worse. Blood work and halter monitor on Tues. next week to see results and if heart ok he may half the dose or take me off. My poor body is a mess with chemicals. Plus my aunt who is my age exactly was on vacation in the mtns. in Montana and died suddendly of clotted blood around her heart and lungs and died! This was a SHOCK. No warning and she was not ill. Fit a a fiddle and so full of life. I cried all Sunday. We were close. Tomorrow round 3 of chemo. OMG. Oh, did I leave out the heartburn? Wow, I am a mess. I have had just about every symptom possible off the stuff short of dying and that may be next. I have had about every sympton imagineable on the Chops. My white blood count went to .1 anxious to see tomorrow as i am a time bomb for any infections going around already have mild chest congestion. It is midnight here and I am not able to sleep worrying about the treatment all 9 hours of it tomorrow. I thank you for all your encouragement and sure need it. I am in tears all the time and now prednisone again. I think I will be one of your fallen comrades. Bet, my tumor in the eye is still there! The nodes in my neck smaller but that is it. I haven't posted as I have been soooooooooooooooo sick and hardly able to turn over much less type. I posted here because I can't find a way to do it otherwise. Brain not working either. God knows Jim Poor soul tried to help me. So, please post this of new stuff for me Sue. I would appreciate it and hope all is well with you. How is your strength??? Something I would love to have. God Bless, Carol Large B Cell Hodgkins.

anliperez915's picture
anliperez915
Posts: 739
Joined: Sep 2011

Hi Carol,
Please don't lose faith that you will get through this! My heart goes out to you and I wish I could offer you wiser words of wisdom, just know that I'm thinking of you! Please take care of yourself and will be praying for you! (((HUGS)))

Sincerely,
Liz

cbpgill26
Posts: 68
Joined: Mar 2012

Thanks pretty lady. Today the lunesta shot and i am worn out from running around on a predisone high all night. Did take time to gt my tonails done a real treat as i looked like a refugee. Made me feel better. Quite a haul this is and pray the ending will be positive and good. I am so grateful for all your posts. Your all so precious to me. Stay well. I am off for a nap and eating tons of food from the steroids. You little girl I presume is a doll. God Bless. LOL

cbpgill26
Posts: 68
Joined: Mar 2012

Thanks pretty lady. Today the lunesta shot and i am worn out from running around on a predisone high all night. Did take time to gt my tonails done a real treat as i looked like a refugee. Made me feel better. Quite a haul this is and pray the ending will be positive and good. I am so grateful for all your posts. Your all so precious to me. Stay well. I am off for a nap and eating tons of food from the steroids. You little girl I presume is a doll. God Bless. LOL

cbpgill26
Posts: 68
Joined: Mar 2012

Thanks pretty lady. Today the lunesta shot and i am worn out from running around on a predisone high all night. Did take time to gt my tonails done a real treat as i looked like a refugee. Made me feel better. Quite a haul this is and pray the ending will be positive and good. I am so grateful for all your posts. Your all so precious to me. Stay well. I am off for a nap and eating tons of food from the steroids. You little girl I presume is a doll. God Bless. LOL

cbpgill26
Posts: 68
Joined: Mar 2012

Thanks pretty lady. Today the lunesta shot and i am worn out from running around on a predisone high all night. Did take time to gt my tonails done a real treat as i looked like a refugee. Made me feel better. Quite a haul this is and pray the ending will be positive and good. I am so grateful for all your posts. Your all so precious to me. Stay well. I am off for a nap and eating tons of food from the steroids. You little girl I presume is a doll. God Bless. LOL

cbpgill26
Posts: 68
Joined: Mar 2012

Thanks pretty lady. Today the lunesta shot and i am worn out from running around on a predisone high all night. Did take time to gt my tonails done a real treat as i looked like a refugee. Made me feel better. Quite a haul this is and pray the ending will be positive and good. I am so grateful for all your posts. Your all so precious to me. Stay well. I am off for a nap and eating tons of food from the steroids. You little girl I presume is a doll. God Bless. LOL

cbpgill26
Posts: 68
Joined: Mar 2012

Sorry hit so many posts never saw them going through.

jimwins's picture
jimwins
Posts: 1971
Joined: Aug 2011

I got an email from Carol last night. Just sharing
which is okay with her :). Might brighten her day if you
want to send her a quick email.

Hugs,
Jim
=============================================
From: cbpgill26
To: jimwins
Subject: hospital
Date: May 19, 2012 - 11:54pm

I am weak as a babe. Now the other problem can't stop going. Ugh. I have bloodwork on Monday and if ok Chemo on Tues. Wish I could have had it like you seems four mths. is a long time to hang in. So happy your test was good. That lifted my heart. Jim thanks for all the posts. I am presently trying to drink a ginger ale. So dried up. Hate no hair. Look like a holocust victim poor souls. God Bless. Hugs. Thanks for posting to others I have forgotten how to do it? Sorry!

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