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Has anyone experienced Small Bowel Obstruction related to Esophageal cancer?

DanTheMan
Posts: 24
Joined: Feb 2012

Hi there,
Im dan and Im around the 2 year mark post treatment for stage 4 esophageal cancer,never had an operation,just chemo and radiation but had a j tube inserted in my stomach.
Have been having problems and ended up in hospital couple of times in the last month due to having a small bowel obstruction.
The doctors tell me there is no noticable obstruction and its just partial and wont operate unless its totally neccassary wich hasnt occured because it resolved itself after about a week both times.
I have had ct scans both times and it hasnt shown any noticable mass wich could be cancerous etc and the results are inconclusive.
Im just wondering if anybody else has had a similiar experience related to having esophageal cancer.I know they say this type of cancer doesnt really spread to this part of the body but im just curious if it could be related to affected lymph nodes,organs etc
and if so is there any further tests that can be done to determine if it is cancer related.
Dantheman

DanTheMan
Posts: 24
Joined: Feb 2012

Thankyou for you swift reply,i know i should not jump to conclusions and it might not be related so i really just want to know if it is a common thing and maybe if any what course of action i should enquire to the oncologist about.I do have a barium swallow test in two days and follow up with the doctor so it might help to shed some more light on whats causing this..:)
Thanks again william and best wishes
dantheman

cindyruggs's picture
cindyruggs
Posts: 26
Joined: Jan 2012

Dan,

My husband was DX stage IV in October, 2011. I would love to read your story in the about me section for hope and encouragement. You do not see too many stage IV that are at the two year mark. Would love to read how your journey has been?

Thanks,

Cindy

DanTheMan
Posts: 24
Joined: Feb 2012

Hey cindy,
Sorry to hear about your husbands diagnosis and i know its hard when the odds are stacked against you.I did write a blog not long ago so maybe it could give someone in a similiar position as myself some hope and encouragement to come to terms with having stage 4 esophageal Cancer.I only ever read doom and gloom and really to be honest i assumed thats way it was going to go.Here it is and i hope it makes sense because believe me not a lot does makes sense after being diagnosed.....

Hello everyone,

First of all i would like to say how deeply saddened i am to read some of the stories of peoples experiences with esophageal cancer,it really frustrates me that there isnt just some miracle cure for everyone...I guess everyone who experiences any type of cancer has there own story to tell,some positive,some negative...

Well for me it has been a positive one or should i say a positive outcome so far and i am really just writing this so maybe anybody in a similiar position can find the strength to try and make sense of it all.Im 36 and I was diagnosed 2 years ago now with stage 4 esophageal cancer and distant lymph node involvement,cannot operate,only one real shot at it with radiation and chemo.I could not eat or drink.Pretty bleak outcome right?Well so i thought:( Everything i read,every article,the doctors opinions,the statistics seemed to tell me i was F*%$$D.I honestly stopped living on the inside,just went numb to the whole world and everything in it.

I had a CT scan the other day and follow up oncologist appointment and guess what!2 years after treatment and Still no sign of cancer,well nothing of notice anyway.I was in the doctors for about 2 minutes and believe me there the type of appointments i like.My quality of life is pretty normal and sometimes i think to myself what was all the fuss about.On one hand im thinking"well ok im just lucky so far"and on the other im thinking"S&@T maybe im cured"

I dont know the answer,nobody does but i guess im living proof that this cancer can be beaten or at least can give it a good kick in the bum.I wish i had of read my own story 2 years ago and it would have saved me a lot of worry.:/I have read a few times on here about the statistic of 1 and wow that really makes a lot of sense now.I just wish everyone would have a positive result like myself and if i had anything to do with it i would make it so.

I hope in writing this i dont offend anyone that is not having such a positive result and beleive me i do know what your going through and my thoughts and prayers are with you all.

DantheManfromDownunder

Just never believe anything you read about what happened to tom,dick or harry or what the statistics say and blah blah blah....I personally found the easiest way to deal with it is just to take it day by day,week by week,year by year..I went travelling all last year on a shoestring budget,i went surfing with a j peg tube almost everyday..I just try to be as normal as possible.I sure as hell am not going to let it stop me from living as normal of life as possible because then its already beaten me...fight until the end i say and who knows the end could be further then anybody thinks..:)
Dantheman

cindyruggs's picture
cindyruggs
Posts: 26
Joined: Jan 2012

Dan,

I am sorry I missed your post with your story on it, I do not check this board very often. I am thrilled to read your story of life and living in the midst of this journey we are all on! My husband was diagnosed stage IV from the very beginning. The liver had too many lesions to count and was completely covered in cancer. He also had over 17 lymph nodes that showed signs of metastasis. He never had one symptom! Surgery was never an option. He underwent 15 rounds of radiation to stop the bleeding then chemo started. He has rarely missed a day of work through all of his treatments. He tolerates Chemo very well, with only fatigue and nausea as his main complaints. He has never had ONE problem swallowing or eating anything he wants. He lost 20 pounds but it was weight he need to lose :) so he looks great! Everyone that see's him and does not know say's how great he looks. Those that do know say, how can he be that sick, he looks great. Our last scans in April were NED so the oncologist cut his Chemo regimen some to a lower more maintenance dose. We travel, go out to dinner, and enjoy life in between treatments. As times we actually forget he has cancer because he seems so healthy and vibrant. We are praying this remission lasts a long time! We know all the grim statistics and the doctor has been brutally honest, but there are always miracles. Blessings to you, may you continue to do well.

Cindy

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