May 13, 2012 - 6:08 pm
I discovered I have CLL thru a routine exam. I imagine there are a lot of people who find out that way. After reading the many comments & messages shared on this website, I decided I would tell about my situation. I discovered that I am not nearly as informed about my circumstance as some others & I think I will ask a few more questions of my doctor, thanks to all of you.
Of course I had many tests just as all of you had. My CT Scan showed that I may have Tuberculosis. This put a delay on my Chemotherapy until we found out if the scaring on my lungs was indeed because of the TB. After a TB Gold test, I was told that I do have LATENT TB. It will become active as soon as my system gets weaker, either thru letting my CLL do it's thing or by having Chemo. The TB is curable, I just take a pill for 9 months, never miss even one day, and then I should be fine. The pill is called Isoniazid. The state will pay for the pill if I can't afford it. They do not want a contagious person exposing tons of people. The problem is, my doctor says my chemo can not wait 9 months. So, to shorten my story up, I start Chemotherapy on May 16th. Before I found out I had TB, my Chemo sessions were 3 hours the first time, then 8 hour for the next several times. Now I will do 2 one hour doses of chemo per month. I guess doing shorter doses of Chemo may not "turn my TB loose." Time will tell.
I'm not looking for any advice (altho it's appreciated), I have found plenty of very useful information right here thanks to all of you. I just didn't see anyone on here having a contagious disease along with CLL or any other type of Leukemia. I thought maybe I would add my information about my treatments incase someone else finds themselves in this situation. I will update any information that I figure out on my journey.
Thank you everyone for all your words of encouragement on here. I have found out diet and positive attitudes are very important too.