CSN Login
Members Online: 10

Just found out I have Kidney cancer

250xcfw's picture
250xcfw
Posts: 30
Joined: May 2012

I’m amazed how conflicting the information is for a disease so well known. I don’t have all the stats on the size and level. But I can tell you there going to remove the left kidney and a small bit of the right. It doesn’t look like it’s spread to any other organs. I guess I need to learn the terminology so I can have more intelligent conversations in the future.

Thanks
John

Texas_wedge's picture
Texas_wedge
Posts: 2807
Joined: Nov 2011

Sorry you've had to join us John, but welcome anyway to this very supportive club. It's good to hear that you don't seem to have any spread to other organs.

There are at least a couple of hundred different cancers and it's maybe an open question whether kidney cancer is one disease or many. Even if it's only one, it's very complicated and next to nothing is known for sure about it - there's a vast amount of information but that represents only a tiny fraction of what remains to be learnt and there are huge advances of knowledge going on on a daily basis.

You'll probably quickly pick up the basic lingo. Meanwhile, you can get a lot of help here as you prepare for your surgery and recovery so do put all the questions you want to here and you're sure to get useful replies.

littledarlin's picture
littledarlin
Posts: 102
Joined: Mar 2012

Sorry to hear the news. No need to worry about using the right terminology. I am learning more as I read more..I am pretty new here also..Just had my surgery on Monday. Ask anything you want and someone will respond with the answers or point you in the right direction. This is a very supportive group of people. We all help each other where we can.

Talk to you again soon..

littledarlin

250xcfw's picture
250xcfw
Posts: 30
Joined: May 2012

What factors help or hinder my outcome? I’m guessing you don’t get any concrete information until after surgery?
My Dr said I’m one of the lucky 5% that get growths on both kidneys. Has anyone here gone through this?
As with most people here my cancer was only found by luck. I don’t have any of the high risk factors and don’t have any symptoms that I know of. Are there symptoms I should be looking for or concerned about?
My concern isn’t dying but the affects it will have on my son who is only 9. I lost both parents at a younger age and wouldn’t wish that on anyone. I’m sure the same thoughts have gone through other parents minds, so how do you deal with it?

Sorry for all the drama and questions.
John

DDBurkhardt
Posts: 13
Joined: May 2012

I'm in the same situation as you are. Had an MRI for something totally unrelated and they found a 5.3cm on my left kidney. I'm scheduled to have my left kidney removed on May 22nd. I'm relatively new here also, but it really helps talking to other people in the same situation. The people here are very happy to help you get thru this and they are a wealth of information. When are you scheduled for surgery?

DD

DDBurkhardt
Posts: 13
Joined: May 2012

I had my surgery 9 days ago. I had my left kidney removed and the doctor told me the other day that I am completely cancer free. How long does it usually take to totally feel like yourself again. I'm still walking slow and still taking pain pills. I really don't have any energy to do anything. Is this normal? Should I give it another couple of weeks? I realize that everyone is different, but I'm worried that I'm not getting better fast enough.

Thanks

Deb

garym's picture
garym
Posts: 1651
Joined: Nov 2009

Hi Deb,

Most report a return to physical normalcy at around 6 weeks give or take and it sounds like you are about on schedule. At around the 2 week mark things seem to begin improving quickly and your need of meds should be subsiding. Walking and drinking plenty of water help speed the process along.

Mentally you may never feel exactly like yourself again, but in time you will settle in to a "new normal" where your perspective on life and what really matters has changed most likely for the better. Its been 2-1/2 years for me and I saw an old co-worker the other day whom I hadn't seen in 15 years or so. We talked for a bit and he said "I don't remember you being so happy before, what happened?", it is one of the good things that can come from all of this.

Hang in there,

Gary

DDBurkhardt
Posts: 13
Joined: May 2012

Hi Gary,

Thanks for offering some insight on how I'm supposed to feel. I know that family and friends only want the best for you, but sometimes they want to give you advice on something they know nothing about. I feel like I'm where I'm supposed to be physically, but I don't know if I'll ever feel the same mentally. You seem to be in a very good place and hopefully I'll feel that way before too long. I'm still scared that I'll end up w/renal cancer in my "good" kidney and I can't seem to shake that feeling. How long after your surgery did you begin to feel normal again?

Thanks

Deb

garym's picture
garym
Posts: 1651
Joined: Nov 2009

Hi Deb,

My return to "normal" was quite a bit different than most so its hard to put a time frame on it that will help you much. Prior to my dx and surgery I had known 7 people including my father-in-law that did not survive RCC which caused a bad bout of survivor's guilt. At around the time of my first follow-up scan (6 mos.) I returned here for support, connecting with other survivors and helping people that are new to all of this turned me around and got me headed in a positive direction, it took about a year for me all together.

I believe that all things happen for a reason and that all things work together for good, that's probably why the fear of it coming back did not hit me very hard, I never once asked why me or how did this happen. We are all wired differently and your return to "normal" will certainly be different than mine, but you will get there, I promise.

Good luck and Godspeed,

Gary

nyc_girl
Posts: 26
Joined: Apr 2012

Sorry you are having to deal with this. It all seems quite overwhelming at first.
I found out by chance in late November that i had a left kidney mass. I had an open partial nephrectomy in January. I am 43 with no risk factors. It turned out to be cancer (clear cell) stage 1, grade 3. Not the best, but not the worst either. You can find a lot of info about type, stage, and grade online. Like a lot of people here, i feel very lucky that my tumor was found early. I have recovered well from the surgery and I will need to get follow-up scans every 6 months.
I would recommend that you find a couple of the best kidney surgeons in your area and get more than 1 opinion.
A lot of people with kidney cancer need no further treatment after the surgery (just scans) so there is a lot of reason to be hopeful.
Wishing you well.

Texas_wedge's picture
Texas_wedge
Posts: 2807
Joined: Nov 2011

John, I can understand your present emotions. As an only child, I lost both my parents quite young (when still at university - 40-odd years ago). There's a number of factors on your side, such as being young and having no spread detected. You're correct in thinking that you won't have much more information until after your operation, when the pathology results become available.

Meanwhile, forget about symptoms and concentrate on preparing for the surgery. Get any physical jobs you're wanting to do out of the way because it will be a few weeks after surgery before you're up to doing much of a physically demanding nature.

Things that will affect your outcome include having a decent diet and being as fit as possible - that will have a big influence on how well and quickly you bounce back from the op. If you recover quickly that will make the whole experience easier for your Son. You sound well-balanced and composed but if you find yourself getting too uptight then some form of meditation and/or guided imagery will help to make life easier for you both, (so long as it doesn't dramatise the matter for your Family).

Your prognosis is probably a lot better than that of many who have come through it and all here will be wishing you well and keen to give you all the support we can.

garym's picture
garym
Posts: 1651
Joined: Nov 2009

Hi John,

You have come to the right place, I stumbled onto/into this club over 2 1/2 years ago now. Diet and exercise are key factors from now on, anything you can do prior to surgery will pay dividends during recovery, a 3 or 4 mile walk every day is enough to make a difference. Hydration will be important for the rest of your expected long life, 8 x 8oz glasses of water daily is a good rule of thumb, start today, you won't be sorry. The surgery and recovery aren't fun, but it is a small price to pay compared to most, soon after you will wonder what all the fuss was about.

Good luck and Godspeed,

Gary

250xcfw's picture
250xcfw
Posts: 30
Joined: May 2012

I don't know if I'm happy or sad to see more people responding to my posts. It just makes me realize how many people are dealing with this junk. But thank you for all the positive remarks and health tips.
I have always had an excellent diet, drink plenty of liquids,only eat meat(chicken,fish) 2-3 times per week and work out 5 days a week.
The one thing the Dr. said was I would have to quit my hobby of motocross and gp racing. My friend called today and asked what I’m going to do without racing, I told him I'm going to find a new hobby with more thrills that won’t kill my last kidney, what I don't know!! He said, Thank god you haven’t lost my sense of humor.

John

keong72's picture
keong72
Posts: 10
Joined: Jan 2012

John,I suggest u new hobby is riding mountain bike,,,,

foxhd's picture
foxhd
Posts: 1920
Joined: Oct 2011

I wouldn't give up my Harley even on recommendation. Motocross? not likely. My cancer center even has a commercial of people hang gliding. Bucket list? probably. Good idea? not likely. Actually had a nice 250 mile ride sunday.

Texas_wedge's picture
Texas_wedge
Posts: 2807
Joined: Nov 2011

keong72, we haven't heard from you for a while. Are you still taking lots of exercise and keeping your weight down?

How did the follow up visit to Singapore turn out? I hope it all goes well and your Family are happy about your health.

garym's picture
garym
Posts: 1651
Joined: Nov 2009

My doc suggested a kevlar kidney belt for protection when participating in less than desirable activities for a person with one kidney.

250xcfw's picture
250xcfw
Posts: 30
Joined: May 2012

I already mountain bike,I used to do street bikes but they get you in lots of trouble fast maybe I've matured and I do wear kidney belt when I ride.
I go in this morning to have my last CT scan, I hope everything is clear. That dye they pump into you makes me feel like poop.
Once again thanks for the support.
John

Smarty99's picture
Smarty99
Posts: 13
Joined: Jun 2012

Hi all,
I am so sorry to bother you since I don't have cancer, but I don't know who else to ask. I've been having other testing done for other things and I am currently awaiting biopsy results on those. Completely unrelated.
Here's my question: I've read that kidney cancer grows very slowly. So, if I just had a CT, then an Ultrasound to confirm the CT, why must I follow up with another Ultrasound again in 3 months? Would there really be any growth in that amount of time?
Thanks for your help! ;-)

Texas_wedge's picture
Texas_wedge
Posts: 2807
Joined: Nov 2011

I've had a tumour grow from invisible in December to 2.5 cm. by the end of February (and cut out 2 months ago) - unusually fast but it is possible.

Texas_wedge's picture
Texas_wedge
Posts: 2807
Joined: Nov 2011

I've had a tumour grow from invisible in December to 2.5 cm. by the end of February (and cut out 2 months ago) - unusually fast but it is possible.

Smarty99's picture
Smarty99
Posts: 13
Joined: Jun 2012

Thanks for your help Texas!
;-)

lbinmsp's picture
lbinmsp
Posts: 266
Joined: Jun 2006

OK - if I'm reading your post correctly - they found tumors in BOTH kidneys - resulting in a full nephrectomy on the left and a smaller tumor on the right resulting in a 'partial' of sorts there.
Wow! You do know how to 'make an entrance' don't you? It is good news that they haven't found it anywhere else. Besides continuing to see your surgeon and/or oncologist and receive regular, thorough followup, I think I'd recommend finding a good nephrologist sooner than later. I think I'd like one person whose only job was to keep that remaining kidney super healthy.

Keep doing your research - both online and here. Jot down every question you want answers to and keep an ongoing list. Take it to your doctor at every visit - and lastly, obtain your own copies of every scan you've had (or will have) along with every report. Include blood work results as well. You never know when you may want these things for future use. Also, they'll be a great jumping off point for yet MORE questions.

Everyone here is on your side - holding you up. Prayers always.

LizB

250xcfw's picture
250xcfw
Posts: 30
Joined: May 2012

LizB
I do plan on getting all my scans on CD, but I did think about blood work. The sad thing is I don't even know what questions to ask!
When I had my kidney function tested they said WOW way better than normal. So I hope it works to my favor.

John

lbinmsp's picture
lbinmsp
Posts: 266
Joined: Jun 2006

about your current kidney function!

As for questions -

how large are these tumors?

where are they located (upper pole / lower / etc.)

how long will I be in the hospital?

will I have a drain in and if so for how long

what's my incision(s) going to look like? (not vanity - just better to know before hand so seeing a big old incision doesn't shock you - if you indeed have one of those)?

how will my pain be managed in hospital / going home?

what followup schedule will I be on and what will that followup consist of (CT scans, chest x-rays, ultrasounds, etc.)?

These are just basic start-up questions. As you search this site and do other research, you'll find you have a ton more. As I said, write them down - take your list with you to each appointment - and if your doctor can't answer a question, ask him/her who might be able to.

We need to be our own advocates. Take nothing for granted. If an answer is given and it doesn't make sense to you - ask for a better explanation. I really believe that (good) doctors want their patients to be well informed.

Keep on keeping on!!!!

250xcfw's picture
250xcfw
Posts: 30
Joined: May 2012

What does the location of the tumor have to do with anything? Haven't heard this one yet?

Limelife50's picture
Limelife50
Posts: 411
Joined: Nov 2011

no John you are not alone,had a nephrectomy of my right kidnry 10/11/11 my tumor was 5cm and a grade 2,also last week i had a small tumor removed from my left kidney 1.4cm and was told i already had it, but because it was smaller 6 months ago it was overlooked.I have no evidence of the cancer anywhere else, but i have asked if i am stage 4 and have been told my cancer was more than likley unilateral which means cancer in both kidneys,problem is no one will give me this in writing.Right now i am in a holding pattern since i am still healling but once my life returns to normal i plan on seeking out a oncologist since from all my internet research i have learned that one of the places RCC will metastasize to is the other kidney and no John i am not trying to scare you i know you have enough on your plate already,more than likely our cancer is limited to our kidneys,but i think what everyone is trying to say is that we just to be on the safe side meaning we need to be aggressive in our follow ups,good luck John i am hoping for the best possible outcome for you,also get that pathology report.

250xcfw's picture
250xcfw
Posts: 30
Joined: May 2012

From the small amount of researcher I've and what my Dr told me was under 10% of all cases are duel and they may or may not be related.
Did you have tumor removed, frozen or cooked? Which is the best method?
How long did each of recoveries take?

John

Limelife50's picture
Limelife50
Posts: 411
Joined: Nov 2011

i think from all my research cryoablation has a higher success rate compared to radio frequency ablation which is the procedure i had.The reason i did RFA was because the hospital where all my records are does not perform cryoablation and i did not want to lose time trying to get everything transferred to another facillity,but RFA success rates are decent enough for smaller tumors,also the radiologist who performed the procedure informed me he has done RFA to tunors as large as 6cm with very succesfull results.

Limelife50's picture
Limelife50
Posts: 411
Joined: Nov 2011

for my nephrectomy i was out of work for 9 weeks but it took a good four months to get all my energy back,as far as the RFA ,I had it done last week and will be returning to work tommorow,still have a little pain but i am good eough to go.as far as the procedure you choose i hope choose not to do a partial on your only remaining kidney since you run a higher risk of kidney failure,also you lose more kidney tissue with a partial

Texas_wedge's picture
Texas_wedge
Posts: 2807
Joined: Nov 2011

John, in among the first-class advice Liz gave you above, she asked about location and you queried what that is about.

There are several factors. it could significantly affect the forms of treatment that are possible (e.g. the options Mike (Limelife50) was commenting on - surgical by partial nephrectomy v high energy or cryoablation methods).

It might mean your adrenal gland(s) could be left intact, if the tumours aren't at the top of your kidneys.

It will also affect the possibility of metastasis (spread) to other body parts, depending on whether the tumours have got into certain parts which make it more likely that cancer cells have got into your bloodstream.

Your docs will be sure to go into all of that with you in deciding on the best way to tackle it.

Limelife50's picture
Limelife50
Posts: 411
Joined: Nov 2011

no Texas the two procedures i had mentioned had more to do with the smaller tumor,but at the same time why not consider these treatments for larger tumors ,of course without taking any risks due to location.Iwas only floating some ideals for consideration .

250xcfw's picture
250xcfw
Posts: 30
Joined: May 2012

Double post

250xcfw's picture
250xcfw
Posts: 30
Joined: May 2012

I asked both my doctors about the different procedures and both agreed that the one kidney with the large growth would be a standard kidney removal. So the other kidney with the small growth I assumed would use cryo or rfa, but they agreed again this would also be a partial nephrectomy. So I asked why not one of the newer procedures? “ The removal of the infected piece of kidney is the safest and has the best results out of all the procedures”.
So is this true? Also they do all of the different procedures at the hospital and other experimental treatments. The latter surgery will be with the DaVinci if that makes a difference.

Also had my 3rd set of CT scans and everything looked clear again other than both kidneys.

John

Texas_wedge's picture
Texas_wedge
Posts: 2807
Joined: Nov 2011

That advice doesn't surprise me at all and seems consistent with all we think we know about this disease (these diseases!)

If they have all the options available there and their recommendation is for a partial with da Vinci I feel sure they will have given the matter due consideration and genuinely believe that's best for you. Assuming they have experience with the robot, I think it's great that they can do that for you.

I had a rad neph in December and a second major open 6 weeks ago for a new tumour. The situation is a bit different from yours since this was recurrence in the renal bed, not affecting my remaining kidney, but questions arose as to procedure. I asked about HIFU, cryo, RFA and other high energy techniques but was advised that the open surgical route was the best choice for me (though that may have been chiefly due to the location, very close to my spine, with too much risk of collateral damage).

Your 3rd set of clear CT scans sounds like great news. So, a successful robotic assisted partial should see you on the path back to the good life John. Best of luck with it.

Limelife50's picture
Limelife50
Posts: 411
Joined: Nov 2011

hi John just want to wish you the best outcome on your upcoming procedures,now let me share what both my urologist and radiologist both told me about my options when my second tumor was discovered.First off it was small only 1.4 cm so the thinking was to preserve as much kidney tissue as possible in the event i got more tumors in the future.Were their risks with the procedure i chose ,yes there was but at the same time i am thinking long term and the risks were minimal.The downside of a partial neph is that you lose more tissue but at the same time it is less risky than the choice i made but also at the same time i was told i would retain almost the same level of function if not the same as before.I never would try to inspire anyone as to what decisions to mak, my only agenda is to share my decisions i have made to maybe help people researching their own situation to come to their own conclusions.I also feel we need to educate ourselfs as much as possible concearning our conditions so as to be as strong of advocates as possible for our own health as much as we can,when it comes down to it its our bodies and our lives,good luck!!!!

Limelife50's picture
Limelife50
Posts: 411
Joined: Nov 2011

I sometimes am guilty of posting in a haste without reading what i have typed ,i noticed in my post titled recoveries posted may8th at 1:23 pm i was almost pushy in my opinions,that was wrong and i apologize,everyones situation is different and i should have known better than trying to advocate my decisions on other people,i will be much more carefull in the future, again i was wrong and i apologize

Texas_wedge's picture
Texas_wedge
Posts: 2807
Joined: Nov 2011

You're a well-established member of the team here now MIke and everyone knows you have the best of intentions so I doubt whether anyone will have been upset by what you said, but it was big of you to post your last message.

In your message before, you were dead right on the importance of taking a lead role in one's own health management - very important - and it looks as though John has taken that on board and is acting on it.

250xcfw's picture
250xcfw
Posts: 30
Joined: May 2012

I see no reason for apologizes. I've used alot of your information to help me do more research than I could have found on my own.
Keep giving out advice.

Thank you
John

250xcfw's picture
250xcfw
Posts: 30
Joined: May 2012

When I go in for my two separate surgeries which kidney should they do first? Small tumor or big tumor?

John

Texas_wedge's picture
Texas_wedge
Posts: 2807
Joined: Nov 2011

I imagine they'll be convinced and convincing in what they advise and I'd bet it will be big first, for a variety of reasons.

250xcfw's picture
250xcfw
Posts: 30
Joined: May 2012

Hopefully I'll have all my question answered and a date set to get this over with. I have alot of plans this summer and these surgeries are getting in the way of my summer. I'm trying to put a positive spin on this and use this time to spend with my son and take some time off work. My wife has me working like crazy trying to get all the heavy yard work done before I go in. I'd better go the pool needs cleaned and I need to dig a hole for a tree. I think her plan is to kill the cancer through working it to death.

John

250xcfw's picture
250xcfw
Posts: 30
Joined: May 2012

Surgery is scheduled for next Wednesday for the partial nepfrectomy ( less than 5% removal) first and 3 weeks later for the radical nepfrectomy on the second kidney. The reason they do the partial first is to make sure the kidney is working good before they remove the other.
I also found out why my kidney function was so good. It’s because I have 3 arteries for each kidney. That’s my story for today.

John

icemantoo's picture
icemantoo
Posts: 1554
Joined: Jan 2010

John,

You seem to be taking your diagnosis of having RCC in both kidneys remarkably well. Hopefully your partial next week will go well. If it does your nepherectomy to follow will be a piece of cake.

Icemantoo

Texas_wedge's picture
Texas_wedge
Posts: 2807
Joined: Nov 2011

John, as iceman says, you're handling this very well which is bound to help you recover more quickly.

Thanks for explaining the timing of the procedures. I can buy into the logic of the explanation to some extent although I would have guessed that they would have wanted to reduce the tumour burden by eliminating the large tumour first. You've been given a clear justification for doing it the other way round. I just wonder what they would plan to do if your better kidney wasn't performing well. I suppose they would defer doing the nephrectomy for the time being, to allow your more damaged kidney to keep sharing the load until the other one improved. The fact that such improvement can be achieved is cheering information.

Fortunately that's all a bit theoretical. You're up for it; you have the advantage of your exceptionally good renal blood supply; there is a very good success rate for partial nephrectomies; they're only taking a very small part of your better kidney - so you're going to do fine. It's still nearly a week to go but in case I don't get the chance to do so closer to time, I take the opportunity now to wish you success with the smaller op on Wednesday and the bigger one to follow.

Texas_wedge's picture
Texas_wedge
Posts: 2807
Joined: Nov 2011

[Duplicate posting - there doesn't seem to be a way of completely deleting a posting if you've unintentionally posted twice. Does anyone know better ? If so, please educate the rest of us.]

Sting853
Posts: 3
Joined: May 2012

I'm a first-time user so and I’m happy to be in what looks like a very caring group. I envy those of you who have already gone through already what I'm dreading right now. I hope you guys are still doing very well. I fully emphatize with those who have just been diagnosed and those who have experienced recurrence.

I'm 73 , just diagnosed with RCC on R kidney, 4.3 x 4.1 cm mass. From CT scan, lung x-ray, liver enzymes, blood test, etc, still apparently confined to R kidney. One June 14, I will have Laprascopic Partial Nephrectomy (Robotic) on lower part of R kidney. Adrenal glands, lymph nodes, veins will be spared.

My wife and I had already paid for an expensive Alaska Cruise last week of May. The doctor said we should go ahead with that; that it's not an emergency. We’re thankful for that but at the back of my mind I’m wondering whether one month is not enough time for some nasty cancer cells to go wandering. Any ideas on this?

On reason I'm scared is that in my 73 years, the only operation I've had was a 7 minute cataract surgery on my left eye. So I have been Googling everything--it answers many of my questions and settles me down but finding all that information, some truly scary, also freaks me out. I have vowed to stop it now that everything seems to be known and the big date is set.

Sometimes, as a Natural Born Worrier, I begin to worry ahead about recurrence or residual issues. I'm trying to tell myself just to take one step at a time, and not think at all about the aftermath.

I wish you all cancer-free lives ahead!

Sting

Texas_wedge's picture
Texas_wedge
Posts: 2807
Joined: Nov 2011

Your prognosis is pretty good but it's natural enough to be worried. The reassurance you've had - that the op doesn't need to spoil the trip - should help you to believe that it's not a crisis.

There's always the possibility of spread but with the modest sized tumour you have, its location, the non-involvement of adrenals and lymph nodes and the fact that it's fully contained mean that you'd be extremely unlucky if the next few weeks made any difference. In any case, there's nothing to be done about the possibility in the meantime so try not to worry TOO much.

Your Alaskan cruise is a blessing since it gives you something superb to look forward to and will help to take your mind off the op. It sounds as if you've enjoyed good health so you'll get over it easily if you take it easy for the first few weeks after your operation.

Have a great time in Alaska.

Sting853
Posts: 3
Joined: May 2012

You sound very knowledgeable, and your words are reassuring. Were your two surgeries on the same kidney? What was the first one, the rad neph, all about? How bad was the diagnosis? I'm wondering how old you are now and how that event affected your life.

But you sound like a guy who is in control--one worried less about himself and more about others. Something to emulate.

How are you doing now, after your surgery 6 weeks ago? I hope everything turned out well and that you are getting back to normal. God bless!

Texas_wedge's picture
Texas_wedge
Posts: 2807
Joined: Nov 2011

Well, Sting, I'm fairly new to this business but it has a way of focusing the mind and making you pick up some scraps of information as fast as you can, as we've both been doing.

As regards my ops, yes and no! The first was, like yours will be, on the right kidney with no lymph node or adrenal compromise, being at the bottom end. However, the tumour was 9 cm so it was complete removal, not partial. At CT, it was still contained but by the time of operation (5th Dec.) it had got right out, so the surgeon couldn't get clear margins. The pathology report showed stage 4 (the worst stage) and Fuhrman grade 4 (the worst grade) mostly sarcomatoid (the worst histology) and extensive necrosis (the worst condition) so, in short, not very cheerful reading. The more recent op was for a recurrence in the renal bed, near where my kidney had been, so it's labelled as metastatic RCC. A new tumour had grown from zero to 2.5 cm in a few months (it wasn't visible in December). Being that aggressive, my second follow-up CT scan in the next couple of months will be critical. If I considered the "survival calculators" to have any applicability to individual cases I wouldn't be expecting to see my 70th birthday in October. I don't and I shall.

I'm effectively completely back to normal - no meds, no pain, sleep well, eat well, pretty active (played 2 rounds of golf on Wednesday and could have played a third if I'd wanted to). However, we don't yet know what might be in store but I'll cross that bridge when I come to it.

You asked how it's affected my life. Well the only major effect is that I now spend a hell of a lot of time reading, researching and writing about cancer and related topics! I'm rationalising my neglect of other matters with the thought that I need to be as well briefed as possible in advance of my upcoming results in order to ensure I can make the best decisions and move smoothly into the next phase, whatever that shall be.

I envy you the Alaskan cruise. Mind you it's a little like Alaska here in Scotland just at the moment! Have a great trip and good experiences to think about while you're in hospital.

Sting853
Posts: 3
Joined: May 2012

You story is an inspiration to weaker people like me. I will try my best to enjoy my Alaska cruise. I have a feeling you are off to a decade or more of life. I'll post again after my June op.

Subscribe with RSS
About Cancer Society

The content on this site is for informational purposes only. It is not a substitute for professional medical advice. Do not use this information to diagnose or treat a health problem or disease without consulting with a qualified healthcare provider. Please consult your healthcare provider with any questions or concerns you may have regarding your condition. Use of this online service is subject to the disclaimer and the terms and conditions.

Copyright 2000-2014 © Cancer Survivors Network