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What were your very early symptoms of vocal cord cancer?

Stephanie0284
Posts: 2
Joined: May 2012

Hello, I'm a 27 yo female and was diagnosed almost 10 years ago with the high risk Hpv during a gynological exam. I have read about Hpv increasing risk for oral cancer and it has me terrified. Around Christmas I got laryngitis and after I got better I still couldn't make high pitched sounds. It got a little better over a few months and I thought I had just damaged my cords by trying to talk over everyone at Christmas. To this day, if I try to make a weeeee sound when playing with my 7 month old son, my voice goes away. I also notice a weird feeling when I sing in the car. Kind of like a straining. It feels like it is more on the right side. I also feel like I have to clear my throat a lot but not because it's scratchy. It feels more like when you have a sinus drip and the back of your throat gets coated with mucous. I have not had any lumps in my neck or overall hoarseness. I was wondering if any of you experienced anything like that in you early stages? I have a little baby and all u keep thinking about is that I have cancer and I won't see him grow up. I have read a lot of your posts, and oddly, you have made the possibility much less scary. You all are an inspiration!!

longtermsurvivor's picture
longtermsurvivor
Posts: 1836
Joined: Mar 2010

Generally speaking, it is better to be proactive than to try to match a list of possible symptoms to what you currently have. You will scare yourself to death that way. Although the odds favor a benign cause of your symptoms (most people who get various types of vocal cord dysfunction do not have cancer), it is within the realm of possible that you have a problem. Because of this you should seek the help of someone qualified to properly diagnose and treat you. For purposes of your current set of symptoms, that would be an ENT doctor. If you have one in mind, just make an appointment, if not, get your GP to make a referral. The sooner you do this, the sooner your mind will be put to rest about the symptoms you have.

Best to you.

pat

phrannie51's picture
phrannie51
Posts: 3851
Joined: Mar 2012

Go to an ENT and get checked out mainly to put your mind at ease...there are many things that can happen to vocal cords...polyps, strain...etc........other than cancer...

My mom had laryngeal cancer, she was hoarse for many weeks....months...like a frog in her throat...she was also a long term smoker, tho quit years before her cancer...and she was in her 60's.

Get yourself checked out so you can rest easy.

p

Mrs. Sarge
Posts: 202
Joined: Apr 2012

Stephanie, as the others have said, go get checked ASAP! I am 66, used my vocal cords alot with singing, praying in church. I've always had a low voice but noticed it getting hoarse and harder to get out the sounds. I've always heard that singers can get polyps so as soon as I could I got to an ENT. He verified with a "scope" that I did indeed have polyps....but in the surgery, where he could see better, he also saw a small spindel cell carcinoma. I have never smoked or drank but I did have reflux, which evidently was the only thing it was attributed to. You probably don't have cancer but maybe polyps but only an ENT can tell you for sure. Don't be scared just get it checked! Best to you!

aliceniki
Posts: 6
Joined: Apr 2011

I have spindrl cells in my thyroid I am so scared I was gold Dr don't know much about this cell can you tell me what you k ow please

aliceniki
Posts: 6
Joined: Apr 2011

Hi I have spidelcells in my thyroid do scared can any one help with this? I was told that. O one knows muc h about this cell can anyone help with any info please. I will pray for all

Ingrid K's picture
Ingrid K
Posts: 811
Joined: Mar 2011

Aliceniki,

I don't know much about spindel cell disease, but I do know that it is very rare. Hopefully someone with more knowledge will chime in, but in the meantime, try and check out the Thyroid discussion boards. They may have more info.

wish you the best

Mrs. Sarge
Posts: 202
Joined: Apr 2012

I was told that Spindel Cell is just a derivative of the common squamous cell carcinoma. It IS more rare, and it IS more agressive, usually. The treatment is that same, as I understand it. Don't be scared, be proactive and get it treated!! Best to you!

longtermsurvivor's picture
longtermsurvivor
Posts: 1836
Joined: Mar 2010

what has happened, exactly? Is this a biopsy diagnosis? What other tests have been done? What is the plan? The question you asked is not really answerable. Spindle cells on a thyroid biopsy are not diagnostic. They can result from a number of different processes, some of which are pretty innocent. There are a number of questions that you likely have, that should have been already answered by your doctor. Tell us what he said. thanks.

pat

Grandmax4's picture
Grandmax4
Posts: 594
Joined: Dec 2011

Even tho, I didn't want to believe cancer had happened to me, and even tho, my family doctor told me 3 times,3 visits that she saw nothing...I knew the feeling of something stuck in my throat, was not a normal feeling...now 8 months later, the cancer is gone, i'm healing on schudule, getting use to my new normal, so very gratful I went with my instinct ( and a little nudge from God ) and saw a ENT. Please get checked~~

denistd's picture
denistd
Posts: 516
Joined: Apr 2009

I had larynx cancer in 2009, it started as a sore throat and my voice would crack a little and then slowly it started going away, went to the ENT and he said I had a swelling on my false vocal cord and not to worry about it. The voice turned into a squeak and I went to a major cancer institute about 30 miles from where I live. The doc said "it's cancer" and scheduled me a for biopsy that confirmed it as SSC of the larynx situated on my false vocal cord. Went through 35 rads and 3 blasts of cisplatin and here I am. And as you may see from my picture I made a living with my voice and nimble fingers. Had a polyp removed from that exact spot in 1996, that was deemed to be an inverted papilloma.

ToBeGolden's picture
ToBeGolden
Posts: 697
Joined: Aug 2010

I went to an ENT, a voice specialist, due to hoarseness. She said she could tell by listening to me that I was straining my voice. So I started on voice lessons. My voice got better for awhile. But at the six month mark, I became so hoarse that a person across the room could not understand me.

I was diagnosed with cancer and treated with radiation only. I had multiple scans and biopsies, all negative. Then I found it extremely hard to breathe on exertion. When scoped by the ENT, I had a large tumor that was cutting off my air supply. I had an urgent trachostomy.

After the biopsy confirmed the return of the cancer, I had a laryngectomy, which is a permanent removal of the vocal cords. I also underwent a second series of radiation and chemo. The treatment was over last February.

It is sad for me to admit: I knew I had cancer (or was certain that something was very wrong) before the medical tests confirmed the diagnosis.

I am learning esophageal speech. I swallow air and burp to talk. This is not an exact description, but you get the point. There are other ways to regain speech..

I've been through a lot, but I'm still kicking. The diagnosis of cancer is not the end but the start. Even the fear of the diagnosis can be a start. Do all you can to stay healthy. Eat a balanced diet. Exercise. Enjoy your baby. I'm sure you do. Rick.

denistd's picture
denistd
Posts: 516
Joined: Apr 2009

Hi Rick, see you on LL now and then. we do not see too many laryngectomees on this forum, glad to hear from you. Denis

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