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My Story of Cervical Cancer, hope it helps someone.

SmplyChel
Posts: 9
Joined: Apr 2012

I'm Chel,41 year old femaie and hope my story can help someone going through the same thing, Here's my story:

In early summer 2011 I started having some right side back pain, I had visited my family doctor and some test were done and it was decided it was a bladder / kidney infection. I was given antibiotics and sent on ny way. My periods in August 2011 started getting weird, they were very heavy and would last a long time or short and I'd have 2 a mnth somtimes. I also started passing huge clots. I talked to friends and my mom about it and it seemed normal, like maybe I was starting the change.

I was dating someone and hadn't been with anyone in 7 years sexually and the first time I slept with my boyfriend I bled durring and after, I again just thought it was because I hadn't been with anyone in a long time. But it happened everytime and my periods got heavier and the clots got huge, during this time I still had the right side back pain. Finally I decided I better do a little bit more and find out whats going on.

My family doctor sent me to a gyno. He did a pap smear and several other blood tests in December 2011. He also ordered a transvaginal ultrasound. My papsmear came back abnormal and doctor ordered a coloposcopy, the transvaginal ultrasound showed a cyst on a ovary but he wasn't concerned about it, he said its the type that come and go, and I knew from history I had them when I was in my teens. The doctor told me the pathologist said just from the papsmear he was sure it was cancer and it if wasn't it was the worst case he had seen, I had the Colposcopy Jan 9, 2012. On 1/13/12 I was told I had Invasive Squamous Cell Carcinoma. The biospy they took was all cancer, I remember bleeding so bad they werent sure they could get it stopped, they used this mustard coffee ground substance for my cervix, it stopped the bleeding, but was painful the next few days.

The gyno sent me to an Oncologist, she is wonderful. I saw her at the end of January 2012. She's always been so positive that we can treat this. At this point I was told it was 2B. She sent me to get a PetScan. Early Feb 2012. The scan showed a little bit more advanced and now I was told it was 3b. Tumor was on my ureter to my right kidney, why I had been having the back pain. I also had 2 very small lymph nodes that showed some signs of cancer, one more than the other. She immediatly said we have to save your kidney, I had to have stent put in to open up the ureter. The immediatly stopped my back pain.

My oncologist ordered 6 rounds of Chemo, 28 rounds of external radiation and 5 internal radiations. I have just finished my last treatment April 24th of internal. Now I'm waiting for everything to settle and I'll see the oncologist and radiologist at the end of May. I didnt loose my hair with the chemo, the chemo I got is something that helps the radiation, it's not the strong kind. It made me sick, I lost my taste buds, but found a few things I could eat, like peanut butter and jelly and eggs and toast. External radiation was fairly easy the first few weeks, then with that and the chemo I became very tired. Then the internal radiation started, my radiologist puts you under general, just like surgery, they radiation takes 20 mins but he said it's so uncomfortable for women that its easier to be put under. This part of the treatment I think is the hardest and the worst. I'm a big baby and a worry wart and I'm still not sure how I made it thought but I did. My faith in God and family and friends have helped so much. I could not have made it as I did without my mom, she's been there every step. After my treatment Tuesday 4/24 while I was in recovery, they told my mom that they couldn't see the tumor anymore. My mom texted and called everyone she knew while I was in recovery, me, I'm still in shock and I'm hoping that my scans I'll get in the coming weeks show that the cancer is gone.

i know i've fogotten details and I hope this helps someone, please feel free to ask me questions and If I can can be of help let me know, this journey is tuff and scary and the one thing I want to share is to help others, I was scared going into this and realized there wasn't alot of "people" that I knew that went through this to help me. I'm still recovering, still very tired, but everyday I get better.

ccfighter
Posts: 474
Joined: Jan 2012

Thank you for sharing.

Smplychel,
What a battle. Your story is truly inspiring and I pray that the disease is gone and gone forever. I too am fighting the cervical cancer and it is so nice to be able to communicate with others who have been through this. Thank you. Best wishes.

spotmany's picture
spotmany
Posts: 7
Joined: Apr 2012

You have shared a very heroic story. I know you will inspire many others and still more will be there to inspire you every step of the way into your survivorship. I believe it is important to stay focused on survivors. If they can do it, so can you!

I met two amazing cervical cancer survivors this weekend. Both were diagnosed while in their 30's. Today they are thriving while giving back to our community of survivorship.

check out my blog post:(you might need to copy & paste in your browser): http://spotmany.wordpress.com/2012/04/29/cervical-cancer-survivors/

Are you as impressed by Tina and Alyssa as I am?

katiekatjacob
Posts: 8
Joined: Apr 2012

Wow. What a pair of impressive women! The silver lining to any cancer story has to be the stories of strength we hear about from patients and survivors. That's why I'm honored to be a member of the cancer community. I wish you all similar strength and hope!

Mel68
Posts: 6
Joined: Apr 2012

Hi there and sorry you are going through this. I was wondering about your history. Have you had abnormal paps in the past? Have you had any prior cervical problems or treatments? Where you having regular paps? I keep reading that cervical cancer takes many years to develop, passing through the various CIN stages, but this sounds like it appeared out of the blue.
I wish you all the best for your recovery.

SmplyChel
Posts: 9
Joined: Apr 2012

Unfortunately I did not have regular pap smears. I'm sure had I had them yearly it would have been caught in an earlier stage. That's something I've dealt with mentally, and I'm sure will struggle with. I've heard and read so many stories where women went yearly and it just showed up. My best friend in 2009 went every year for her papsmear. In 2009 she started irregular bleeding, she went to the gyno and had stage 2B. Just 8 months after her yearly. My doctors have told me not to focus on not having went for my regular checkups, but to focus on I'm here now and it can be cured. I do feel like my story could help that one woman. I was afraid of everything, that's why I never went. My fear outweighed the risk.
Now what can I be afraid of....? Cancer has to be the worst disease ever and the treatments are something I would never wish on anyone..,.My smit sleeve is being removed by my oncologist Monday the 7th. I pray she also sees the tumor is gone as the radiologist did.

I'm thankful I'm here, my daughter's prom is this weekend. She in a play and doing a skit for SADD, I'm so thankful God has given me these days.

ccfighter
Posts: 474
Joined: Jan 2012

I am unfortunately one of those rare cases where I had all my yearly paps and was still diagnosed at stage 2 A only weeks after a normal pap. I have an adenocarcinoma subtype called adenosquamous and these apparently have a harder time showing up on paps. I have three beautiful children, had an ob/gyn who I had been with for years. Even when the abnormal bleeding started, the paps still showed normal. Went on a lot longer than it should have. Almost through treatments now. One more chemo to go.

SmplyChel
Posts: 9
Joined: Apr 2012

Keep fighting. You'll be in my prayers.

Mel68
Posts: 6
Joined: Apr 2012

The reason I asked about your history is that I've just had my first pap in four years, and am about to be biopsied for possible VIN/vulval cancer on Friday. Still awaiting the results of the pap and HPV test. Needless to say, I am freaking out and cursing myself for not dealing with this sooner.

ccfighter
Posts: 474
Joined: Jan 2012

Mel68,
Don't kick yourself too hard. The new recommendation for women who have had several years of normal paps is to only have them done every three years. I don't agree with the recommendation, but im sure the insurance companies will. Sometimes these things happen despite the screening tests. Good luck. Let us know how it turns out.

Mel68
Posts: 6
Joined: Apr 2012

Will do. I'm 44 and have never had an abnormal pap, so I guess I got a little complacent ...

jonesdeb112352
Posts: 3
Joined: May 2012

Chel:
Glad to hear you are done with your treatments and doing well. I went through the same type of treatments. I was diagnosed in Sept. 2011 with Stage 2B and it has changed my life forever. I am so phobic of anything medical, thank goodness for the chemo port, I don't know if I would have made it without that! I finished treatments in November of 2011 and had a PetScan in February. My numbers are way down and my doctor is optimistic. I had a discharge and some spotting until about a month ago which always worried me but from what they tell me it was normal. I tolerated the treatments fairly well. I was sick to my stomach alot and found foods that I could eat, but not many. I am suffering some side affects. The radiation has affected my muscles and nerves especially in my left groin and leg area. I'm doing physcial therapy and it seems to be helping. I've done lots of reading about the side effects and am hoping that I will recover. I spend alot of time worrying about the future. I am 59 years old and will fight like hell to beat this. I have lots of things to accomplish yet and even though I have dark days and pity parties try to stay as optimistic as possible. I returned to work not quite 3 months after the treatments ended. I have days when I wish I could retire, but know that work keeps me busy and my mind off from the disease. I have a good cancer care team, my doctor is good, but his staff is even better with support and good will. I hope to hear from you, I think we have lots in common.

Regards,
Deb

jonesdeb112352
Posts: 3
Joined: May 2012

Chel:
Glad to hear you are done with your treatments and doing well. I went through the same type of treatments. I was diagnosed in Sept. 2011 with Stage 2B and it has changed my life forever. I am so phobic of anything medical, thank goodness for the chemo port, I don't know if I would have made it without that! I finished treatments in November of 2011 and had a PetScan in February. My numbers are way down and my doctor is optimistic. I had a discharge and some spotting until about a month ago which always worried me but from what they tell me it was normal. I tolerated the treatments fairly well. I was sick to my stomach alot and found foods that I could eat, but not many. I am suffering some side affects. The radiation has affected my muscles and nerves especially in my left groin and leg area. I'm doing physcial therapy and it seems to be helping. I've done lots of reading about the side effects and am hoping that I will recover. I spend alot of time worrying about the future. I am 59 years old and will fight like hell to beat this. I have lots of things to accomplish yet and even though I have dark days and pity parties try to stay as optimistic as possible. I returned to work not quite 3 months after the treatments ended. I have days when I wish I could retire, but know that work keeps me busy and my mind off from the disease. I have a good cancer care team, my doctor is good, but his staff is even better with support and good will. I hope to hear from you, I think we have lots in common.

Regards,
Deb

SmplyChel
Posts: 9
Joined: Apr 2012

deb, it does sound like we have a lot in common. I still don't have the strength I use too. My last treatment was April 24th. But I'm doing a lot more. My doctor said my tumor was 98% gone when she looked a couple weeks ago. She said that we would wait 8 weeks before a new PetScan. I go back to work June 1st. I just hope everything is gone, I worry about the lymphnodes (2) that showed small signs of Cancer too. You keep fighting, I do everyday!

ronmybaby
Posts: 20
Joined: Sep 2012

I am going to start up chemo and radiation end of this month or next month. I see my Dr. on the 26th with my first visit since my hystrectomy/tumor in the cervix was take all out. It doesn't sound like you had a hystrectomy but I did. So I am very scared about not having anything female in there to help "protect" me my organs like bladder/rectum from the internal radiation. Didn't it burn? I know from my female gyro doc. she said I will have both external/and internal radiation probably swapping it off to give my interal area rest. But the external radiation I read online does cause damage to the organs because the internal is very direct and exact not like the external is. I am so worried I will cause myself MORE problems than I have. I worry alot too. :)

I do have my husband to help me. But no one else. He will have to go off and work jobs away from me for afew weeks at a time....I will use a cab to go to and from the clinc. Your lucky to have your mom there to help you. I'm 55 yrs old. Never had kids.

Any good words will help me. thanks so much.
Kitty from GA.

ccfighter
Posts: 474
Joined: Jan 2012

It's not so bad. I had a radical hysterectomy, chemo, chemo/ radiation, internal radiation, more chemo. Everything still works. No lasting side effects on bladder or bowel. Life is good. You'll do fine. Take care.

ronmybaby
Posts: 20
Joined: Sep 2012

I had the radical hysterectomy 15 days ago. How long was it from yours till you actually started up on the chemo/radiation? Did the doctor wait very long before he started it up? Doctor took part of the vagina with the rest of it in the hysterectomy (along with a cancerous tumor).

ccfighter
Posts: 474
Joined: Jan 2012

I started chemo about 2 1/2 -3 weeks after my hysterectomy. I started chemo/radiation about 3 months after surgery. They need to wait until you are healed before they can start radiation. Usually 8-12 weeks after surgery.

sue42
Posts: 1
Joined: Sep 2012

Hello All,

I wish much success for those who are fighters and survivors of these cancers.
What I'm confused about is this: people dying from cervical cancers. From reading,
I've gathered that if you can just get a hysterectomy, then you'll be on your way to
being cured. So is it perhaps the stage that the cancer is found? So a stage 4 diagnosis
can not be helped even with a hysterectomy, chemo, and radiation?

Thanks, I hate to sound ignorant. Through my research on the internet, I read that
there are many survivors of this type of cancer; so there is HOPE! I just knew it was
a for sure death sentence, until I started researching.

Keep up the fight! I'm waiting for results of a recent pap smear. I have a history of
abnormal paps, and I'm worried. But I don't have any symptoms of cervical cancer except
an annoying pain in my pelvis. I believe with my faith I will get through anything.

weezjr
Posts: 4
Joined: Sep 2012

I had stage IIB cc that was not found on a pap smear. I had adenocarcinoma that was almost 19 years ago. Since it was a glandular process, they said thats why it was not found on a pap.

I had hysterectomy and radiation. If you are interested in further reading, you can read my whole story of signs and symptoms of cancer plus other cancer survivor stories and information on cervical cancer such as symptoms, treatment options, coping, etc.

feel free to read more at aboutcervicalcancer.com

Noggin
Posts: 4
Joined: Sep 2012

Thank-you for posting your story, my wife Denisa has gone through some of the same things as you and the other women on this board. Her story starts like this.

Pap showed some abnormal cells so she was told they needed to do a LEEP. Leep was done and we were told that all was fine and nothing to worry about. Some spotting was noticed by her and off we went back to doc, colo was done 2 months after LEEP and was told that now we need to get biopsy done. OBGYN Onc came in during biopsy and said it was cancer and we could not wait for results from biopsy to start PET scans.

PET scan showed Stage IIb with lymph nodes up to kidneys positive for cancer.

Six rounds of chemo with cysplatin, six weeks of external radiation and six treatments of internal radiation. Just completed treatments on DEC 2nd 2012. CT scan and visual exam showed no sign of cancer remaining. Her radiation Onc told her about a study in Australia where they give 2 more rounds of chemo after all treatments have been completed. Her OBGYN Onc was not aware of study and looked into it and gave her the option if she wanted to do the 2 more treatments, it is with a different chemo drug than the cysplatin. We are going to do it to give the best chance possible to beat this thing.

I admire all of you ladies that are fighting this and will pray for each and every one of you. Thank-you again for posting your stories. I will update this when we get our first post treatment scan

Noggin
Posts: 4
Joined: Sep 2012

The chemo that we will try is Taxol and Carboplatin, this is a study that is ongoing in Australia. Denisa did not qualify for the study due to the fact that she had a partial hysterectomy back in 2005. When we get our next scan I will update again, but all signs show that my beautiful wife is kicking cancer's butt!!!!!!!

gtcequinerescue
Posts: 1
Joined: Feb 2013

Chel

I have the same symptoms to A T, I went to the dr's last wens. and was told i have abnormal pap..we r waiting on tax paperwork as we dont have insurance, my husband is self-employed, Im so scared i cant sleep i cry all the time and feel angry, i go back next week....i just turned 43 and feel my life just came to a stop..I have a quine rescue and normally im out with all my horses ALL day and cant or dont want to at this point, i feel so selfish, i barrel race and have nowant to..i need a friend i dont know anybody who has been through this

cindy

SmplyChel
Posts: 9
Joined: Apr 2012

It's encouraging to read so many responses. Next month will be 12 months for me since treatment stopped. I will have a petscan to make sure it's still gone in April. My last two cervical exams showed no cancer.  I've been back to work since June of last year. I'm not back to 100% yet. I've been very anemic and been through some more test. The radiation damaged my colon and was causing me lots of stomach problems and bleeding issues. I had a colonoscopy in Feb 2013, the doctor said the radiation damaged capillaries and when they grew back they grew back at the surface and just bled constantly. Doctor said he fixed about 80% of them. I've notice the bleeding stop immediatly and my stomach issues whent away as well. I'm still anemic but hopefully that just take sometime to work it self out.

One thing I'm having some issues with is I'm still so tired. My legs hurt from my hips down, all the time. Walking is an issue for me. I'm overweight and have been my whole life, but they weren't like this before the cancer. I wasn't tired like this before either. It's really all I can do to get through the day. Even at night my legs ache. I talked to my family doctor and the oncologist and they really don't think it's from the treatment. However the PA at the Oncologist office told me she was a radiation nurse for years and it doesn't suprise her. They can't stop damage of the good stuff and she's seen lots of nerve damage. Any one else having this issue? I hope and pray that I can get back to before the cancer. Getting through one day without pain would be great too. But I'm not ungreatful for where I'am. I'm happy I beat this, and so glad to be alive and still able to work.

Those of you just starting your journey, you can get through it. The path may look ruff and unbeatable but stand strong and beat it! I still look back and can't believe I did all that I did to get me where I'am today. My family, friends and personal relationship with God are what got me through it.

ccfighter
Posts: 474
Joined: Jan 2012

Thanks for the update Smplychel.  I hope the pet scan keeps you all clear and that your pain and fatigue continue to improve and disappera all together.  Keep us updated.  We really need to keep hearing success stories!  Hugs.

adri1493
Posts: 4
Joined: Oct 2012

Hi SmplyChel!

First off, congrats on being cancer free as of today and hoping n praying that your next petscan comes out clean as well.

I was diagnosed with cervical cancer in Aug 2012. After getting over the initial shock, I found this site and it helped me a lot knowing I was not alone.  I’m 40 years old and had gone thru the same symptoms as you did.  I, too, had not been with someone for a long time (over 8 years for me) and for the same reasons (as you did), I went to check myself out.  I was also a big baby when it came to doctors and as well, didn’t get regular paps.  I had a similar diagnosis staged at 2a and same 6 rounds of chemo/ 28 ext radiations.  I did have interstitial brachytherapy (the one with the needles left in me).  My mom (the strongest most loving woman I know) was also the one helping me out through all of this.  So after going thru some really brave stories on this board, I ran into your initial post on 04/29/2012… and it really helped me TREMENDOUSLY.  When I read it, it was like I was living a parallel life with you.  

I felt so connected to your story that I even saved it on my iphone referring back to it on occasions (usually my bad days) because it was written in such a positive manner that it would remind me: “this too shall pass”.  I had so many questions I wanted to ask you at the time but as you and others may know, you’re just overwhelmed with Dr apptmts, chemo sessions, daily radiations, etc etc that at least with me, when you do have the time, I just wanted to be left alone.  I did read a lot of other stories on this site and there are so many courageous women on here but I just didn’t know how to ask, comment or respond to you or any of them without bursting into tears (because of my own problems).

However, my last chemo/external radiation was on 12/10/2012; my last brachy was 01/16/2013 and I have been cancer free as of 02/13/2013! My energy level is still not what it used to be but I’m working on that.  I just wanted you to know Chel that of all of the posts I searched through, yours was the one I kept referring back to thru my treatment process and for that reason, I felt compelled to finally write my first post when I saw you back on the board and tell you that from the bottom of my heart, I THANK YOU FOR YOUR BEAUTIFUL STORY!  Your positive attitude then and even now, has made me go thru this with a smile and I wanted you to know that.  The subject title was perfect… “My Story of Cervical Cancer, hope it helps someone”… well let me tell you, IT HELPED ME A WHOLE LOT!

I hope that your energy level continues to improve and that your pains soon go away.  I didn’t share any details of my physical symptoms because this was more of a thank you letter to you Chel.  But if I can be of any help to any women out there, I will be more than happy to share my story with any of you. I am kinda of a private person and for that reason too, I never asked or commented on this site however, I've changed in many many ways and if I can help one person just like Chel helped me, then I will be more than willing to share my experiences.  It was a rough road but thanks to the women on this site like SmplyChel, I have maintained positive thru this ordeal.   

SmplyChel
Posts: 9
Joined: Apr 2012

You don't know how much your post means to me and to read it today of all days. I've been having a bad week, stressful at work, still hurting. I cried today and thought to myself why? I was having a poor me pitty party and I was the only one invited. So here I sat surfing and thought I'd check the boards. I dont' come here as much as I should but I come when I need it. Today I needed it. I personally want to thank you for your post at just the right time. How amazing, weird and funny that our stories are so similar. I'm so thankful my story did help someone. That makes me smile. It's a tough road for sure. I still look back and think about what I did and think, how did I do all that? It makes me think I can do alot more now without being so afraid. I'm so happy to hear your cancer is GONE too, that's wonderful news. I wonder what the needles were like? I hated the internal radiations, even though they put me under, I woke up in such intense pain it was unbelievable. I was taking 2 percocets about every 3 hours...the whole month of April last year. I thank god that was available for me.  I hope you continue to get stronger everyday and keep fighting everyday. We beat this nasty stuff and now I know it's to help other people because of you. I now know there was a reason. I thank you for the bottom of my heart for your heartfelt post. It's something I'll treasure always. Keep in touch and I'll do the same.

Michele

I'm a Survivor!

SmplyChel
Posts: 9
Joined: Apr 2012

You don't know how much your post means to me and to read it today of all days. I've been having a bad week, stressful at work, still hurting. I cried today and thought to myself why? I was having a poor me pitty party and I was the only one invited. So here I sat surfing and thought I'd check the boards. I dont' come here as much as I should but I come when I need it. Today I needed it. I personally want to thank you for your post at just the right time. How amazing, weird and funny that our stories are so similar. I'm so thankful my story did help someone. That makes me smile. It's a tough road for sure. I still look back and think about what I did and think, how did I do all that? It makes me think I can do alot more now without being so afraid. I'm so happy to hear your cancer is GONE too, that's wonderful news. I wonder what the needles were like? I hated the internal radiations, even though they put me under, I woke up in such intense pain it was unbelievable. I was taking 2 percocets about every 3 hours...the whole month of April last year. I thank god that was available for me.  I hope you continue to get stronger everyday and keep fighting everyday. We beat this nasty stuff and now I know it's to help other people because of you. I now know there was a reason. I thank you for the bottom of my heart for your heartfelt post. It's something I'll treasure always. Keep in touch and I'll do the same.

Michele

I'm a Survivor!

Lorinda32's picture
Lorinda32
Posts: 1
Joined: Apr 2013

It has been such a relief to read these posts and see that there are people that can relate to the way I have felt!

I was diagnosed Stage 2a cervical cancer in March of 2012, had a radical hysterectomy with bilateral lymphadenectomy. I was told before the surgery that it should take care of the problem, but afterwards he was concerned with the amount of cancer cells they found outside of the initial tumor so I ended up having to do 28 external and 2 internal radiation treatments. I luckily did not have to any chemo. For me, the radiation was fairly easy, at least physically, until the end and the diarrhea kicked in (and still hasn't really went away 6 months post treatment). Emotionally, it was horrible. I have three young children and my mind was on major rollercoaster ride imagining every worst case scenario imaginable. Which Im sure is typical! I have swelling on the left side of the groin area when I am on my feet for any amount of time that gets very uncomfortable. I too also have the stiffness and achiness through my hips, lower back and the top parts of my legs, and also my right thigh is still pretty numb and tingly. I was told this is from the surgery and so much work having to be done around the nerves in that area. And this may sound strange, but my bladder is very achy. I can't hold my pee for any amount of time, it will hurt so bad I want to cry. I was told this is a side effect from the radiation, that it can make the muscles lose their elasticity. Which is the same thing causing the achiness and stiffness in my hips, legs and back. And then of course there is the matter of since part of the vagina was removed, sex will never be quite the same....  Most days, I wake up just thankful to be alive and I pray that I can live to see my children grow up and have children of their own. But I'm not gonna lie, there are a few that I feel angry, and above all.... worried. I don't want to live in fear that every little ache and pain is cancer coming back. I push past the fear though. I make myself live my life like I will be here forever. Not too long after my diagnosis, I enrolled in college. I had been putting it off, saying I would wait until my kids were older to finish my degree, but I definitely realized, we aren't promised tomorrow! I can honestly say, that although this has not necessarily been a positive experience, it has certainly helped me put things in perspective. Ya'lls stories have made me feel a little more normal than I have for the last year. I can relate to everything that you say, and I can put into words what my experience has been like and know that more than likely you will understand me also! Its hard to talk about it to other people, they tend to look at you like you are either already dying or like it isn't a big deal at all. When the fact of the matter is, besides the birth of my children, this is the hugest thing I have ever gone through! BUT I vowed to not let my life revolve around cancer, and I haven't. I have continued my regular every day life of working, college, soccer, church.... my treatments were just another appointment to throw in there. I hope that this has in some way helped someone else, I know it was wonderful for me to read these posts. I pray that each and every one of you have many healthy, peaceful, CANCER FREE years ahead of you!

GoodVibe123's picture
GoodVibe123
Posts: 1
Joined: Apr 2013

  Thanks for sharing your story. I also have undergone the same treatments that you have. Here in Canada, I was diagnosed as a Stage 3b because the cancer had gone to my lymph nodes. I had been sick for two years and was told by others that I was going through the changes of life also. I went through 3 different specialists here before I found the one who kind of listened to me. I agreed to let him go in to cauterize my uterine lining, even though I wasn't convinced it was a solution because it was a symptom, and a symptom is our bodies way of communicating to us. I wanted him to go in and see for himself that something was wrong. He found it. I was releived I wasn't crazy. That was March 10th, 2010 and I am still here kicking today. Some days I really struggle with energy levels and fatigue. But mornings are my peak time of day. I saw that you are going through some pain and wondered if you are open to eastern medical practises like acupuncture and reiki. They might be able to help you with pain management. They are the same tools I used for pain management to get through my brachytherapy. I was awake for my 5 brachy treatments. Anyway, I hope you are feeling better these days and am so glad that you shared your story. Take great care,

mommiesadie2
Posts: 1
Joined: Apr 2013

I am so grateful I found this, I to am shocked and scared out of my mind. I'm 34 been with only one man in 14 years. back in 2010 I had a pap done and they told me they had found cancer cell in my cervixs and uterus. I was send for colospy and was told only a few cystic was found nothing major just will need another pap in 3 years. I have suffer from what the docs said is IBS for 4 years now. I have major pain durning my periods and for maybe 3 days after. I'm always constapated and low back pain.This past Thursday I was in so much pain I went to the ER. They did a pap and found 3 nodules (no clue what this means never had a doc say that) so I am freaking out. He did say yes I do have HPV and need a new round of test. I am like most I care more about my kids and family than my own health. I don't go to doctors unless Im in enough pain or dying :/ I knew they found cancer cells back in 2010 but my doctor said no big deal it's normal you will be fine. Now I'm scared not sure what to think. Cysit I'm use to,they hurt so bad when they pop but nodules and the way the doc kept saying this is a big deal you should see a doctor at least ever year. So I'm not sure what to think but your stories gives me hope it will all be fine. <3

DianaG13M
Posts: 1
Joined: Aug 2013

Im 16 yrs old i had a baby 6 mnths ago n i got the depo shot 3 months ago . Since then i skipped a period and afterwards i started getting it almost the whole month now i have a lot of pelvic pain and lower back pain do you think i should go yo the dr. Or what should i do you think there is a probability of me having some kind of cancer please help ne im only 16 n scared. I need help 

MellieB63
Posts: 1
Joined: May 2013

Thank you so much for sharing your story.  I was wondering if you could tell me more about your experience after being diagnosed with cervical cancer?  How has your life changed after being diagnosed and going trhough treatment?

Warm Regards

Mel

monicarose86
Posts: 1
Joined: Sep 2013

I just want to say thank you for sharing your story with everyone. I also wanted to share my story. It's not quite cancer, but I am very scared that, that is going to be the next step in my story.

I had never had an abnormal pap until just over six months ago. When my pap came back abnormal my doctor did a biopsy and said it was low grade changes and we would monitor it, and to come back for a follow up in 6 months. Well my follow up was just about two weeks ago. When I went for the biopsy the doctor said it usually goes away by itself and not to worry. So, at my 6 month follow up, I was expecting everything to be fine. Then I get a phone call a week later, from my doctor, saying that it has gotten worse not better. She said, what she could tell from the pap, is that I was in stage 2, and that stage 4 in cancer. She said I need to come back in for another biopsy, to be sure that I am at stage 2. Well, she called me back on Tuesday saying that I am at high grade changes, and she recommends having the cells removed. I have to say that I have been so scared, I am only 27, just got married in July, and thinking about starting a family someday soon. I have also had other health issues going on in my life in the last couple of years. Like a tumor that took over my left ovary and was the size of a grapefruit. They had to remove the ovary and the tumor, thankfully it came back benign. Then I had a nodule in my breast that they did a biopsy on, and they want to monitor that as well for every six months. Now this too...... I feel like it never ends. I try to tell myself that there is someone out there that has it worse and to not feel so bad for myself. But it's hard. I have had so many sleepless nights the last couple of weeks. I feel like I'm walking in a daze each day. Does it get better? Am I being stupid for feeling this way?

 

Rebecca 25
Posts: 1
Joined: Sep 2015

Monica, You have every right to be afraid.  Cancer is the most terrifying word in the English language for me.  1 1/2 years ago I started feeling tired.  I also started bleeding very heavy, I was just starting menopause, so I thought it was that or else I thought maybe I needed a D & C.  Its been several years since I had one.  The bleeding got very bad all at once and my boyfriend took me to the hospitol  ER.  I was literally bleeding to death.  I was admitted and the next day tests were run.  I had not been to the doctor in nearly twenty years.  Shame on me, but I am an RN and I just always took care of myself.  It had been ten years since I had a Pap Smear.  Well the bleeding was caused by a very large tumor, they said about the size of a grapefruit.  They were afraid to operate on it, as they thought it would again start bleeding.  I was told I had cancer.  I started radiation treatments two weeks later.  This has been a nightmare, it has lasted since one year ago in April.  April 1, 2014.  The doctors have given me all they can do for me.  I quit all treatment one year ago today.  I am now trying all types of nutritional therapy.  I am doing better since my radiation ended.  But I was burned very bad from the radiation.  I lost one kidney, and I have a nephrostomy tube in the other kidney.  The external radiation was not that bad, but the internal radiation.  I would never attempt that again.  It was the worst pain in my life.  Ten times worse than having my babies.  That is when I stopped treatments is when they attempted to insert twenty needles up through my vagina.  They were to stay in place five days while I received internal radiation.  I could only tolerate the pain for one day.  It was just awful.  I have been back at home for the last year.  I don't know how much the cancer has grown.  I take baking soda three times a day to keep my uring alkaline.  I also eat aspargus twice daily.  I have a doctor that comes once a month to my home to check on me.  I have gained forty pounds.  The doctor keeps telling me that I am doing so good, they can't believe it.  I think positive thinking and nutritional therapy can do wonderful things.  I will keep up a good fight till the end, who knows there might be a miracle out there for us all!  Only good thoughts and well wishes to us all. Rebecca

tondelea
Posts: 7
Joined: Sep 2013

really scared so glad u shared ur story i have stage 2b cervical cancer could not be removed through radical histo it is on my walls so i must start chemo and radiation really scared when u were put to sleep for the internal radatiion was it painful im a big baby too never thought i would be the one with cancer my mon had throat cancer 6 years ago she is in remission i took her to every treatment it was so hard now its me really need someone to talk to who has this same problem

tondelea
Posts: 7
Joined: Sep 2013

really scared so glad u shared ur story i have stage 2b cervical cancer could not be removed through radical histo it is on my walls so i must start chemo and radiation really scared when u were put to sleep for the internal radatiion was it painful im a big baby too never thought i would be the one with cancer my mon had throat cancer 6 years ago she is in remission i took her to every treatment it was so hard now its me really need someone to talk to who has this same problem

tondelea
Posts: 7
Joined: Sep 2013

really scared so glad u shared ur story i have stage 2b cervical cancer could not be removed through radical histo it is on my walls so i must start chemo and radiation really scared when u were put to sleep for the internal radatiion was it painful im a big baby too never thought i would be the one with cancer my mon had throat cancer 6 years ago she is in remission i took her to every treatment it was so hard now its me really need someone to talk to who has this same problem

ccfighter
Posts: 474
Joined: Jan 2012

Tondelea,

im sorry you are going through this.  I know that it is scary But you will be ok.  I was diagnosed with 2a cervical cancer in 2011 and had a radical hysterectomy, chemo and radiation.  It is a long road but doable.  It was not as bad as I had imagined it to be.  I made it through treatments plus a recurrence and am feeling good today.  You will make it through too.  Hugs and healing thoughts for you.  Let me know if you have any more questions or just want to talk.  We are here for you.

kwest001
Posts: 1
Joined: Aug 2015

How was the radical hysterectomy to deal with andhHow are you doing? Thanks

ccfighter
Posts: 474
Joined: Jan 2012

I'm doing well.  The radical hysterectomy hurt more then I anticipated, but pain meds kept things under control and things improved tremendously at two weeks.  Pain meds and anesthesia causes constipation so that was one one the more difficult and unanticipated issues.  Today all is well on that front.  Are you scheduled for a hysterectomy?

juliam
Posts: 1
Joined: Jan 2015

Hi my mom was diagnosed with squamous cell carcinoma of the ovaries stage 2c we are very scared and are wondering how are you doing after treatment I hope you are now cancer free would you be willing to call me and tell me a little more about ur cancer if so please let me know and I'll give u my number if not can you tell me on here thank u

Nanato3
Posts: 1
Joined: Sep 2015

Thank you Chel for sharing your story.  I pray you are doing well.  My daughter's last pap smear came back abnormal and blood tests showed high creatinine levels in her Kidneys. She had a biopsy and she was notified yesterday that they said it was positive and she is now being sent for another biopsy to her obtain a larger piece of her Cervix.  They wouldn't tell her what positive means until she went back into their office.  Do you know if this means Cancer?  I need to be prepared if it is Cervical Cancer.  I, as her Mother, am scared to death.  She's my only child and my world.  She's a mother to 3 children, aged 4, 7 and 14.  Did your Kidneys show high creatinine levels?  If so, did the Doctors say this was normal with Cervical Cancer?  She is so scared and I need to know how to comfort her now and how to be her source of strength if the outcome of the 2nd biopsy does diagnose her with Cancer.  Thank you for your time.

ccfighter
Posts: 474
Joined: Jan 2012

Nanato3,

cheyl hasn't posted here in two years so you may not get a response from her.  I assume she is well and has moved on in her life.  I am sorry that your daughter is dealing with a lot of unknowns, and I certainly hope she will not be diagnosed with cancer.  Her results may have been positive for HPV or dysplasia, not necessarily cancer.  I know you are worried but take a deep breath and believe in your daughters health.  Positive energy is a godsend.  Find it and spread it as much as you can.  Let her know how you are feeling.  Offer to help and comfort.  Things will be ok.  Hugs.

harinidhara
Posts: 1
Joined: Nov 2015

I really glad by reading yours inspired story of cancer survivor. My mother has been diagnosed as cervical cancer 3b. She has single kidney. Up to now she has been gone to 2 chemotheraphies and 28 radiations. How many still left are unknown to us. What I like to know is, she is sufferring from anus pain and burning sensation. at once she couldnt tolerate the pain. She had little constipation, to overcome this she is taking cremaffin regularly. But still the problem is not solving. The doctors are not suggesting anything about this. Can u please advice me what to do.

cherlyn_d's picture
cherlyn_d
Posts: 1
Joined: Jun 2014

Omg...Finally someone who has gone through a lot of what I have. Not that I wish it on anyone. Thank you for sharing your story. Here is mine. I have always had stomach problems, ulcers and stress related issues. So in 2010 the pain was almost everyday and getting worse. I thought it was constipation. Then one day in 2011 I stood up and there was blood running down to my ankles. I called my friend who was 58 yrs  old and she said it's normal and I'm just going through the change.I bled atleast 3 days a week lightly for months before that incident until I finally had a pap done May of 2013. That very day I was told I have cervical cancer. Its as large as a flat football. I started chemo and radiation treatments immediately. 5Chemos. 74 radiation and 4internal graduations. Omg. They were the worst. My last treatment was November of 2014. I can't get a straight answer from any of my 4 Drs. as to what's next. The cancer is smaller . Now it is the size of a grapefruit. I'm scared. I don't really talk to anyone about it. No one wants to hear that anyway. Ooh! I didn't lose my hair either. Thank you for letting me vent. Best wishes to you. And I'm sending prayers. Cherlyn

SmplyChel
Posts: 9
Joined: Apr 2012

Hi Everyone, I just wanted to give an update. Today is 4 years from my 1st chemo treatment. I'm still cancer free, 4 year checkup coming up in March. I did end up losing my right kidney function. Seems the damage the tumor did to it from blocking it was to much to bounce back from. I'm doing well though. I've never been as good as I was since before the Cancer, my body has changed and I have a lot more aches and pains then I use too. My doctors tell me it's not from the Cancer or the treatment, I'm sure not all of it is, but I'm sure some of it is. I've never been the same since. We're all different and our bodies all react differently. My legs bother me still, they ache, they swell, this never happened before the treatments. The radiation was the worst for me. I won't lie, it hurt like $#$$#. Not during the treatments but several weeks into it, the internal radiation was the worst. I remember crying several times because using the bathroom was so difficult. It burned bad down there. The days I had Chemo were difficult because I had to sit in a chair that wasn't very comfortable, pillows helped but laying down was what helped the most. That area is so sensitive. Once I even tried to talk my doctor into skipping the those treatments..lol In the long run I'm glad I didn't. My hair never did grow back down there either. I'm not complaining..lol  I've lost several people close to me in the past couple years from some sort of cancer. It's such an ugly disease. You all keep fighting the fight. You can get through anything.  The road may be ruff, but reach out to your friends and family and pray. God has got me through all of my struggles and continues to carry me every day. I'm living and still working. My kids are in college, and succeeding in life. Daily struggles just mean I'm still alive. I'm very happy for that. God Bless all of you still fighting.

 

ccfighter
Posts: 474
Joined: Jan 2012

I am so glad to hear you are doing well.  Congratulations on NED.  We love that around here.  Hugs.

Julie_Sedeno
Posts: 1
Joined: Apr 2016

Hi,

I'm 23 Years Old and I've been diagnosed with Cervical Cancer. I don't understand how this happened... I've been told to join groups where I can talk to someone that is going through the same to make me feel better but I'm not ready. I go online alot sometimes I end up a little more relieved sometimes I end up very scared for my future. I'm scared all the time - I found this and I feel comfortable to speak I don't know why. Maybe because it's just me typing what I feel instead of talking and then choking on my own words because I burst out crying after I say- "I've been diagnosed with cervical cancer" I have a 4 Year old boy and I'm scared for his future because I'm the only one that provides for him. His father is in jail for his own mistakes... I feel like the whole world is coming down on me at the speed of 100 mph. A little about myself - I've been fighting depression for 6 years now since my 6 year old brother passed away and was finally improving. I had lost alot of weight to the point where the doc though I was doing it on purpose like throwing up on purpose- never have I done that. I have ALWAYS have problems with my appetite and throwing up for no reason. I kinda learn how to deal with it... I dranked alot of alcahol after my brother passed and 11 months later my dad did too due to the accident injuries. But then stopped after I found out that I had not miscarried my baby boy like the doctors had been telling for 5 months- Yes 5 months. My son was born Aug 28, 2011 and the problems continued I ended up with anemia I could not find anything to help me keep food down so I started smoking marijuana. It helped alot - depression wise, my appetite, I ate alot more and everything this year seem to be going great. I was becoming me again if that makes any sense then one day I noticed I was having heavy dark brown discharge and back pain as well as spotting when I wasn't even on my period. So I scheduled an appt with my gyn for check up but the day of my appt my period had started so it was possible to get a pap smear done that day- I explain that I though I might have a UTI 
(never had one) but I googled what I was feeling and it said that can be the reason I remeber reading that it could be signs of cancer but when ever I would read that part I though to myself - nooooo that's not me too crazy. Long story short she said she didn't think it was UTI but more like a bacteria called vaginitis so gave me pills and was on my way home. Came back 7 days later for f/u and to get pap smear all the sympthoms stopped expect the bleading. She didn't even fully finish the pap smear when she got up quickly - her face expression still stays in my mind. She used medical words I quite didn't understand but when she mentioned Cancer and how she needed to do a biopsy right there and then because she could see something growing like a "coliflor" I froze. She did it and I felt this horrible pain - I cried and cried. She explained she would have my results within 24-48 hours and that she was sorry but that she was highly suspicious that it's cancer. I went home feeling lost. 6 Days later I went back and April 14, 2016 with a close friend of mine to get the results and my nightmare began. I was diagnosed with cervical cancer and referred out to UIC. These past weeks have been hell I don't know what stage is this thing on. What I was told that unfortunely it seems like having any more children will no longer be a possibility I'm heart broken I didn't expect to have any more kids like tomorrow but for that to no longer even be an option; I'm so sad. He mentioned surgery did an exam and then came back and said that it doesn't seem to be a possibility the tumor seems to be "this big" (he showed me with his hand). I have no idea what I will face and I'm scared. I mean I'm paranoid to even get a vaccine - to go to the dentist. Hospitals are just not my happy place. I have anxiety at times- I don't know what to do to feel better. 

EZLiving66's picture
EZLiving66
Posts: 920
Joined: Oct 2015

Hello Julie - I can understand how scared you are but this is not a death sentence.  Have you met with a gynecologist/oncologist?  Sometimes if the tumor is large, they will recommend chemo or radiation to shrink the tumor before they can operate.  You need to find out any information you can.  Get copies of your pathology reports - get a first and then a second opinion.  All the ladies on this board (I'm from the uterine cancer board) have been through everything you're going through.  We're here for you....you're just so young - the same age of our oldest granddaughter (adopted daughter).

Love,

Eldri

ccfighter
Posts: 474
Joined: Jan 2012

Julie,

im so sorry that you have had this diagnosis.  I know it's hard to wrap your head around it all.  I was diagnosed with stage 2 cervical cancer in 2011, when I was 32.  I have three beautiful kids that were my reason to keep fighting.  You can do this.  Let us know if you have any questions or just want to vent.  We are here.  Hugs.

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