Apr 29, 2012 - 7:47 pm
I received the news on Friday that I am NED. This is fabulous news after 6 chemos, a blood infection, two allergic reactions, a port and Picc line infection as well as a Lynch Syndrome diagnosis.
I am trying soooo hard to be content and happy, but I am already worried about a recurrence. My tumor was large, surgically staged 2 but lymph nodes glowed after surgery. So who knows, could be 3c. My oncologist is optimistic that nodes glowed due to recovery. My cancer was also grade 3. Cancer had invade 1.7 of 1.8 cm of uterine all, it was so close to being really, really bad for me. All of these are huge risk factors for recurrence.
I'm just wondering if anyone has any advice on how to deal with the fear. I look at my boys and I am so thankful for each day, but I still can't help but want a whole bunch of days.
Also, I am meeting with a radiation oncologist soon. Any advice on radiation with my grade/stage? I am at a high risk for colon cancer as well, so worry about organ damage from radiation. I've read that it doesn't really help overall survival. I just don't know...
I hope everyone is doing well,