Apr 28, 2012 - 8:57 pm
I am new to this website and a fairly new rectal cancer, permanent ostomy,just finished treatment person! I am very frustrated by all the side effects and wonder how long it will take to get better or even go away at all!!! I had pre surgical simultaneous chemo/radiation---UG! and then major surgery and then did 8 of the 12 Folfox regimen. I was great--okay not great, but pain wise better when on chemo because they gave me steroids. Now that I don't have that everything in my rear hurts again and I have swelling from lack of abdominal lymph nodes. But I have been told by a nutritionist that it could be from such low levels of protein in my blood. Today I have wierd shooting pains everywhere and boy do my feet tingle and legs feel like dead weight. YES---I am so thankful to be alive and be done, but this is so frustrating!! I did just finish about 8 weeks ago and maybe I expect too much. The onc Dr. said it would take up to a year to heal from the neuropathy, but I have talked to others who still have it 3 yrs down the road. I feel like I am ranting---Sorry! Can anyone give me any encouragement here???? Okay--GO! Thanks!