Apr 22, 2012 - 9:37 am
My name is Barbara and I have been on this site approx 2 years. Many of you know me especially Sherri, William and Loretta , Paul61 , Sandy 1943, Tina B, Cindy Collins and a few others.
So many people went easy on us as I did not really want to know the real truth about this vicious cancer. AND IT IS VICIOUS. Our surgeon thought they had got it all and Vince was feeling good. So good that we went on a 3 week, 6,000 mile round trip motorcycle trip from Georgia to Cape Breton Island in Canada touring the country of Canada along the way. He did just fine.
Vince went along pretty good for a year with minor problems but in May of 2010 the cancer started to rear its ugly head again. He was losing weight, got food stuck in his throat, the whole 9 yards. BUT he had a CLEAR PET SCAN. How was this possible???
By Sept 2010 he was diagnosed terminal, had 4 rounds of chemo that brought this once strong man to his knees and was gone on Feb 23, 2011.
The reason I am writing this is because I really want you all to know to NEVER be complacient with this cancer. I know you are not but until you are really in the clear, PLEASE PLEASE PLEASE keep an eye on it. If the drs tell you to watch and wait. DON'T . This may save your life.
I am so saddened when I hear some of the stories about drs telling patients to wait for a scan or hang on for a few months to see what happens. By the time Vince 's recurred it was ALL THRU HIS BODY. He lost 100 pounds and could not even get out of bed. My beautiful husband died because of EC and I really don't want this to happen to any of you.
I only know of 2 really long term surviviors. By this I mean almost 10 years. That is our own William on this site and Bart Frazzitta, from fighec.org. He heads the Esophageal Cancer Education Foundation. Both of these men have dedicated their lives to help save other EC patients as they have survived this beast. I do believe they have both done so much good in helping others.
Sherri and I both lost our husbands to this Beast and I know so many other widows. It is a sad place to be so Please go to the best Drs, try and get the best care, and don't let your guard down.
I read your posts and I hope that someday this site does not have to be here as they have found a cure.
Know that I really really care.