I just found this Board, and am hoping to learn from all of you as I venture along this journey. After 2 weeks of testing, a port-a-cath insertion, etc I began treatment on Friday the 13th with carboplatin and alimta. The weekend was pretty unremarkable except for inactive nausea and fatigue, but the "metal mouth" I had been warned about came on.
Yesterday was just so hard, cramping and extreme bowel problems (never thought I would post something like that), exhaustion, nausea and developing mouth sores. Called the oncologists' office and was reasured all this is normal.....am on an every 3 week treatment with instructions to remain inside the 2nd week due to dropping blood counts.
Am hoping someone can share about getting down enough fluids, about how to best handle the overwhelming fatigue, and how to add in all the food and liquids one needs to make it work with enough calories and fluids? Seems all I do is eat and drink!
Thank you for letting me join your group. I look forward to learning a great deal.