Apr 15, 2012 - 12:33 am
I was diagnosed with Stage IIA (bulky) Hodgkins in 1999 at age 19. Completed 12 weeks of Standford V Chemo and 20 treatments of mantle field radiation to the chest and neck. My thyroid failed immediately and I have been on meds for that for almost 12 years. I've had a few side effects such as heart palpatations/fluttering, chest pain, neuropathy in fingers.
I was always told about the risks of secondary cancers such as leukemia and breast cancer. Seven years post radiation I began getting yearly mammograms and MRIs. I was also told the radiation could effect my heart. My doc wants me to start getting a stress test every few years too. Luckily I've already had one as a baseline.
Every year I went back for check ups at the hospital where I was treated and then almost four years ago I moved to Florida. The first year I flew back for my scans and got the whole work up. The second year in FL my new doc gave me the Mammogram and MRI my original oncologist had recommended. However year three (last year) he refused and said he did not agree with getting them b/c of the false positives, more radiation risks, etc. I was not happy and he really didn't seem to know anything about me even though I saw him the year prior anyway. Right then I decided I wasn't going back in 2012.
So here I am in 2012, almost 12 years out. A lump has been found in my left breast on my MRI. I had an ultrasound to confirm. It's 9mm so at least it's small. I'm scheduled for a biopsy Monday morning via MRI. I have a lumpectomy scheduled for Wednesday morning. If the results are benign we will proceed. If they are malignant I believe we will cancel the surgery and discuss what options are.
Anyone else out there have this similar situation? Do treatments ever call for more chemo? Tamoxifin? There are so many different types of breast cancer it's making my head spin. I am just trying to understand all the options for if it's cancer. I'm 32 now and have no children yet.