CSN Login
Members Online: 13

Getting an auto stem cell transplant in few weeks and would really appreciate some feedback

coachmike
Posts: 147
Joined: Oct 2011

Hi

Im mike (34 years old) and have been battling diffuse large b cell lymphoma for about 8 months. Did four rounds of R EPOCH and 5 rounds of Hyper C VAD. Great outcome, 98.5% of the cancer is gone. One lymphnode is still showing signs of cancer. After speaking to my doctors we have agreed to a Auto Stem Cell transplant. I have become very familiar with the actul process of the procdure and that doesnt seem to really bother me to much.

I am more interested in hearing about the recovery experiences and time frame afterwards from others who have experienced this type of procedure. Would welcome any and all feedback from others. Im very optimistic but would like to hear some personal stories and not statistics from doctors who sound like they are reading out of a book.

Thanks again

jimwins's picture
jimwins
Posts: 2064
Joined: Aug 2011

I also had Diffuse Large B Cell Lymphoma and received R-EPOCH (6 rounds).
Thankfully, I'm in remission so far so I don't have experience with stem cell
transplant. There are several on this board who do and I'm sure they will
chime in here soon.

Just read your post and wanted you to know we're listening :).
Good luck to you!

Hugs and positive thoughts,

Jim
DX: DLBL 4/2011, Chemo completed 10/2011, currently in remission. :)
Members are sharing recipes!:
Recipe Sharing Project

coachmike
Posts: 147
Joined: Oct 2011

thank you Jim...i am fortunate to have a great support group here at home. However its great to form new groups of suppport

dixiegirl's picture
dixiegirl
Posts: 1043
Joined: Apr 2006

I had an autologous transplant last summer. Recovery is slow and energy is still not consistent. I had the hardest time at home for 2 months. It about drove me nuts not to be able to do gardening....wasn't allowed around dirt for 6 months.

Just rest as much as you can. Watch out for germs and be very careful while your cell count is low.

If you have questions, I'll be happy to help. Thanks

Beth

allmost60's picture
allmost60
Posts: 3172
Joined: Jul 2010

Hi Mike,
Just want you to know that you will be in my prayers for a successful transplant. Haven't had any experience with the procedure, so can't help there. Best wishes and good luck. Let us know how it goes for you. Sue (FNHL-2-3A-6/10)

diazr1's picture
diazr1
Posts: 101
Joined: Mar 2012

While in there they say your expected stay is 21-35 days. From my experience take in as many "Ensure" or "boost" meal replacements if you are unable to eat, if you are then have at it complete your meals.

That is the only advice I can give so you can be home with your family faster

coachmike
Posts: 147
Joined: Oct 2011

Well I am bout two half weeks out before the auto transplant and im having the typical emotional rollercoasters. Some days im raging with optimism and others not so much. Come to know that this comes with a battle like this. I know that mental positivity is key to recovery and I try very hard to remember that. I have to beleive that this procedure will work and I can get back to enjoying the life I was brought here to live. Thank you everyone for your prayers and well wishes.

jimwins's picture
jimwins
Posts: 2064
Joined: Aug 2011

Hey Mike,

I know this is anxiety producing - to say the least.

Know we're here for you and if possible, please keep in touch with
us while you're at "Camp Stem Cell" :) or anytime for that matter.

The rollercoaster sucks and you don't even get cotton candy ;).

Ginormous hugs,

Jim

coachmike
Posts: 147
Joined: Oct 2011

Thanks Jim...its so nice to have support out there. I have a huge support group here at home but thats something that you cant have enough of. Im in the hospital now doing a round of RICE and then in a week ill be doing my harvesting of stem cells. I go in for the transplant on May 28th.

Im not too worried bout the transplant its that 100 days of life changing time frame that really seems to weigh heavily. I am such an active person and this something that I am adjusting too, but I know I can get through it...just may not be a happy camper at times lol.

trustinJesus
Posts: 49
Joined: Oct 2011

My dad went in on April 11 (his Birthday) for his transplant and was in the hospital for 22 days. He gets tired easily. His numbers are still low. He has a realy bad rash right now. I'm nervous its the cancer causing the rash. My dad also has diffuse large b cell. He had r chop and rice before the transplant. Don't listen to the Doctors statistics. My dad's doctor was already talking about doing the next transplant on the day he went in with this one. Very frustrating. It will be a month before my dad has a scan to see if it worked. Ill be praying for you.

Subscribe with RSS
About Cancer Society

The content on this site is for informational purposes only. It is not a substitute for professional medical advice. Do not use this information to diagnose or treat a health problem or disease without consulting with a qualified healthcare provider. Please consult your healthcare provider with any questions or concerns you may have regarding your condition. Use of this online service is subject to the disclaimer and the terms and conditions.

Copyright 2000-2014 © Cancer Survivors Network