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Primary Mediastinal Diffuse Large B-Cell Lymphoma + R-EPOCH

cure4nhl
Posts: 1
Joined: Apr 2012

I have a family member who was diagnosed with Primary Mediastinal Diffuse Large B-Cell Lymphoma. He completed his first two treatments of R-EPOCH, and had a PET scan right before the 3rd treatment. The mass has shrunk significantly, but it was not completely dead, as we had hoped. There was still a small amount of "glow" (the number they gave us was "4") on the PET scan. I am wondering if anyone else had this same result and what the suggested treatment was after given these results.

Thank you for your expertise!
P

jimwins's picture
jimwins
Posts: 2085
Joined: Aug 2011

Welcome to the site. You'll find wonderfully supportive folks here.

I finished R-EPOCH treatment in Oct 2011 for Diffuse Large B Cell Lymphoma.
I was told the normal treatment was 6 cycles, possibly 8 if needed.
I had a pet scan after cycle 4 and it showed no evidence of activity
at that time. We did complete the final two cycles and so far so good.
I go back for my next checkup and CT scan early May 2012.

My primary was in the small intestine and messentery area - diagnosed
stage 2. One thing to note is my treatment was interrupted after
the first cycle to do surgery (removed part of small intestine) so the
second cycle started later than originally planned.

This type of lymphoma is very treatable and actually considered curable.
Know there is hope.

Hugs and positive thoughts,

Jim
DX: DLBL 4/2011, Chemo completed 10/2011, currently in remission. :)
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vinny59's picture
vinny59
Posts: 1030
Joined: Nov 2006

Welcome P, I had to go through 8 treatments, and I still have a slight activity of 2.5, it's great news that your family member is responding to treatment.

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