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Some prayers for my friend, please

Double Whammy's picture
Double Whammy
Posts: 2325
Joined: Jun 2010

My good friend was dx'd with Stage 3 something UPSC less than a year ago. She has been on some treatment constantly and has had continued progression. She's switching from Topotocan to Doxil - started yesterday - because there is more progression. I don't know where, it's not important. She's pretty sick, has been hospitalized with C diff, has pneumonia, and abdominal pain which they think is cancer related. Lots of not very good things going on. CARIS testing shows Doxil should help and her health care provider was able to get it.

Please send some strong prayers, good mojo, and anything else you've got out here to California.

Thanks
Suzanne

Ro10's picture
Ro10
Posts: 1462
Joined: Jan 2009

So sorry to hear about your friend. Sorry for her continuous progression. I am surprised she can get doxil as a new patient, but so glad she can get to. I sure hope it makes her more comfortable. I will pray for peace and comfort for her.

Ro10's picture
Ro10
Posts: 1462
Joined: Jan 2009

Duplicate entry, sorry.

debrajo's picture
debrajo
Posts: 790
Joined: Sep 2011

Already done and for her family and the care-giver. Had heard it was beginning to make a reappearence(doxil), but really didn't think it would get here til Nov.! She is already blessed! Best, Debrajo

daisy366's picture
daisy366
Posts: 1493
Joined: Mar 2009

What is your friend's first name? I will pray for her and send positive energy to her.

So sorry, Mary Ann

Cindy Bear
Posts: 563
Joined: Jul 2009

Sending prayers and hugs and all good thoughts for your friend.
Big Hugs,
Cindy

Double Whammy's picture
Double Whammy
Posts: 2325
Joined: Jun 2010

Her name is Mary. She has a new oncologist who has decided to call her diagnosis ovarian cancer because it's not certain whether the primary site was the ovary or uterus. I think this has opened some doors for her in terms of treatment options. Her original oncologist was treating her as endometrial/uterine cancer and as I've learned from you, there are issues with insurance coding, etc. with UPSC. New medical oncologist also specializes in gyn cancers.
Suzanne

LaurelWillow
Posts: 13
Joined: Mar 2012

I just sent a prayer out for Mary and I am in CA so it had less far to go!

Laurel

HellieC's picture
HellieC
Posts: 456
Joined: Nov 2010

Your friend Mary and her friends and family are in my prayers, too.
I hope that they are able to make her comfortable and that the Doxil will work.
Helen

JVN_03092012
Posts: 16
Joined: Mar 2012

thing I have control of. So pray I will.

Sara Zipora's picture
Sara Zipora
Posts: 227
Joined: Sep 2010

Warm wishes (((((hugs))))) and prayers from Jerusalem site of Beginnings of all major religions. This week Christians and Jews converge r as Passover and Easter were on same week. Now there are tens of thousands praying for good health!
May all our prayers be answered!

All the best to sister Warriorettes,
Sara

light42day
Posts: 61
Joined: Mar 2012

I'll pray for your friend, mary, too, for her healing and for peace and comfort for her.

fuzzytrouble's picture
fuzzytrouble
Posts: 210
Joined: Feb 2009

So sorry for your friend, when it happens like this and you can't do anything but be there for her or him it is so frustrating. I am sending you a big hug and big MOJO.
Sharon

Double Whammy's picture
Double Whammy
Posts: 2325
Joined: Jun 2010

I'm really having a hard time with all my friend is enduring. I have a really bad case of survivor guilt AND it's just plain hard to watch someone you care about suffer.

The latest is that she has a local recurrence in her vagina. Not surprising. But - get this: it is the first time she's seen a gyencologic oncologist! Her surgery was done by a surgical oncologist with her gynecologist assisting. As things progessed after surgery, she changed health care providers and now sees an oncologist who specializes in gyn cancers and who thought it would be a good idea for her to see a gyn oncologist. Really? Since she is being treated with Doxil for the lymph node mets, she doesn't think radiation will be used for the local recurrence.

In the meantime, she does think the Doxil is doing something since she had some swollen, tender nodes in her neck that are no longer either swollen or tender.

What I didn't mention in my earlier post is significant shoulder/neck pain that continues, in spite of narcotics and physical therapy. The oncologist did not think this is cancer related, rather musculoskeletal. Bone scans were clear in that area. Her shoulder pain got worse and Wednesday she saw her pcp who said she had never felt such a hard muscle in her shoulder and wanted to do an MRI because she had no idea what was going on. Thursday morning I drove her to an MRI because the pain was so bad she could not drive and she was on diludid and shouldn't drive. The radiologist also said he'd never felt such a brick hard muscle. She looked in severe pain and said she has never experienced anything as painful as this shoulder is.

Today she got her MRI results which showed something "abnormal". That's all she knows. She has a biopsy (of what?) scheduled for Friday of next week.

Please continue the prayers for her.

Suzanne

Kaleena's picture
Kaleena
Posts: 1203
Joined: Nov 2009

Suzanne,

I pray for your friend. It's hard enough to watch your friend go through all of this, but also it is hard when the medical treatment and/or care seems to be lacking. You are a good friend to her. Sending caring thought to you too.

Kathy

jazzy1's picture
jazzy1
Posts: 1387
Joined: Mar 2010

Life just isn't always fair and boy I can relate to having difficulties watching a good friend go down and struggle. With this disease we have no control, but glad you can be with her and give her support...best we can do!!

You originally mentioned "c-Diff", is this any better? My FIL fought this after congestive heart failure and lost his battle. C-Diff is horrible and if we can't get it in line at the beginning, the person can loose so much weight they basically don't have the strength to fight. Too many antibiotics throw one into C-diff.

Thinking and praying for your dear friend....keep the faith!!!

Hugs,
Jan

fuzzytrouble's picture
fuzzytrouble
Posts: 210
Joined: Feb 2009

Hey Suzanne I am so sorry for what your friend is going through, I wish that they find out what this latest issue is. I was on Doxil and I know it helped me, so he's hoping it will help your friend out to.
Sharon

crystalblue1208's picture
crystalblue1208
Posts: 38
Joined: Apr 2012

I will pray for your friend and others who are also suffering from cancer and pain like my sister.

Double Whammy's picture
Double Whammy
Posts: 2325
Joined: Jun 2010

I think it's under control now, but I'm not sure. She had pretty significant lymphedema in one leg and her previous oncologist lollygagged about getting her a referral for a compression sock. Things progressed with the lymphedema and she developed cellulitis. She was placed on antibiotics and exactly X number of days after antibiotic treatment, she started in with diarrhea and abdominal pain. It was the C diff but no tests were done so no one knew, just try this or that - none of which worked of course. Enter new health care provider who diagnosed it. She was hospitalized for that, it got better, then it didn't. Another hospitalization and I think it's under control now. All this while on Gemzar and then Topotecan which the cancer just sort of laughed at and continued to progress.

Her son is getting married in September and she had just purchased fabrics for a beautiful quilt which will be the wedding gift. She's too sick to deal with it. A mutual friend/quilter is arriving here in about an hour and we are going to sew it for her. She will have the finished quilt to gift her son and new DIL. I'm so honored to be able to help with it.

S

daisy366's picture
daisy366
Posts: 1493
Joined: Mar 2009

Suzanne,

Your friends story is sad for many reasons. Her docs never referred her to the specialist that she needed and now all this. Hopefully she is getting connected with a good gyn/onc.

Please mention a tissue assay to her for her biopsied tissue. Hopefully this will pinpoint the best treatment and she won't lose any more precious time.

And you have no need to carry that burden of "survivor's guilt" my friend.

Hugs to you both. Mary Ann

Double Whammy's picture
Double Whammy
Posts: 2325
Joined: Jun 2010

Things have not been going well for Mary. She has been hospitalized for over a week with congestive heart failure and clots in lungs. She is going home on hospice care. Cancer is now in her lungs and liver and once again, it's smarter than the chemo. She has had so many complications, so much progression, and all in such a short time. She was diagnosed only a year ago. This is such a shock to everyone. I think we'd all accepted that she wouldn't beat this, but we did expect some response to something instead of only one thing after another. She did have CARIS testing and was on a Doxil which was supposed to be effective. Not.

My friend and I have the quilt top pieced now and it's off to the quilter on Thursday and it will be ready Friday. Then we just have to sew on the binding and embroider her label and attach it. She should be able to gift it to her son and fiancee early next week if all goes well.

Once again I ask for prayers for Mary.

Thank you all,
Suzanne

jazzy1's picture
jazzy1
Posts: 1387
Joined: Mar 2010

Unfortunate to read about the downhill spiral for your dear friend Mary. All one can do is try to beat this devil and win, but as we all know we have no control.

You're such a wonderful friend to assist with the quilting and be close to her during her extremely difficult times. She will always remember you for this and you can feel at ease that you helped comfort her.

Mary's in my prayers for support, strength and peace!!!

Jan

HellieC's picture
HellieC
Posts: 456
Joined: Nov 2010

Oh Suzanne, it is so hard to watch a loved one battle against this vicious disease. You are a true friend to Mary - she could not ask for more love or support. To finish the quilt for her to give to her son will mean so much to her - I can think of no lovlier and more poignant gift.
Best wishes, Suzanne. I will remember Mary in my prayers.
Helen xx

LaurelWillow
Posts: 13
Joined: Mar 2012

Your helping to make the quilt a reality will bring peace to Mary. I am so sorry that she has suffered so much and that her medical team has been less than stellar. I hope that she passes without a great deal of pain.

What did her shoulder biopsy reveal?

All best to you.

snowbird_11's picture
snowbird_11
Posts: 160
Joined: Oct 2011

My thoughts and prayers go to your friend that she may be kept comfortable and and pain free. That some of those with apparently the same cancer show little or no response to treatments is so very distressing.

A few weeks back I attended a memorial service for poster strongformom's mother whom I had met at a local support group. She was diagnosed only last summer and her cancer never responded to the various chemos despite indications of being appropriate via Caris testing. She had been such a vibrant lady yet the cancer did not care.

It is such a wonderful gesture you and friends have made with the quilt project. What a lovely last memory for her to have. You are such a good friend!

Sending caring thoughts and prayers for Mary.
Annie

Double Whammy's picture
Double Whammy
Posts: 2325
Joined: Jun 2010

Mary passed away early this afternoon. Thank you all so much for your prayers and support of both her, who you don't know, and me, who you do. My heart is broken but it has also been enriched by her friendship.

Suzanne

sunflash's picture
sunflash
Posts: 156
Joined: Aug 2011

I'm so sorry for your loss, Suzanne. It's so hard to let go of those we love. I know she felt your love....and gained peace from that. Hang on to your memories. Friends like this will live on forever in your heart.
God bless you and her family.

Kaleena's picture
Kaleena
Posts: 1203
Joined: Nov 2009

Suzanne:

I am sorry for your loss. Sending comforting thoughts and hugs to you. I am glad you were blessed with her friendship. (((Suzanne)))

Kathy

Ro10's picture
Ro10
Posts: 1462
Joined: Jan 2009

I am so sorry to hear about Mary. I hope she had comfort at the end. Sending hugs to you. Finishing her quilt was quite a gift of friendship. In peace and caring.

daisy366's picture
daisy366
Posts: 1493
Joined: Mar 2009

My condolences to you and Mary's family on your loss. You gave her the cherished gifts of your love and friendship.

I'm so sorry. With prayers for peace, Mary Ann

fanniemay
Posts: 52
Joined: Nov 2011

Suzanne,So sorry for your loss. Sounds like she had a lot to deal with at the end. THe human, frail body can only take so much. I am sure she was at peace. You were a good friend. God BLess the family of Mary

light42day
Posts: 61
Joined: Mar 2012

I'm so sorry to hear that Mary passed away. She was blessed to have a dear friend like you. That quilt you finished for her will always be cherished last gift for her family. I pray for peace and comfort for you and her famliy during this time of loss.

jazzy1's picture
jazzy1
Posts: 1387
Joined: Mar 2010

I'm deeply saddened by Mary's passing. Remember her caring and sharing ways and cherish the time you shared with her.

Peace be with you and her family during your mourning.....
Jan

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