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One sided weakness ???

Praying4All
Posts: 8
Joined: Oct 2011

Hi I have a daughter with a brain tumor, DPG. she was recently having severe headaches as well as some beck pain. We took her to the dr and she was put back on Dexamethasone 4ml every 6 hours for the first 5 days then she went down to 2 ml every 6 hours. Now her left arm and leg is extremely weak, she had weakness after surgery which was in July 2011, but now she can barely get around independently. Does anyone have any experience like this, thoughts, suggestions?

mom_in_CT
Posts: 19
Joined: Jun 2011

My 28-year-old daughter has developed left-sided weakness which came on rapidly in January along with the loss of peripheral vision in her left eye. Her NO said that her tumor grew in the part of the brain that controls movement on her left side. He didn't even think that she should bother going for physical therapy which leads me to believe that it is not reversible although he did not come right out and say that.

However, she is a very determined young lady and has been going for physical and occupational therapy for about 2 months now. I have to admit that it has not made a noticable difference. She is walking with a cane and has just been fitted with a brace to keep her ankle from giving out on her. Her left hand is totally useless. It breaks my heart when she says things like "I can't wait for my left side to get better so I can take the dogs for a hike again."

She went from being physically capable of doing anything in December to being severely disabled in January. She is on Avastin and Lomustine for a Grade III anapalastic oglio (2nd recurrence).

greenmawmaw
Posts: 6
Joined: Aug 2012

my son has been talking about how he wants to get one for his left ankle. does it help her?
who do i ask for helping him get one?

sorry about you daughter, my son seems to be int he same situation as your daughter,,,he hopes to drive one day again,, i tell him when the dr gives him a ok, but i truely dont ever see it happening. but i dont have the heart to tell him.. i just cant break his spirit, what he has left,,,so i say we'll see,,,,

keep strong! we have to for them....