Apr 01, 2012 - 5:05 pm
Hi! This site was recommended by a friend. I hope to learn from others and share my own experiences in hope of helping others.
I was diagnosed with Stage IV NSCLC with a small brain metastasis in February 2012. I have completed 2 sessions of chemotherapy (Carboplatin, Pemetrexed, Avastin and also Zometa) with the third scheduled this week. I also underwent stereotactic radiation for the brain lesion. I sure didn't expect this at age 60, but then, who does? I remind myself that young children who haven't even had a chance to live out their lives are affected by and die from cancer - so no room for self-pity here.
I'm a former smoker who quit 35 years ago after 10 years of moderate smoking. I may never know the cause of my cancer but I have oredered a radon testing kit via Lung Cancer Connection to rule out (or in) radon as the cause. I was also exposed to disturbed asbestos because the idiot who sold me my house covered the basement pipes with duct tape in order to diguise it. Two years after moving in the tape began separating from the ducts along with the asbestos. Some of it fell on the floor and remained there a couple of months because I couldn't afford the repairs. I know mesothelioma is normally associated with long-term occupational exposure but also read it only takes on fiber to cause cancer. I also heard that it may require specialized pathology testing to determine if that is the source. I would be interested in hearing from anyone who has knowledge of this.
One of my primary concerns at this point is the lack of appetite after chemo. I'm already thin and lost 5 pounds after the first treatment (which I regained) but then lost 10 after the second round. I've regained 6 pounds. I'm trying all of the suggestions I've received from the nutritionist and others but I'm always open to more suggestions. The Emend and Zofran help the nausea but not the appetite. I find Ensure and other supplements quite gross but have managed to force a couple down. Instant Breakfast I can handle.
I'm looking forward to meeting others here and sharing experiences!