Mar 31, 2012 - 11:22 pm
Trying to catch up on the news on our board and wanted to say THANK YOU to each one of you for all of your encouragement and advice. Jude sent me some great ideas for meals for Don and I'm adding avocado to the grocery list I am making.
Monica - here is the link for the wedge (CaptDave sent this to us and I ordered it as soon as I got home Thursday - and it is on the way!) www.opentip.com/Health-Beauty/Alex-Orthopedic-body-wedge-p-1803323.html
William - I will check out the sites you posted - Don has lost 4-5 lbs since he's been home and I need to get that in check stat!
Congratulations Janet! Good news is always soooo welcome here - as you know already - we all share in the good, the bad and the ugly here - but what a great group of new family and friends we have found in all of you.
Bob - Don is dreaming of that new Harley and the trip to Sturgis (so am I) I saw a new trike that BC HD had in their shop and tried my best to get him to buy that one - so much room to pack things on that bike - and who wouldn't like a reverse on their bike? Don is not going to buy a trike - he likes the leans too much - I do too - but man all that room for things...
Sajanson - Don had his surgery on 3/22 and came home 3/29. The enormity (sp?) of this surgery is nerve racking to say the least - but at least he could have the surgery and a lot of our pioneers have had it and are doing very well. We just have to find out what his new normal will be - this morning wasn't so great - but the afternoon was better. Our surgeon insisted that Don walk at least 3 miles each day beginning with the day of diagnosis and then he gave him a spirometer to practice with 30xday for three weeks prior to surgery. The stronger they are going into the surgery, the better recovery will be. Please ask any of our pioneers for advice - they are so much more informative than the doctors and there is nothing like good old fashioned experience.
Angie - I'm so glad to hear things are going better for you guys and the picture of the babies makes me smile everything I see them - their little fists in the air - that picture should be famous one of these days!
Ginny - I love playing games like Words with Friends and Scramble with you and Freida - great way to pass time and just 'drool' a little.
Sam - you are absolutely a legend! Your spirit is amazing and I think to myself everyday -how does he do it and stay so positive - you are the all-in-one - survivor, patient, caregiver, advice taker and giver - you amaze me and thank you for cheering on us newbies.
Donna and Paul - we love you two so much - your help and encouragement has been so comforting to us - this stupid cancer is so much easier to face when we have teammates like you guys.
Niki - thank you so much for your support - I have read all (each and every one) of your posts - you are wonderful to help and support us.
Our beloved Eric (Chemosmoker) passed away the day before we left to go to surgery and though we never met in person - he and Michelle became part of our family and friends also. I know that Eric and Lee are together in Heaven (Chantal says they used to talk about haunting her and Michelle!) - I can just imagine the mayhem those two are causing and they are lucky that Ginny's mom is there now to get the boys back in line before they get into too much trouble up there!
I think I mentioned that there were four people on the floor in the hospital (including Don) who all had the same surgery - I am 1,000% convinced this cancer is not all that rare anymore, unfortunately.
Don also is still having a horrible cough - occassionally productive, but he sounds like a barking seal and he says it does hurt his throat. His incisions look great. I am a bit concerned with dehydration - you aren't supposed to drink with meals - which are very small and not as often as I would like - but he isn't hungry and that probably makes eating more difficult also?
I've been sleeping on the sofa in the livingroom so I can at least sleep in the same room that he does - that recliner does not appeal to me at all but he seems to be okay - I'll be glad when the wedge gets here and I wish I would have ordered it sooner. Dave, if you happen to see this - would you send us the link for the inflatable wedge you found for traveling? I can look them up too - but you've already done the footwork so I'll wait until I talk with you again.
I MIGHT call for the pathology report Monday - but, quite frankly, I don't even know if I want to know. Hoping with all my might that the news will be good news. I'm sure each of you understand the feeling on 'to know, or not to know'. Don has been through so much already - I don't know how he/we would take any news that he would need additional chemo. Some of you have had to do that - but I sure hope he doesn't. I tend to worry about things I have no control over - but this is the first time in my life - I truly don't want to know unless it's good news.
Well, off the computer - time to flush the tube - we use bottled water here because our well water is so hard - and our room temp is a bit too cool for Don's liking so I have to nuke it a bit before flushing it through the tube - it must have felt like a cold internal shower the other night - so I won't do that again without warming first!
Oh - the things we never wanted to know - ughhh
Love and hugs to all,