Mar 24, 2012 - 1:28 pm
I need help to find out where to go and who to see now. I have had three failed surgeries of parotid gland and radical neck lymph node dissections at three different hospitals and the wrong radiation with damage and severe lymphadema of neck. Acinic cell is extremely rare and I was told I cannot have any more radiation and there is no chemotherapy for treatment. Surgeons did not do proper location prior to surgery, I could feel ca. lymph nodes close to skin surface myself, but they missed during surgeries. Parotid gland was not complete excision and surgeons did not listen to me when I told them I felt great pain and hard lymph nodes, and did not excise. I had wrong type radiation with complications.