Mar 17, 2012 - 2:19 pm
I'm glad to see that there is a network set up for people to discuss what they are going through. I am newly diagnosed with endometrial cancer - the adenoidcarcinoma type. I am 37 years old and was diagnosed following a routine visit to my Gyn because I couldn't get pregnant after 2 years of trying. I really didn't think anything was wrong because it took my husband and I 3 years to get pregnant with my now 4 yr old son. An HSG done Dec 05 revealed possible polyps on the right side of my uterus, a D & C with polypectomy was done Jan 18 and pathology reports came back Jan 25 positve for grade 1 endometrial adenoidcarcinoma. I was in complete shock and disbelief because I didn't have one symptom and am completely healthy! I just had a robotic total vaginal hysterectomy on Feb 27 with removal of tubes and ovaries. I had no lymph nodes removed because the my Gyne Onc believed that the cancer was confined to my uterus. Now, I get a phone call yesterday saying that my final pathology report will not be completed until an expert Onc/Pathologist in Baltimore reviews them because there may be cancer cells along right side of my endocervix and now they are trying to determine if this is uterine cancer that has spead downward or cervical cancer that has spread upward because the adjunct treatment is different (there is adenoidcarcinoma of the cervix but is not the most commen type of cervical cancer). The Gyn Onc said that adenoidcarcinoma of the cervix is not always picked up on PAP smears because it not surface like squamous cell but is glandular and is only picked up if growing through the cervix to the top layer. My concern is should they now remove my lymph nodes and omentum from uterine cervical area?? How can you properly stage if no lymph nodes have been dissected. I'm confused...If anyone can please help me understand this I would greatly appreciate it.