CSN Login
Members Online: 12

had RAI pill last week-are you in isolation now? if so lets chat

rcsieg
Posts: 5
Joined: Feb 2012

home in isolation in my living room. was told to use same plate & utensils all week rather than disposables. have 1 trash bag I am keeping for trash that i will then keep till end of month before throwing out. watching LOTS of tv which is kind of fun because i don't usually have time for that. stayed on rai diet for 3 more days after i took pill even though i was told i could go off it next day. didn't find this diet too bad because i eat plain anyway and i was able to use iodine free salt. Have not had any of the rai side effects either. been lucky so far. how about anyone else out there??

jewels66
Posts: 5
Joined: Mar 2012

Hi....I am 10 weeks post RAI for my Papillary Thyroid cancer. I am here if you have any questions, thoughts or rants. It's been rough for me with the extreme fatigue, muscle weakness and loss, total body pain and sleepless nights. I had 150 MCI . I had the Thyrogen injections so I did not have to stop my Synthroid. I am on 137 mcg and feeling hyper.....Just wanted to share my experience with you and see where you are at. I have had a lot of weight gain too. Have you had any of these side effects yet?

PS...try the Biotene gum to help with the salvary glands.

Best, Julie

rcsieg
Posts: 5
Joined: Feb 2012

thanks for your reply. I am not having any side effects from the RAI. i feel as though I am waiting for other shoe to drop . i had 100 mci and i am now on 125mg synthroid. had a lot of fatigue on the 100mg synthroid. I find everyone has different advice for the isolAtion period. i was told NOT to use disposable plates, forks,etc. i am using one fork, plate, cup, etc And washing it after each use. It seems i was advised that the less nuclear trash i make the better. i am using tissues as napkins and flushing it. i am following the advice of my nuclear dept. i keep reading reading reading. i am under the careof an endo dr. i think i wil get a 2nd opinion from an oncologist if my scan comes back with any surprises.
thanks for "listenening"

RAI IN FLORIDA
Posts: 4
Joined: Mar 2012

I am going tomorrow to the hospital for RAI, my doctor prefer that I stay the first two days at the hospital. I will also have 100mci, and I am on 150mg Syntroid.
Any last minute advise about what you need during isolation period?