Mar 03, 2012 - 4:58 pm
Diagnosed 11/2011 - Open Partial 01/2012 - Pt3a - 2.5 cm clear cell, Fuhrman grade 2, renal vein invasion, am a high risk - with prognosis of 40% recurrence probability - Early 40's, with generally OK health (some back pain from a disc herniation - well managed, asthma - well managed)
Options being given to me are
(1) Monitor with ultrasound + xray every 6 months - I am saying this is not adequate, but they tell me - that is standard monitoring protocol. When I asked for monitoring by CT, I was told "we don't want to expose you to so much radiation (but they can on the blind trial ???)"
(2) Blind clinical trial of Pazopanib for 1 year - 2 hour trip 1 way for doctor visits, will need several during trial, CT at month 5, 9, and 12, blood tests for liver function (I suppose there are serious side effects ?)
-- Blind Trial - They won't tell me if they give me drug or placebo
(3) I could - not sure yet, but go on Pazopanib directly,
-- they say it's not approved for stage 3, (but OK to give under blind trial ???),
Questions / Requests
(1) Does anyone know of any adjuvant therapy ? Experiences ?
I meet all the doctors again this week, but, I am thinking, for weeks, what do I do ? I have consulted various oncologists, tired of thinking, prayed, and forgive me for saying this (should there be a god, listening) tired of praying, scared (very, when I think of the magnitude of what's happened over the last 3 months since November 28, 2011).
I want to do every single thing I can to help myself, at-least while I can. I did read the median is not the message, and I am reading the book "AntiCancer A new way of life", but the real question is, has this "Tangibly" helped other people, the diet, the exercise ?
Soliciting Concrete specific proven recommendations. Please write if you have any. I am not sure - but doctors look at this in an abstract manner, I believe the real people here feel what I feel.
Many thanks, and my best wishes.