Mar 02, 2012 - 4:27 pm
Under discussion boards there was not a board listed for MDS or a board for blood cancers. However under the leukemia board I did find some older post re: MDS. Myelodysplastic Syndrome is one the least known of blood cancers as well as Myeloproliferative Neoplasms. If you ask the man on the street what is Mylodysplasia, Lymphoma, Myeloma or leukemia, the response more than likely they will have perhaps some accurate information on those other than Myelodysplasia. MDS is a diagnosis of cancer and unless you are a victim or family of a victim of this disease, sadly you know very little or nothing of this disease.
I have never joined in any type of chat room, but discussion is therapeutic. I would like to hear from others with MDS and to see a separate chatroom for Myelodysplastic Syndrome.