Feb 25, 2012 - 8:19 pm
My husband was diagnosed with Maligant Peripheral Nerve Sheath Tumor approx. 3 years ago. The tumor arose from his sciatic nerve. He had surgery in which he was originally told it was a begign nerve sheath tumor and a month after we found out he has high grade MPNST. He has had clean check ups every 3 months for the last few years however he has been in significant pain since the surgery and radiation that followed 3 years ago. After a significant increase in his pain this last month we decided to have an early MRI done and the tumor has reoccured. I am very concerned as I have spent a lot of time on the computer and see the prognosis is just not good. I am hoping to hear from survivors or caregivers of people diagnosed with MPNST. I would like to hear your stories, successes, and set backs. Since this is so rare I haven't come across any sites that have other people with this particular type of cancer. Prayers and Blessing to all. Thanks for any stories, feedback you can give.