Hi, Iam new here and really glad that I found this sight! Let me first say WOW!!!!
Let me tell you all about my boyfrind and his cancer expirence so far.
Apr.2011- Family doctor does PSA screening.. PSA 43.1 schedules biopsy
May 2011- PSA 45.1 Biopsy test results- A. Gleason score 5+4=9 involving 6 out of 6 cores
(75%,75%,80%,80%,80%,85%) B. Gleason score 4+5=9 involving 6 out of 6 cores
(80%,80%,80%,90%,95%,95%) Scheduled CT & Bone scan
June 20,2011-(my birthday) Had CT & Bone scan and got the results: Found metastic prostate
Kidneys- small hypodense lesion measuring 8.0mm in left medial kidney,
non-obstructive stone measuring 4mm in lower pole of right kidney.
Lymph nodes- 7.3mm & 5.5mm right of external iliac artery,
8.2mm & 8.8mm left external iliac vein
9.2mm & 13.5mm to left common iliac artery
Bones- Heterogeneous sclerotic lesion- 2.0cm by 1.7cm involving the left iliac
Bone Scan- Evidence of asseous metastic disease in left pelvis, proximal left
femur, L3, & sternum
July 2011- PSA 60 Was told the ONLY treatment for him at this time was to start hormone
therapy that day. We were told if we choose not to that the Dr. guaranteed that within 6 months he will back a bone that won't heal and within 6 months from that he'd be dead. No joke that's what we were told. So what could we do but get the injection which was degarelix(firmagon) 40mg/ml injection 240mg scheduled next appointment for 30days
Aug 2011- PSA 4.8 received 2nd dose of degarelix 20mg/ml injection 80mg Dr is surprised
that he hasn't had any bone pain. Dr put him on iron pill due to anemia. Also had him go into hospital 3 times for iron infusions. schedules appointment for 30 days. After this shot he started having lots of hot flashes, and no real injection site pain but he did get to feeling very sick to his stomach after about 30 min. was in bed rest of that day but was feeling better the next day.
Sept. 2011- PSA 3.07 again received degarelix 20mg/ml injection 80mg Iron was alot better
this time but keeps him on the iron pills. schedules 30 days recheck
Oct 2011- PSA 2.27 again received degarelix 20mg/ml injection 80mg Dr still surprised
no bone pain 30 days recheck
Nov 2011- We decided to switch to a Dr. closer to home because we got different insurance.
Now this is where I get confused. This Dr. wanted to change him to Eligard injections. He said it does the same thing as the degarelix but that his office chose to use Eligard instead. I didn't know if I liked changing something that still appeared to be working just fine but once again, what could we do at that moment. So he got Eligard injection not sure on dosage and that's when things started to change slowly. He didn't have to go back for 3 months so he was glad about that. Me not so glad. I worry about everything now and never have I been so worried about anything. What if within that 3 months it no longer was working. Won't the cancer start going again. How fast? I was a mess.
Feb 2011 - PSA 2.09 received Eligard injections it seems to be still working but not without him suffering from just about every mild side effect possible. Physical and emotional. I'm pretty strong emotionally but WOW I find myself at almost every minute of the day fighting back tears no matter what I am doing. He's my best friend and the love of my life and watching him go through this has just wrecked my emotionally stable life. I just hate not knowing if he is getting the best treatment possible. We don't have a lot of money and he has medicaid insurance and we live in Iowa. So now we just pray and spend as much time together and hope that we can do this for many years to come.