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Clinical Trial for NHL

JoanieP's picture
JoanieP
Posts: 573
Joined: Mar 2010

I read today that they are in there third clinical trial for a vaccine for NHL. They are about to go to the FDA. I went on NHL clinial trials. Sounds very promisiing. Thank you God for great research doctors!!! If anyone can add to this please do. Love Joanie

po18guy
Posts: 245
Joined: Nov 2011

A clinical trial saved my life three years ago. At that time, I had just completed eight rounds of chemotherapy that involved eight different drugs. I was diagnosed with a rare sub-type of NHL (Peripheral T-Cell Lymphoma-Not Otherwise Specified) for which there is still no standard treatment. Outcomes are generally poor. When it immediately relapsed after chemo, my prognosis was lowered to "very poor." My only option was a 24 hour in-patient salvage regimen of ICE, and best wishes. Fortunately, I was being treated at a research facility, and doctor researched the trials that were available before presenting me with two clinical trials for consideration. While one seemed fairly close, the other was targeted at relapsed peripheral T-cell lymphoma - my precise diagnosis and condition.

I went on the drug (a novel HDAC inhibitor) and the cancer responded immediately. I achieved complete response and have remained there after three years on the drug. Once the trial was completed, I remained in the long-term study of the drug. Doctor calls my case a "miracle to be watched." For almost three years now, all scans have been NED and the longer I remain NED, the better the outlook is. This is a far cry from the 6 months of life I had left in February, 2009. While my response was ideal, there are many others who are also benefitting from the drug.

Those with rare cancer sub-types are especially urged to investigate clinical trials, yet even the more common types can benefit from the latest developments. For example, in the case of Hodgkin's Lymphoma, the recently approved drug Adcetris is the only drug to have been FDA approved for Hodgkin's since 1977. The drug also is the only drug approved for the rare NHL sub-type of ALCL. Progress is most certainly being made, and hope is on the rise. I can attest to that.

JoanieP's picture
JoanieP
Posts: 573
Joined: Mar 2010

Hi
Thanks for your inspiring story. I was diagnosed three years ago with folicular lymphoma and have been in remission since June 2009. I thank God for every day and I am so happy to hear of success stories like yours. May God continue to bless you. Joanie

catwink22's picture
catwink22
Posts: 239
Joined: Sep 2009

Hi Joanie!
Thanks for the good news! Looking forward to hearing more about it. Will the vaccine work if you already have it? Look what happened to Polio!
Take Care!
Cat

onlytoday's picture
onlytoday
Posts: 596
Joined: Jun 2010

Hi Joanie and All,

Can you imagine??!! We all need to keep the faith, hang in there and let's just see what might happen! There is SO much research going on for us that it's amazing. ( Per my two oncologists)

:)

Donna

JoanieP's picture
JoanieP
Posts: 573
Joined: Mar 2010

HI I really don't know much except that they were ready to go to the FDA. Theyb told me at Moffit 3 years ago they were working on this vaccine. It had some problems along the way. But it looks good. Blessing and love to both of you Joanie

JoanieP's picture
JoanieP
Posts: 573
Joined: Mar 2010

HI I really don't know much except that they were ready to go to the FDA. Theyb told me at Moffit 3 years ago they were working on this vaccine. It had some problems along the way. But it looks good. Blessing and love to both of you Joanie

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