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Are Your Ferritin Levels Too HIgh? Is IP-6 a Solution?

RoseyR
Posts: 464
Joined: Feb 2011

As if we don't have enough concerns, found out a few months ago a blood test showed that my ferritin levels were way too high.

High iron is never a good condition for cancer patients for, as we know, cancer likes iron just as it does sugar.

My levels had been normal before two blood transfusions that I needed at the very end of nine months of chemo and radiation.

Do they warn you that transfusions can raise your ferritin levels? No, of course. Only my integrative doctor bothered to test for ferritin levels.

NOW the question is how to bring them down ASAP. My doctor has suggested lactoferrin (ONE of the elements in why protein, by the way; Life Extension now makes a whey powder that's augmented by extra lactoferrin.)

However, I think I have read that IP-6 can also bind iron and remove it from the body.

Do all of you know how your ferritin levels are doing? Have any of you had to find ways to lower them?

Appreciatively,
Rosey

california_artist's picture
california_artist
Posts: 860
Joined: Jan 2009

If all your other blood tests are again normal, I am a proponent of getting some blood drawn for the sole purpose of lowering levels of things like copper and iron-sorta like having the oil changed and allowing your body to replace the old contaminated blood with blood having less iron/copper etc. On the not quite so out there front, to keep iron from building up in the first place, I have read that drinking regular black tea with meals containing iron that the tea binds with the iron before your body gets a chance to assimilate it. Further, since cancer cells are also wandering around in the blood, some of them will be gotten rid of with the drawn blood.

ANd, no, I don't know how one might convince a doctor to go along with this, but you may have a reasonable doc who sees the logic herein.

Sometimes one must move back to move forward in health.

ANyway my love and thoughts are with you, thanks so much for the emails.

Your friend,

Claudia

carolenk's picture
carolenk
Posts: 909
Joined: Feb 2011

Ferritin can be a marker of inflammation. I can't post any links for reference. Do a Google search using the words "ferritin" & "inflammation." A high ferritin level should clue you in to check other inflammatory markers.

Tresia23's picture
Tresia23
Posts: 75
Joined: Dec 2010

I was interested to see your comment about having blood drawn. I had a friend who had haemochromatosis (excessive iron accumulation). He used to have regular blood letting to reduce his serum ferritin. He is still alive today 30 years after diagnosis and a few joint replacements along the way. I have always wondered about donating blood for the same reason. Would that not serve the same purpose? Do you have blood banks over there? In Australia it is a voluntary thing although everyone is thoroughly screened before donation. I have also read that rice bran binds to iron. I discovered this when my mum became anaemic from eating too much rice bran. There is research about this on the web.
Nice to hear from you again on this discussion board. I admire your view on many topics Claudia. Georgia

california_artist's picture
california_artist
Posts: 860
Joined: Jan 2009

I would rather think that one can't give blood to another when one has cancer, due to the potential for stray cancer cells. I don't know for certain. There may be a way that the blood is filtered to sort out just the plasma. If I can give blood, I will. I had just assumed not but had never in fact looked into it further.

Will certainly try the rice bran in the meantime. Thanks.

I do try to be helpful, often times ending up the recipient of numerous slings and arrows.
But. ah well, in the end. for me it matters little what slights I suffer, if some little thing I have posted has saved a life or made other lives perhaps longer and more enjoyable.

I finally realized, that I have lived a Pollyannaesk existence, only previously having been surrounded with love and kindness. There are so very many wonderful, caring women on this board. I wish the best of everything to all. My greatest desire is for us all to live long healthy lives, filled with love and kindness.

JoAnnDK
Posts: 276
Joined: Jun 2011

info.... no simple answer

http://www.cancer.org/Treatment/TreatmentsandSideEffects/TreatmentTypes/BloodProductDonationandTransfusion/blood-product-donation-and-transfusion-blood-donation-by-cancer-survivors

http://cancer.about.com/od/glossary/f/donateblood.htm

I had a friend who needed a kidney transplant. He received a perfectly healthy tumor and 5 years later, it had cancer. The doctors felt that the kidney had cancer before it was transplanted.

RoseyR
Posts: 464
Joined: Feb 2011

Yes, I know that high ferritin can be a signal of inflammation, but thanks for reminding me of that. My CPR has always been less than .01, which is exactly where Keith Block wants to see it, but there are other indicators of inflammation.

Of course, as Claudia points out, I can't donate blood but perhaps I can shed a bit of it; will ask about this.

In the meantime, I'll just try lactoferrin and/or IP 6.

Is anyone else taking IP 6? There seem to be increasingly good reports on its use for cancer treatment, prevention of remission, even use during chemo. It not only chelates iron but apparently boosts NK cells and may also--get this--discourage metastasis. If any of you want some clinical articles about it, will be happy to append. No negative effects have been reported.

Yes, transfusions can lead to high ferritin levels, but so may another phenomenon:

Keith Block says that he has occasionally seen high ferritin levels after conclusion of treatment signalling the death of many cancer cells that haven't yet been shed from the body; I can only hope THAT is why my levels are a bit high.

Am otherwise feeling great and blood tests look pretty good.

Best,
Rosey

carolenk's picture
carolenk
Posts: 909
Joined: Feb 2011

I think you meant "prevention of recurrence" rather than "prevention of remission."

RoseyR
Posts: 464
Joined: Feb 2011

Thanks for catching the typo, Carolenk.

Rosey

california_artist's picture
california_artist
Posts: 860
Joined: Jan 2009

Woke this morning to thoughts of excess iron on my mind. Always in detective mode, i wondered about the iron --Copper also-let loose on the body as cancer cells die as a result of chemo. Reminded me that I had read that it is always better to make cancer cells kill themselves, as in apoptosis, that ever so fancy word for suicide,as opposed to us slaying them through any means, seems each way has a different impact on the liver's job. Well, now that I am becoming more awake, I recall that it is the p53 gene that controls apoptosis, and we are unfortunately in a distinguished group that has our vitally important p53 gene, the silencer, silenced itself, and therein lies the bane of our existence, the key to our woes. Were it to be turned on, it would inform our cancer cells that they were really messed up and needed to die post(e) haste.

So, our doctors, armed with that knowledge, should offer along with the chemo, a bit of blood drawing, more than for testing, but less than what would do further damage. Excesses of not only iron but copper, and simply the detris (whatever that word is for debris, ah, it's debris, of dead cells), also taxes our livers. I always relate it to having the oil changed. Every car needs an oil change now and then and this is then for us. They might inform us of the iron/copper issue and suggest we drink tea with meals, eat foods low in iron and copper and some cilantro along with oodles of glasses of water, to reduce the fuel to our cancer cells.

I was working on this comment by my friend, Rosey, whose comments I respect greatly.

"Keith Block says that he has occasionally seen high ferritin levels after conclusion of treatment signalling the death of many cancer cells that haven't yet been shed from the body; I can only hope THAT is why my levels are a bit high."

This also supports a theory(hypothesis) I have concerning delivery times based on the manner in which antibiotics are given. A patient is always instructed to take antibiotics on a regular basis because, if the body and the particular bacterium are allowed to react to what is killing them during lag time they can become resistant to the antibiotic. Well, I thought the same is probably true about cancer cells, that given that inital onslaught of chemo and then the three weeks delay, they do morph and figure out how to fend off the next attack, and continue to do so during each rest period. Along this line of thought then, if chemo were given in much much more frequent periods and in a lesser amount, wouldn't they not not only have less time to morph during, but also wouldn't it lessen the burden on the body as they are killed off, and wouldn't the, your, mine anybody'a body be then able to concentrate on strengthening the immune system? I'm just conjecturing here. Any thoughts? Aside from that perhaps I should wake up a bit more before trying to convey thoughts from my brain to yours.

Does anyone know how often cancer cells reproduce? With bacterium it must be mere hours, cancer cells? That would be very important information to have in hand.

I do rather wish we had more input in things that happened to us during this journey, or could at least feel listened to when we question the reasoning behind procedures and perhaps suggest other options than the norm, such as having blood taken to get rid of some of the dead cancer cell debris.

There is a fine line that needs to be walked and I'm feeling that it's not clearly insight, yet.

So, off to get warm. My extreme gratitude for your commradarie in being part of the love-in, that is at most times, this board. I am so honored to be a member of such an embracing group. Thank you,

Your friend,

Claudia

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