Feb 21, 2012 - 8:56 am
Well, yesterday wasn't a good day. David's MRI showed "dramatic progression" of the brain cancer. In the words of his NO "nothing we do is going to change the course of the disease." I asked him if the tumor is now a grade IV, and he said, "Oh yes. This thing is very agressive". In fact, to me, he seemed incredulous as to how much the main tumor had grown since his last MRI in December. On first look, he thinks we have three options: surgery, to try and debulk the main tumor. But he said at most, it would buy a few months, if that, because there are several satellite tumors that are progressing too. These are in areas that can't be surgically removed without causing more serious deficits, more than he has now, which are pretty bad. The second option is Avastin (and maybe another drug(s) added). The third option: do nothing and go for palliative care (i.e., Hospice).He also mentioned possible Gamma Knife. He said he will also research a clinical trial, but he thinks it's a remote possiblity that David will qualify for any because not only due to his other medical issues and all the meds he takes for those(Type 1 diabetes, hypopituary), but also because the tumors are in the cerebellum. For some reason, he said the majority of clinical trials exclude cerebellum tumors.
Our NO said that he is presenting David's case to the Tumor Board this Thursday. He will call us on Friday to relay the board's recommendation.
All along, our NO had been very vague about giving a prognosis and avoiding negativity. This time it was different. He wasn't brutal about it, but he didn't pull any punches about what we are facing. When he left the room, I heard him give out a big sigh. Like giving us this news was a hard thing for him to have to do too.
I think we knew that this day was coming, but not so soon. For now, I'm leaning to the Avastin. We are rather numb right now. I think David is too. Waiting anxiously for Friday to see what may lay ahead.
m/o David, age 34