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cancer free 9 years from dysgerminoma

jessyann
Posts: 1
Joined: Feb 2012

Hi I just joined and when I was first diagnosed with dysgerminoma there weren't any support groups around. I was 18 when I was first diagnosed. My Dr said dysgerminoma is very rare and rarely ever comes back. I would love to talk to anyone who has concerns or questions just because I didn't have anyone to talk to about this.

lovesanimals
Posts: 820
Joined: Sep 2011

I had to google "dysgerminoma" because I had never heard of it. I found out it refers to a germ cell tumor, usually occurring in the ovary and to a younger woman, as you already know. I'm very happy that you've been cancer-free for 9 years and we welcome you to this board. Thank you for being willing to share your story!

Kelly

jbeans888's picture
jbeans888
Posts: 300
Joined: Mar 2011

Welcome! I haven't heard of your dx either. Did you do chemo at 18yrs old?

tatem222
Posts: 3
Joined: Dec 2011

Thank you for coming back to this board and congrats on being cancer free. I was diagnosed with dsygerminoma in December 2011 and have completed two of my four cycles of BEP. When I received my diagnosis, I actually learned the most