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compter finally burnt up

scuttlebug11's picture
scuttlebug11
Posts: 175
Joined: Jun 2011

mvu vuy computer burnt up i,m sorry i have'nt wrote for so long i hope everyoneis good,i met my nen onc i have been on watch and wait since july but now youcan feel the nodule the doctor is is talking of bendanmusinand retuxub, and wvu on down the road. i feel so weak this time. blessing denise

allmost60's picture
allmost60
Posts: 3154
Joined: Jul 2010

Hi Denise,
Sorry about the computer problems, they can be such a pain in the butt, but I'm very happy to see you are back with us. I've missed you and many times wondered how things were going with you. Sounds like the "watch and wait" period is over for you. The two drugs you mentioned are good for shrinking the swollen nodes/tumors, so hopefully this will be the fix you need to get things under control. You will probably be weak and tired throughout your treatment, but keep your eye on the prize when it's completed..."Remission"! Your strength and energy will come back slowly, so be patient and just take it one day at a time. Please let us know when you start your treatment and remember we are always here for you. Hang in there friend...my thoughts and prayers will be with you. Much love...Sue (FNHL-2-3A-6/10)

COBRA666's picture
COBRA666
Posts: 2418
Joined: May 2010

Denise,
Been thinking about ya'. Yep,it sounds like the waiting is over as it stands. I was on watch and wait for only 3 weeks. I do not really know why it was decided to start the chemo for me. I did not have any test in that 3 week time period. I just went back to the Onc. and he said we are going to start chemo in the next month. Those computers are funny sometimes. You jump on one day and BAM it crashed. Hang in there and keep us updated,ESPECIALLY WHILE YOU ARE GETTING YOUR CHEMO. WE REALLY NEED SUPPORT IN THOSE TIMES. We are here for you. John(FNHL-4-1A-5/10)

scuttlebug11's picture
scuttlebug11
Posts: 175
Joined: Jun 2011

iv am sorry you have to go through this again i will keep you in my prayers. what chmo-drug will you use this time i have used retuab but i dont koow anyting about this new one.blessins denise

COBRA666's picture
COBRA666
Posts: 2418
Joined: May 2010

Denise,
I do not need chemo again. I was just saying back a couple of years ago when I was first diagnosed. Thanks for the concern though. John

merrywinner's picture
merrywinner
Posts: 620
Joined: Aug 2009

Well this is a fine mess you've gotten yourself into! Sorry but I had to laugh. Love,Mary

miss maggie
Posts: 929
Joined: Mar 2010

Dear John,

I am sorry you have to start chemo again. Do you know which chemo??
I am a bit surprised you didn't ask the doctor why? Let us know when
you get this info. I am sure the doctor has a very good reason. I say
that because you always sound good when you post.

I will be thinking of you. Maggie

COBRA666's picture
COBRA666
Posts: 2418
Joined: May 2010

Maggie,
I do not have to have more chemo. I was just telling Denise how it was with my watching and waiting way back when I was first diagnosed in 2010. I was only watching for 3 weeks and I was told they are going to start the chemo. At the time I knew nothing at all about what was going on. I did not have anyone to ask about it. I did not even know this board existed back then. Thank you for the concern though. John

jimwins's picture
jimwins
Posts: 1983
Joined: Aug 2011

I'm hoping for "Not Ever" for all of us on having to do
chemo again :).

Hope you and yours are doing well.

Jim

COBRA666's picture
COBRA666
Posts: 2418
Joined: May 2010

Jim,
I am hoping the same thing on this end. It seems the "R" is holding pretty good for a lot of people. The new drugs I am hearing about seem to even have greater promise. John

miss maggie
Posts: 929
Joined: Mar 2010

Hi John,

I guess Denise and I must of been in la la land. Yes, there is always concern from
me and others for everyone on this site. I thought things changed for you. Stay well
and keep up the great humor you are known for.

Love Maggie

COBRA666's picture
COBRA666
Posts: 2418
Joined: May 2010

Maggie,
I read things sometimes and have to go back and reread because I missed something. Happens all the time to me. I sometimes relate it to lingering chemo brain. The good thing is I can watch reruns on TV and its like watching for the first time. LOL. John

merrywinner's picture
merrywinner
Posts: 620
Joined: Aug 2009

Oh John thank you for making me laugh so hard,I can just imagine you typing like mad trying to get it all back to rights. Mary

jimwins's picture
jimwins
Posts: 1983
Joined: Aug 2011

Hang in there, Denise!

Big hairy hugs (yes, it grew back :),

Jim

scuttlebug11's picture
scuttlebug11
Posts: 175
Joined: Jun 2011

for the prayers and well wishes i sorry i don't write but right now even that feels hard and now im getting these horrible headaches. blessings denise

miss maggie
Posts: 929
Joined: Mar 2010

Dear Denise,

I am so sorry for your headaches. Do you get headaches often? I don't get headaches
often. When I do, I just can't stand it. Since I really don't medicate often, I always
take something strong (Aleve) for the headache to go away. No use fooling around waiting for the headache to go away with minor medication. The Aleve also helps with my hip problems,
and right knee for the whole day.

I hope you feel better by the time you read this post. Prayers and blesssings. Maggie

scuttlebug11's picture
scuttlebug11
Posts: 175
Joined: Jun 2011

no i really don't get headaches untill 4or5 nights ago and i have never had pain like thay before ,and i am still am getting small headaches which i too take aleave, it may be due to stress i am having problems with my daughter right now and the cancer center i have went to since 2005 would't tell me the rusults of my pet scan over the phone, they always have in the past this time i have to see the doctor,which will be tomorrow say a prayer for me blessings denise

COBRA666's picture
COBRA666
Posts: 2418
Joined: May 2010

Denise,
I can imagine all the things that are probably going thru your head right now. There could be any number of reasons they do not want to say the results over the phone,but I know the reasons that are probably going thru your mind. Try not to think that way. When we are left with our thoughts the mind goes to all kind of places. We are all the same in that respect,at least I know I am. It could be they just want to discuss something about your treatment and don't want to discuss it over the phone. You only have to wait until tomorrow which seems like forever right now so try to keep yourself calm and see what they have to say. No matter what it is there is always a plan. Hope this helps. John

jimwins's picture
jimwins
Posts: 1983
Joined: Aug 2011

Denise,

Sending you big hugs and postive thoughts!
I know it's hard not to worry.

Jim

miss maggie
Posts: 929
Joined: Mar 2010

Dear Denise,

Of course I will say a prayer for you. By now you would of seen the doctor. Did you
tell the doctor about your headaches?? If you feel up to it, please share the results
of the Pet Scan and your visit with the doctor. I have never been given the results of
any test on the phone. I can understand why your doctor hesitated. When I am scheduled to have some test, I always make an appointment a few days later with my oncologist or my
internist.

I am sorry about the problems with your daughter. All of us at one time or another have
problems with our children, husbands, and friends. It seems these problems get worse
when we have stress about other things. Especially our health. Drama, who needs Drama?

Here is an extra prayer to you. Blessings to you also. Maggie

anliperez915's picture
anliperez915
Posts: 742
Joined: Sep 2011

Hi Denise,
I will be praying for you that everything is ok. Just take care of yourself and try not to worry too much. I also have a 17 yr. old and the fights that him and I get into (man like World War III) just kidding lol, but they could get really extreme. (((HUGS))) sweetie and hang in there!

Sincerely,
Liz

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