Feb 10, 2012 - 2:18 pm
Just got my PET/CT report from early this week (which, btw, my gyn-onc was not inclined to order as I was asymptomatic, but I insisted). Up until now all recurrences have been in lymph nodes only. Today's report shows a lesion in my liver and multiple nodules in lungs, some new enlarged lymph nodes, other nodes reduced in size. My ca125 was only slightly up from prior in October. Feeling a little panicky. I have a call in to get an earlier appt as it is currently not until the 28th. I am ready to jump into chemo full bore now despite gyn-onc's reticence to treat before having symptoms. I take that attitude as an expectation that treating is a moot point just decreasing quality of life during the inevitable expectation of my demise. I consulted with another gyn-onc in Nov who may be more aggressive in treatment options and may schedule an appt with him as well for his thoughts on the progression of disease. I've just passed the 4-yr anniversary of my debulking surgery for UPSC Stage 4B and am determined to make it to my 5th! So that's my whine, probably just a little bit in shock right now as I did not expect such progression.
Ro, I hope your new round of chemo is progressing uneventfully. Mary Ann, thinking of you on your biopsy today and hope all goes smoothly.