CSN Login
Members Online: 6

Anyone with endometrial (stromal) sarcoma (ESS)? Any grade?

julia12756
Posts: 22
Joined: Jan 2012

Just curious since I understand this is another of our very rare uterine cancers and I unfortunately have it. I've tried joining the yahoo discussion on it and there doesn't seem to be someone in charge of membership there now since it's been a while since I applied. :(

Anyway, just curious!

Julia

jazzy1's picture
jazzy1
Posts: 1387
Joined: Mar 2010

I as well have an aggressive cancer --- MMMT and joined yahoo group with my cancer type. I did just check under yahoo groups for your cancer and it shows an active group set with approx 400+ members. Have you tried to join again? I will tell you when I first joined and submitted my information with email (yahoo), it took approx 3 days to be approved.

If no luck, there should be some help area on the group site where you can ask for guidance.

Good luck!
Jan

P.S. Tell us a bit about your journey with cancer.

beadnsue
Posts: 2
Joined: Feb 2012

Julia I see that you did apply to the yahoo group. I am the list owner. You were sent a note, so you may want to check your spam folder. It's a very active group. I just sent you a personal email also.
SusanL

pakb56
Posts: 141
Joined: Jan 2012

There are so many variations of cancer aren't there. As I too am newly diagnosed and just finished my first round of Taxol/Carbo chemo, my head is still spinning. I have Endometrial clear cell andenocarcinoma with 90% mymometrial invasion, angiolymphatic invasion and right fallopian tube involvement. The Clear Cell is also an agressive type of cancer.

Wishing you the best...

Take Care and Be Well,
Pat

linjay
Posts: 3
Joined: Feb 2012

Hi Julia

I was diagnosed in Oct 2002 with ESS low grade, I had had a total hysterectomy in May 2000 and the cancer make-up leaked into my pelvic region and grew into a large tumour. After surgery I was treated with Megace and apart from a couple of side effects have so far had no reappearance. I also tried the yahoo site but didn't get anyway and if an email had been send and went to junk I probably deleted it without checking so gave up. If there is anything you would like to ask, please feel free to do so, can't guarantee I will have an answer but we can try.

Take care
Linjay

Subscribe with RSS
About Cancer Society

The content on this site is for informational purposes only. It is not a substitute for professional medical advice. Do not use this information to diagnose or treat a health problem or disease without consulting with a qualified healthcare provider. Please consult your healthcare provider with any questions or concerns you may have regarding your condition. Use of this online service is subject to the disclaimer and the terms and conditions.

Copyright 2000-2014 © Cancer Survivors Network